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Author Topic: Add me to the list!  (Read 4061 times)
jeannea
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« on: March 29, 2012, 07:24:57 PM »
I got my call on Tues morning. Transplant started at 2 pm Tues. I'm still in the hospital. This is my second transplant so it feels a little rough. They're giving me thymo-glomulin (sp?) and it's tough. But maybe on Sun I can go home. I wasn't expecting a call for about 1 1/2 yrs yet. Still in shock. But happy.

My incision is hurting of course. And I hate the damn foley. But the docs say my creatinine went from 10 to 5 to 1.9 which is great.

My internet access is sporadic here at the hospital but I'll check back in when I can.
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SugarBear
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« Reply #1 on: March 29, 2012, 07:43:57 PM »
Congrats jeannea    :yahoo;
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Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
MooseMom
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« Reply #2 on: March 29, 2012, 07:46:50 PM »
That's spectacular news!!  Can't wait for more updates!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #3 on: March 30, 2012, 01:11:59 AM »
Well congrats on the transplant.
The thermoglobulin (sp?) I had also and had to have home infusion of it also after my tx. Hope you do not have to do that.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Poppylicious
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« Reply #4 on: March 30, 2012, 06:56:16 AM »
CONGRATULATIONS!!!

 :yahoo;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: March 30, 2012, 06:58:54 AM »
Woo hoo!

 :clap; :yahoo; :cheer: :bandance;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Joe
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« Reply #6 on: March 30, 2012, 08:55:08 AM »
Congratulations Jeanna!
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Live simply. Love generously. Care deeply. Speak kindly.
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okarol
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« Reply #7 on: March 30, 2012, 08:58:58 AM »
 :bandance; Yay!! Great news!! I will put you on the list!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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What's past is prologue
« Reply #8 on: March 30, 2012, 09:18:35 AM »
Fabulous, Jeannea! Wow, just last Tuesday! You're doing better than I did with my second transplant. I couldn't even face typing on a computer or talking on a phone until a couple weeks had gone by. You'll get there!

Looking forward to following your second transplant adventure, though I hope it's a boring read if you get my meaning. :)

:bestwishes; :yahoo;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
adairpete
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Me and Karl
« Reply #9 on: March 30, 2012, 10:38:14 AM »
Congrats!   :cheer:  I wish you a speedy and uneventful recovery! 

 :flower;
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
boswife
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us and fam easter 2013
« Reply #10 on: March 30, 2012, 10:58:13 AM »
 :bandance;  :bandance;  :bandance;    :2thumbsup;  :yahoo;  What a surprise!!  happy for ya, and  :pray; for fast healing ...  upward from here  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
jeannea
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« Reply #11 on: April 03, 2012, 01:14:28 PM »
I finally got to come home yesterday which was a week in the hospital. They didn't totally close my wound so my mom has to bandage it. We're still working on Prograf levels. But home is so nice. I had a shower. My mom cooks for me. I'm still in a little bit of shock that I actually got a kidney. But it's all good.
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MooseMom
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« Reply #12 on: April 03, 2012, 01:23:59 PM »
That's so wonderful to hear, jeannea!  I'm really thrilled for you!  Do you feel a real difference now that you have a new kidney?  Is there a noticeable improvement??  I can't wait to hear more!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #13 on: April 03, 2012, 08:58:45 PM »
Good onya!
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Galvo
jeannea
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« Reply #14 on: April 05, 2012, 12:51:51 PM »
So I got a call. My Prograf level is about 3 times too high - through the roof. I'm not to take any til they tell me and I have to get a bunch of blood tests.

In good news my incision is starting to heal. The doc left it open. PD patients sometimes have too much fluid in the cells and that has to be allowed to leak out as it heals. Gross. My mom is really good about helping with the bandages. I haven't looked at it. Can't.
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MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #15 on: April 10, 2012, 10:26:43 AM »
Congratulations on your new kidney, and I hope you do well with it, and heal up quickly from surgery.  Have a baked potato and full glass of orange juice for me....but not together, yuck!
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
jeannea
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« Reply #16 on: April 10, 2012, 10:36:40 AM »
I had a huge milkshake one day. Yesterday after clinic I had potato soup. I think I'm going to enjoy this.
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billybags
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« Reply #17 on: April 10, 2012, 10:59:26 AM »
Jeannea, congratulations, hope every thing is working out fine.
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lou
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« Reply #18 on: April 10, 2012, 11:02:42 AM »
congratulations  :bandance; lovely news to read! x x x
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cassandra
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When all else fails run in circles, shout loudly
« Reply #19 on: April 10, 2012, 02:14:49 PM »
fantastic, great news

lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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