I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 20, 2024, 01:32:09 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Transplant Discussion
| | |-+  transplant not possible
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: transplant not possible  (Read 3672 times)
babycake
Full Member
***
Offline Offline

Posts: 266

« on: May 23, 2012, 09:14:16 PM »

with all my health issue
i was informed last yr  after there testing
at this time i was not qualified  to be on the list

a friend of mine back east is willing to donate
but when i called my cordinator
she stated i had to many health issue

well geeze many other people have to and they got on the list
including my son
hes been on the list for 2yrs just waiting for that call

no matter what i guess age is still the factor
Logged
Lillupie
Sr. Member
****
Offline Offline

Gender: Female
Posts: 665


wedding 12-10-11

WWW
« Reply #1 on: May 23, 2012, 10:23:08 PM »

oh no. Im sad to read this. Im so sorry. What are some of your health reasons why you dont qualify?

If you dont mind me asking.

Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #2 on: May 24, 2012, 12:50:50 AM »

Is there another center you can try? Just because one says no does not mean another will. Each center has a different protocol and you may qualify at a different center.
 
Good Luck
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« Reply #3 on: May 24, 2012, 07:41:58 AM »

I saw that this was OHSU and Legacy Good Sam isn't an option because of your insurance. Is there any way to talk to your insurance company about trying Legacy again? Otherwise, your next closest center is probably in Seattle.  :grouphug;
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
noahvale
Guest
« Reply #4 on: May 24, 2012, 08:25:42 AM »

^
« Last Edit: September 17, 2015, 02:28:00 AM by noahvale » Logged
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #5 on: May 24, 2012, 01:01:49 PM »

I would think you could ask the specific reasons they denied you now and what they want you to do to fix them. I was delayed while they treated my CMV and c. diff. You have to ask lots of questions.
Logged
babycake
Full Member
***
Offline Offline

Posts: 266

« Reply #6 on: May 25, 2012, 05:02:31 PM »

Your post brings up a couple of things...

The transplant center said "at this time," so it is not totally excluding you from getting listed.  Did the transplant coordinator give you the reasons why?  Are the other medical issues you're facing treatable to the point of not affecting a transplant?  From previous posts, I believe you're experiencing infections and internal bleeding?  Age alone is not a reason to be excluded.

As Deanne stated, you might need to search for another transplant center within a reasonable distance that your insurance company will approve.  At the minimum it should cover you for a second opinion consult.

Sorry to read that you are having to go through all of this.  I know how frustrating it is.  Wish you the best. ~ Noah


the internal bleeding im having i thought was do to my hemroides
but thats not it
for i did see the er doc about it
and he said the lining was thining, thats why i had been bleeding
Logged
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #7 on: May 25, 2012, 09:35:04 PM »

To me that explanation makes no sense. You need to see a gastroenterologist. Whether or not you get a transplant, you can't go around bleeding out. It could kill you.
Logged
babycake
Full Member
***
Offline Offline

Posts: 266

« Reply #8 on: May 27, 2012, 02:18:59 AM »

To me that explanation makes no sense. You need to see a gastroenterologist. Whether or not you get a transplant, you can't go around bleeding out. It could kill you.


i have seen the gastrololist
i even saw the bllood doc

yje gastro
did a upper gi and a lowe gi
and they found the hemroids when my reg doc said i didnt have them
which i had already felt i did.. they also said that i had a small hernia which wasent a problem
Logged
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!