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Author Topic: Transplant orientation  (Read 2201 times)
mamagemini
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It's all me.

« on: May 11, 2012, 09:08:48 AM »

Went yesterday to the 5-6 hour orientation. A lot of info going in to the brain. Then they had to take blood -- from my dehydrated veins. They would put in a vial and it would go then stop...drip drip drip. They needed 16 vials...got only 14. They blew 2 veins in the process. Yippeee.
One thing I got out of it is that we can double list. Which I am going to do because in San Diego the list is shorter. So the San Bernardino County is 8 - 10 years.
So I am waiting to hear about the blood work....if they need more...they are out of luck. I even have a bump in my left arm now from the blood work for the fistula that was done and the IV that bruised my hand up so bad. All done with needles. :P
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FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
MooseMom
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« Reply #1 on: May 11, 2012, 11:26:47 AM »

Oh yes, do get double listed if there's any chance that your wait time can be reduced!

Those pre-tx evals are intense, that's for sure.  Did you learn anything that surprised you?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: May 11, 2012, 03:52:33 PM »

Our daughter is listed in Los Angeles and San Diego. The 2nd listing is much faster.
Good luck!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mamagemini
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It's all me.

« Reply #3 on: May 13, 2012, 08:45:50 PM »

Awesome. I will do that then. I havent heard anything yet from all the blood work. Need to call because I have to living donors but they need to be tested, neither will pass but at least they will find out about their health too.
Today I had a helluva a day. My key in my car wont come out...and trust me i have done everything. My arm is aching like crazy from all the work I put it through today. I had to pull the fuel filter fuse and take the battery cable off. Who knows what that will do long term. Now is when I wish I had a man around.
I will let you all know if I hear any news from the tx thingy.
Night and happy mothers night...lol
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FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
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