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Author Topic: Apology  (Read 5125 times)
paris
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« on: April 12, 2012, 08:20:53 PM »

I apologize from the bottom of my heart for my absense. My computer has crashed 3 times in the past 3 months and I don't do well on a tiny keyboard.  I'll explain my life now briefly (besides the stupid computer).  I have spent every free moment helping my daughter recover from the devastation of her husband leaving after charging up all the credit cards and clearing out the bank account. I now pick up her kids after school, sit down with homework, and leave again for cheer or basketball practice. Yep, I'm raising kids again.  She needs my help - so what do I do? She lost her job and found another at 1/2 the salary - but it was a job.  She has to give up her 5 bedroom home that she and the kids love. They will be moving in with us at the end of May.  My husband has been sick. He has had tons of test and good news is his heart is good, blood work is good. He has a huge hematoma that keeps growing. He tore an artery (don't know how) and he bleeds in the abdomen area. There is a hard, softball size ball and then so much fluid surrounding it.  The area is now the size of a large dinner plate. He can hardly move some days.  This has gone on a long time.  But, 3 different doctors assure his it isn't cancer and they know what it is.  It may take surgery to make the artery heal and stop bleeding.  It is gross.  So in that mess, I got overloaded, but kept my stiff upper lip and didn't complain that everyone needed me to do everything.  Forget my energy level or getting any rest! Ha! I ended up having a mini(maybe bigger) melt down and couldn't do one more thing. I didn't have it in me to help one more person. I finally told my husband that I felt like I could have a break down.  Me? The strong one?   Now I am trying to find a better spot to be in.  People wonder how anyone could be depressed after getting a transplant.  I think all the meds can take over some days.  I lost another friend and again my insecurity made me wonder, why wasn't it me?   I do feel guilty (and grateful) for the transplant.   In short---life took over and I got lost.   My deepest apologies to all of you.   :cuddle;
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YLGuy
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« Reply #1 on: April 12, 2012, 09:28:46 PM »

 :cuddle;  :grouphug;  :cuddle;
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Traveller1947
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« Reply #2 on: April 12, 2012, 09:43:10 PM »

Trouble always seems to come in bunches, doesn't it?  I'm so sorry to hear that all this happening and all at once.  I'll pray for you and keep you in my thoughts.
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boswife
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us and fam easter 2013

« Reply #3 on: April 12, 2012, 09:55:31 PM »

 :grouphug; ((((((((((((((((((((paris))))))))))))))))))))   :cuddle;  I feel very close to where you are.   :pray;  Im sorry and  :pray; for help and change  Bless you Paris..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
galvo
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« Reply #4 on: April 12, 2012, 09:57:48 PM »

 Not a dull moment, eh, Paris? Hang in there (that's what we do best). Good to hear from you.
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« Reply #5 on: April 12, 2012, 10:10:37 PM »

Wow that's a lot to handle - especially happening to people you love!
I miss seeing you post and I have also been absent, working on this volunteer project, so I feel bad if i haven't been supportive.
Please tell your hubby I am thinking of him, hoping somehow he gets better, or gets some answers!
Oh and your daughter, and those lovely grandkids, it just is so sad. They are lucky to have you in their lives.
Take care my friend, send you lots of love and big hugs!  :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #6 on: April 13, 2012, 01:04:46 AM »

Welcome back Paris, you are always missed if you are not here. Sometimes life really hands us a pile of garbage, doesn't it? I am glad you are able to help your daughter out so much. She really needs you right now. things will get better for you, they always do for good people.   :cuddle; :cuddle;
and glad you are back.
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One day at a time, thats all I can do.
cassandra
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« Reply #7 on: April 13, 2012, 02:20:13 AM »

lots and lots and lots of hugs and love


         

             :grouphug;



xxx Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sluff
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« Reply #8 on: April 13, 2012, 04:39:53 AM »

No excuses.  Just kidding Paris.  :grouphug;
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willowtreewren
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« Reply #9 on: April 13, 2012, 06:39:58 AM »

Oh, Paris, Paris.

There is no need to apologize. You are the one who needs US! You do NOT need to be worried about not giving more of yourself.

Please, please take your time, catch your breath, help your husband and your daughter (who absolutely SHOULD be your priority after your own needs) and come back when you are ready, or when we can give YOU support.

 :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
del
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del and willowtreewren meet

« Reply #10 on: April 13, 2012, 07:00:36 AM »

 :grouphug; :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
Grumpy-1
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« Reply #11 on: April 13, 2012, 07:51:40 AM »

Darn !!   willowtreewren  sure gives good advice.   Paris - take willowtreewren post to heart. Take care of yourself, your hubby and your daughter in that order.  All other things can wait.  Your friends here and else where understand.  Stop in when you need to - either update or get a bit of a pick me up.  LoL Grumpy
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Make me the person my dog thinks I am
billybags
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« Reply #12 on: April 13, 2012, 07:54:47 AM »

Paris, sending you lots of hugs. Your plate is full at the moment. Take one day at a time and you will get through this, but don't over stretch your self. You really sound like you have taken on so much. 
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KarenInWA
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« Reply #13 on: April 13, 2012, 11:04:58 PM »

Oh Paris, that is just awful!!! I hope your daughter is able to take the ex for all he's got, because there is no excuse for that behavior. And I certainly hope your husband is able to pull through his medical problem! Why are they keeping it in there? As you know, I recently had a hematoma pressed against Lynette the kidney, which stopped her from producing urine. Now I am back at square one with recovery from surgery and high creatinine. But, at least I'm on the road to recovery. What is his hematoma pressing against?  How is his hgb/hct? Will he need a blood transfusion? Has he had one?

I wish you comfort, love, family and friendship going forward, Paris. You are in my prayers

 :grouphug;  :cuddle;  :flower;

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
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« Reply #14 on: April 14, 2012, 06:47:03 AM »

Awww, Paris.  Sending you oodles of squiggly *huggles* ... feel free to share them with any other members of your family who might need them too.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
kitkatz
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« Reply #15 on: April 14, 2012, 05:39:01 PM »

Goodness! You have had a plateful handed to you lately!   :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #16 on: April 14, 2012, 09:46:58 PM »

Aw no need to apologize its totally ok. We understand

 :grouphug;
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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"There Is No Place Like Home!"

« Reply #17 on: April 15, 2012, 02:25:16 PM »

Wow that's a lot to handle - especially happening to people you love!
I miss seeing you post and I have also been absent, working on this volunteer project, so I feel bad if i haven't been supportive.
Please tell your hubby I am thinking of him, hoping somehow he gets better, or gets some answers!
Oh and your daughter, and those lovely grandkids, it just is so sad. They are lucky to have you in their lives.
Take care my friend, send you lots of love and big hugs!  :grouphug; :grouphug; :grouphug;

Ditto!  Just wish I could help in some way!  Missed you Paris, but understand your reasons.  No apology needed here! I don't get to post as much either dear, so don't you worry your pretty little head about it!!!!

God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Chris
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« Reply #18 on: April 15, 2012, 03:13:03 PM »

My thought is no apology needed, life gets in the way.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #19 on: April 15, 2012, 04:31:42 PM »

no apologies needed. we all run away now and again, just look at me and i don't have anywhere near the reasons you do. loves and hugs.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
paris
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« Reply #20 on: April 16, 2012, 04:41:41 PM »

Thank you all.  Running away is exactly what I want to do.  Barry's medical issue is getting now causing him to carry extra fluid.  His waist has expanded and he keeps gaining weight.  I bet he has 15 pounds of fluid on him.  I cannot literally carry him back to the doctor.  If he doesn't go back, I don't know what to do.  I'm getting tired of taking care of the world when I just want to be left alone, rest and take care of me.  I sound selfish.  I am frustrated because I worked so hard for so long, to be where I am and I don't understand him  not getting help to get better.  I can't endanger my health because he doesn't want to take care of his.     This is why I have isolated myself lately -- I am too upset and I don't like dumping my problems on others.   Everyone has a story, and kidney patients plates are full without adding anyone else in the picture.  But I so appreciate the kind words.   My labs are doing well.  Steady @ 2.4/ 2.6 creatinine.  And other numbers are good too.  For that, I am very grateful.    :2thumbsup;
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Grumpy-1
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« Reply #21 on: April 17, 2012, 10:50:35 AM »

Paris   Understand your desire to run away.  I think most of us have felt that way at some point.  Just to quit and have it over with.   Not sure how to say it, but if Barry doesn't want to help himself, you can't change that.  You can only encourage him to make the attempt, encourage him to get help.  You can enlist friends and family to give support and encouragement to him as well, but he has to decide to make the effort.  I'm not an expert on any of this stuff, but I think you are right in taking a step back to get yourself together.  You can't help the world and can't help anyone else if you can't help yourself.   Keep coming back here and venting as needed.  There will always be a listening ear and a kind heart to help.  Grumpy
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Make me the person my dog thinks I am
Bajanne
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« Reply #22 on: April 17, 2012, 02:12:46 PM »

No need to apologize, especially to me.  I have been very overwhelmed recently.  I understand where you are coming from and really feel your pain.  Please be assured of our love and best wishes.   My caring thoughts and prayers are with you.
LOADS and LOADS of LOVE :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #23 on: April 17, 2012, 04:42:30 PM »

Today his legs are carrying fluid -- He keeps showing me all his aches and pains.  Every day I say "call the doctor today" . Sometimes he says he will, somedays he says "in a week I will".  Today he got mad at me for asking him to see the doctor, again.  He was suppose to see the cardialogist today. The doc  lowered a med and wanted him to come back and do a 24 hour monitor again.  He didn't go.  He has seen me go through medical issues for a decade.  No one ever reminded me to see the doctor, remind me of an appointment, filled my meds, etc.  I wanted to be better -- so I went to the doctor!   Very frustrating.  He has always thought the worst things and was sure he had cancer when he did go to the doctor.  Now he wonders if he has kidney failure because of retaining fluid.  Mind you, he had labs about 3 weeks ago, a culture that was negative.  I looked at his lab numbers and they were all in the good range.  Except the doctor told him that at 12.6 he is a little anemic.   Oh my Lord, have mercy!!   I haven't seen that number in so many years, I can't imagine what that must feel like.  As you can tell, I am really having a time finding my sympathy card right now.  Of course, I am worried.  But, GO TO THE DOCTOR!!!   Let's find out what the cause of this is and start on the road to recovery. 

Thanks for the reassuring words.     @Grumpy-1, you are right. I have to get myself back in a better spot. Stress doesn't help my kidney enjoy his new home.  And my job is to keep the kidney for a very long time.    @ Bajanne,  I know you understand. You are another strong woman who wants to help the whole world. Your words are always calming and full of hope.  I will keep you in my prayers as you go through your time of stress. 

 :2thumbsup;
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« Reply #24 on: April 17, 2012, 08:31:40 PM »

No idea what to suggest other than leaving some life insurance papers by his side and some plans on what to do with all the money. However it doesn't seem scare tatics will work with him.
 
Train cat to sit and watch him like she is ready to eat him? Guess that's another scare tatic too. :oops;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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