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Author Topic: Overwhelmed, angry and sad with cream on top.  (Read 14291 times)
willowtreewren
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« Reply #25 on: April 19, 2012, 03:56:07 PM »

Oh, Pops..... more *huggles*  :grouphug;

Yes, please, please let's keep that trend going. Oh, MEN!!!!! Grrr.

And don't give up hope on the Mog-cat.  :pray;

Another round of *huggles* to you.

And when you get a chance, hit that Blokey up the side of the head..... so maybe next time he will listen up!

 :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #26 on: April 19, 2012, 06:03:13 PM »

Dropped in to see how you are going.  940, its not much to write home about is it, and yet its an improvement, so, good.  Come on kidney.  If you know what's good for you...   Meanwhile is it Mog out there in the garden, or are you hallucinating?  By your description I couldn't be sure if it wasn't some kind of Wuthering Heights moment.  Come home Mog!  Dammit!!  I wonder if Mog won't come home till the kidney is safely home too?  Sometimes animals are odd like that.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
thegrammalady
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« Reply #27 on: April 19, 2012, 07:13:11 PM »

just saw this, i've been in hiding lately. hope all is going better huggles. you are loved.   :cuddle;
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RichardMEL
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« Reply #28 on: April 19, 2012, 11:33:35 PM »

Poppy are you suggesting that you're hearing Mog for real or perhaps in your mind?

As for the slow decline in the creat - this is positive. It's the right direction. With KarenInWA's recent experiences with kidney trauma her creat has been quite slow to come down, but comign down it is - I would be encouraged by this drop - we all want it to be much more of course, but if the trend is down that is what is important - also another key is if his other labs are getting back into line, like the K and phos - if those are getting more normal that's a great sign.

c'mon Mog be a sweetheart and come back from your adventure - mum needs you!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #29 on: April 20, 2012, 03:27:22 AM »

Meanwhile is it Mog out there in the garden, or are you hallucinating?  By your description I couldn't be sure if it wasn't some kind of Wuthering Heights moment.
Poppy are you suggesting that you're hearing Mog for real or perhaps in your mind?
It's all in my head!  I don't like being alone at home because I hear things (both real and imagined!) (Or, he's meowing somewhere far away and I can hear him because I'm his Mummy; weirder things have happened in the world!) Last night I heard scrabbling at an inside door and just assumed it was Dora but when I went to investigate she was fast asleep on the settee.  I've checked all round the house; he's definitely not indoors!

Richard, I've been concentrating so much on the creatinine that I haven't even found out about his other levels.  Stupid me.  He thinks he'll be in till Monday at least now.  A whole weekend of Hospital food ... mmmm, yummy!!  He's supposed to be peeing into a measuring jug (well, not quite but you know what I mean) but he keeps forgetting so they probably think he's lying when he says he's been peeing more than what they're seeing.  He's a plonker sometimes.
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venting myself online since 2003 (personal blog)
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sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
cassandra
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« Reply #30 on: April 20, 2012, 04:15:27 AM »

Ow dear Poppy, everything is crossed, asked my Dad for prayers. If he keeps drinking, and eating his creat should be down. Can't say anything else.... Is there no-one you can call to come and be with you?
I'll be thinking of you

lots, and lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
del
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« Reply #31 on: April 20, 2012, 05:17:41 PM »

Some more "huggles" for you!!   :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
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« Reply #32 on: April 21, 2012, 05:16:28 AM »

Poppy , I hope Blokey continues to improve . I thought I was the only one that had one like this ! Is it possible that the cat could be stuck somewhere - under the house or in a shed or similar ? One of my cats is 16 years old and behaves very strangely when Laurie is in hospital . Hope you find him . thinking of you and wishing you both well .
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lou
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« Reply #33 on: April 21, 2012, 05:52:52 AM »

AAAaaahhhh Poppy I've only just seen this!

Massive *huggles* to you and keeping fingers crossed over the weekend thats his levels go back down  :grouphug;

Also hoping Mog reappear v soon x x x
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MomoMcSleepy
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« Reply #34 on: April 21, 2012, 06:54:36 AM »

Big huggles and lots of them!   :grouphug; :grouphug; :grouphug; :grouping;

I have said prayers for your Blokey and poor Mog-cat  :'(. I have cried many a night over a lost kitty.  One of my cats (when I was a kid) used to always get out, sometimes she'd be gone for days, even a week or so.  Sometimes they get brought in by good Samaritans and don't "escape" for a while. 

Are you sure Mog-cat is outside and not trapped somewhere in the house?  My cat got  into the ducts once, and another got above the bar in our basement, above the ceiling tiles.  This cat would get under the stairs, too, and cry and cry (only kitties and once can fit under the stairs). At first couldn't figure out where she was.  She wasn't really stuck, though, just stupid!  We were babysitting her, and she liked to explore.. Sometimes they get behind walls when you have drywall work, and they are notoriously stubborn about coming home if they do get out, sometimes they stare and cry at you, then run away when you approach! So frustrating!  Did you open a seldomly-used storage space or something?  I wish I could help you look, but it's a long trip from Michigan!

I hope Blokey's  kidney gets back into shape  quickly.  I understand that you  think it was a low blow to point out that you went through a lot to  give it to him, but it was  necessary to say.  He wasn't listening to anything else!   What could you do?  My husband has been saying that once his kidney is inside of me, I will be his slave forever bwahahaha...
...it is the ultimate trump card.  Hopefully Someone else matches up better!. I know I'd be in big trouble if I put off calling the hospital.

What caused this trouble, was it a stomach bug that got out of hand, or did a rejection event make him sick?  You poor things, saying prayers for you, and I hope that all is right very soon!

 :pray;    :bestwishes;  :pray;
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
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« Reply #35 on: April 21, 2012, 07:50:38 AM »

Dropping in to see how you are and provide more huggles  :grouphug; :grouphug; :grouphug;
I love MomoMcSleepy's comments, they are spot on about everything.
Including the loss of a small kitten.  I have lost track of whether Mog is kitten sized.  When we lived in houses with louvre windows and had kittens, they used to sleep on the louvres, a lovely breezy place for a kitten in the tropics.  But they grow so fast, little cat-things, and quickly acquired enough weight to CLOSE THE LOUVRE if they lounged too far as they snoozed.  They would then slide down between the closed windows and the flyscreen, till they were lying on their backs at the bottom of the window space.  We'd come home to find bleating cats stuck behind closed louvre windows, sometimes hard to extract. 
Maybe telling kitten stories isn't such a good idea, my cats make me cry more than my husband, when they are sick or lost, I just can't cope. 
 :( :( :grouphug; :grouphug; :pray; :pray;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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« Reply #36 on: April 21, 2012, 02:22:34 PM »

Went to Hospital today.  Blokey's creatinine was down to just over 300 this morning (3.4 in AmeriSpeak) ... Huzzah!  A MASSIVE improvement on Wednesday's 1000, I'm sure you'll all agree.  I think the general consensus is dehydration.  I'm thrilled that MY kidney is so good at getting itself back on track!  All other levels are seemingly fine too.  They're monitoring fluid intake and output still, but he came off the drip this morning.  Now we just need the creatinine to reduce more and become normal (in Blokey's case normal appears to be about 150) and that should be this little adventure behind us.  I suspect it all began because of a little bug. 

Nasty little bug  :Kit n Stik;

Apparently Dr. (Yummy) Neph. said that when he saw Blokey's blood results on Wednesday he was completely convinced they were looking at a huge rejection episode, but there were/are no (other) signs of rejection whatsoever. 

 :2thumbsup;

As for Mog ... still no sign.  There is absolutely nowhere he could be in the house, or under it.  Somebody has suggested that I need to go out at about 4am and walk round the neighbourhood calling for him.  It makes sense ... no daytime noise, plus noise travels better at night so he might hear me and I might hear him if he is trapped in a garage or shed.  I must remember to set my alarm and hope that I don't wake anybody up with my Mog calling baby voice!

Thanks for your continued love, hugs and support. 
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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« Reply #37 on: April 21, 2012, 03:36:45 PM »

Glad to hear blokey is better.  Sorry still no moggy.  One miracle at a time, I guess.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #38 on: April 21, 2012, 04:40:21 PM »

300.  Thank god!  That's more like it.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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« Reply #39 on: April 21, 2012, 10:11:47 PM »

Good about hubby, and good idea about Mog.  :thumbup;
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Galvo
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« Reply #40 on: April 21, 2012, 11:45:24 PM »

Sam-cat and Auggie-dog don't get along.  Sam took off.  We live in the wild woods so there is no telling what happened to Sam.  I miss old Sam. Of course Sam isn't the first cat who went missing here; Tiger and Pickles took off once.  Found Pickles.  Sam would jump on thwe desk beside my computer and tap me on the shoulder begging for treats that he knew were in the drawer here.  I'll go looking for him tomorrow.

Now Poppy, all men aren't, well, they can't be . . . whenever they, uh,  Oh never mind.

gl
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


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« Reply #41 on: April 22, 2012, 02:24:54 AM »

ok phew... that number sounds A LOT better!  :bandance; you must both be feeling relieved. lets hope it keeps heading down.......
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willowtreewren
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« Reply #42 on: April 22, 2012, 06:48:20 AM »

Still sending *huggles* to you, Poppy.

I'm very, very glad to hear of Blokey's improvement.  :cuddle;

 :'( over Mog.

Aleta
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Mother to Meagan, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
MomoMcSleepy
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« Reply #43 on: April 24, 2012, 06:16:13 AM »

So glad about Blokey, and hoping you get your little Mog back!
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
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« Reply #44 on: April 24, 2012, 09:51:53 AM »

I so sorry for all you have been thru in the last week.  :cuddle;

I hope you find your mog. Its so sad when you kitty goes missing. but coming from experience one of our cats went missing for a week and I thought we had lost her and she came back. Also my sister lost her cat for almost 2 week and came back. Don't lose hope.  :grouphug;

Have you check the shelters? Or put up signs?

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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
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« Reply #45 on: April 26, 2012, 07:29:57 AM »

I made Blokey come food shopping this morning ... he wasn't a happy bunny and made me feel guilty because he "felt tired" ... !

Have you check the shelters? Or put up signs?
I have yes, and he is microchipped so if found the vets and shelters will scan him and send him home.  Also spoken to neighbours and whatnot.  I keep calling him and expecting to see him everytime I look out of the window (plus, I can still hear meowing [in my head]!!) but I'm resigned to the fact that I'll probably never see him again. 

 :(

Still, I like to think that he's having an amazing adventure somewhere and is happy, because that helps.  Blokey has decided that he's in Reading, which is a town the other side of England.  Maybe it's true (he has been known to get in cars, silly cat.)

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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« Reply #46 on: April 30, 2012, 08:18:47 PM »

Aw Poppy... :cuddle;   :cuddle;  :cuddle; 
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« Reply #47 on: April 30, 2012, 09:08:35 PM »

Just saw this.... it was a quick drama but glad all is well ... except for MogCat.  If it is a male he may still show up.  Catten around.

     :grouphug;
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MomoMcSleepy
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« Reply #48 on: May 01, 2012, 08:23:51 AM »

Just saw this.... it was a quick drama but glad all is well ... except for MogCat.  If it is a male he may still show up.  Catten around.

     :grouphug;

that's definitely possible, is he still intact?
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
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« Reply #49 on: May 01, 2012, 02:22:51 PM »

that's definitely possible, is he still intact?
Gosh no ... he had his balls chopped off when he was eight months old!

A local cat was hit by a car and killed on Saturday just over the road.  As I'd gone knocking on doors the owner was able to track me down yesterday (love the fact that somebody kept my leaflet about Mog) and I was able to tell him who picked his cat up.  We were chatting and he informed me that Mog would go round his house and terrorise his chickens!  That's my boy!  The last thing I do every night is call him in and I still expect him to come trotting along!  I expect that the day I stop calling him will be the day I subconsciously accept I'm never going to see him again ... still, Dora is being naughty enough for two now!

Blokey went back to work yesterday so you can imagine how happy he is.  Tomorrow he has a clinic appointment and *fingers crossed* his creatinine will be practically 'normal'.  He forgot to take his tablets on Sunday night, despite me saying to him, Have you taken your tablets? and him replying, Well d'uh! Of course!  We've decided that next time I ask he has to humour me and just check!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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