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Author Topic: God, give me strength!  (Read 4765 times)
buffalogal855
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« on: May 22, 2012, 11:17:39 AM »

God please give me strength, as a caregiver, to help my husband deal with his ESRD, Stage IV; and thank you all for being here so that I can vent and complain and cry with people who understand.  Will update next week when we meet with hubby's nephrologist.  Just say a prayer please!
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paris
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« Reply #1 on: May 22, 2012, 05:45:45 PM »

Keeping you both in my thoughts and prayers.  This disease is hard on the spouse/caregiver.  I hope the other caregivers here can give you wisdom, strength and support.   Please post next week, so we know how your husband is. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
lmunchkin
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"There Is No Place Like Home!"

« Reply #2 on: May 22, 2012, 06:32:13 PM »

Yes, Paris, there are a host of us here that understand "Completely" what Buff is dealing with.  Just take a deep breathe and do what you can, dear!  That is all anyone can ask.  You love him and I know it "deeply" troubles you regarding his health. Just take his hand in yours and tell him just how much you "LOVE" him and how much he means to you.

He didn't ask for this, Buff.  He can't help what has happened and neither can you.  Just cope the best you can and leave it to God. That is how I deal with all the stress, I just give it to God and pray ferverently!  There are others who cope differently with this too, and Im sure they can share their coping mechanisms as well. 

The thing that I try to be most careful with the most, is not "jumb" on hubby.  I have in the past, would just jumb on him for every little thing this disease brought forth for us both.  But I was so wrong and have felt shame over it.  Nothing intentional mind you, but it hurt him!  He did not deserve that and I have realized that over the years.  I want no more than to be the person he fell in love with 18 years ago before this damn disease took his livelihood.  I almost let it take me too, but I will not let it beat us down, PERIOD!!!

Hang in there, Buff.   You have got a whole lot of support here and we want you to know that!!

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Cordelia
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« Reply #3 on: May 22, 2012, 06:32:42 PM »

 :grouphug;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Mr. B 123
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« Reply #4 on: May 22, 2012, 10:17:59 PM »

Hang in there...God will give you the strength.  He is there always, thru good and bad, he cares for you. God Bless, keep us posted as how things are going.
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Honor God, work hard, and keep show'in up.
Philippians 4:4-7
buffalogal855
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« Reply #5 on: May 23, 2012, 06:35:33 AM »

 :thx;  Your kind words have made me feel better. I do try to take one day at a time and I try to stay positive for my husband.  Will post after Dr's appointment next week.  Have a wonderful day!
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Poppylicious
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WWW
« Reply #6 on: May 23, 2012, 03:09:06 PM »

I don't pray, but will keep you in my thoughts (hope that's okay!)

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Kitty Cat
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Lila & Smudgie

« Reply #7 on: May 23, 2012, 05:34:05 PM »

Prayers coming your way for you and your husband. It's a very difficult road. With you by his side, you'll be able to conquer anything. You'll have your days where you'll second guess everything you do, that's normal. You'll also be very surprised what strength you have, you are his biggest advocate.

If you need to vent, advice, or just to talk we are here for you.  :grouphug;
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drgirlfriend
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« Reply #8 on: May 23, 2012, 07:23:26 PM »

 :grouphug;
We understand. Don't be too hard on yourself. Let us know what happens.
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
Rerun
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Going through life tied to a chair!

« Reply #9 on: May 25, 2012, 04:01:12 PM »

I'll pray for you and your husband.  AND I'll pray for the ones that don't pray......

        :pray;
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lmunchkin
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"There Is No Place Like Home!"

« Reply #10 on: May 26, 2012, 07:09:07 PM »

How is it going Buff?  You guys doing okay?  Just checking on you dear, not meaning to be nosey!

lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
MaryJoe
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« Reply #11 on: May 27, 2012, 08:28:20 AM »

Still praying, Buff, and thinking of you.  Hang in there, we all know this journey is not easy.  We're here...

MJ
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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