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Author Topic: Greetings from OH  (Read 2523 times)
Carlyon
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Do it trembling if you must...but do it!
« on: March 21, 2012, 02:36:27 AM »
Hi Everyone,

My is TJ.  My husband has been battling with CKD for several years and now we are facing dialysis ( within 4-6 months).
After a brief bout of anger over his failure to properly care for himself during stages 1-4 of CKD, :Kit n Stik;  I'm not as traumatized as I thought I'd be. 

Plus the new reality has lit a fire under his butt and he's actually trying to get and stay healthy.  Nothing like trying to qualify for an organ to keep you motivated.

All in all I'm a roll with the punches type of person and I'm glad this place is here to help teach me when to duck.
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Wife and Caregiver to ESRD patient
Husband Diagnosed with CKD 2006
Av Fistula created 6/12 Transposition 8/12
Thanks to the posts on IHD skipped in center and began NxStage 11/12
Still has 70 lbs to lose before going on donor list.
conchman
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« Reply #1 on: March 21, 2012, 03:37:10 AM »
Welcome TJ (Carly??).   We all find IHD when and how we need to.  Hope he takes care of himself...


 :welcomesign;  :bandance;  :welcomesign;  :bandance;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
Rerun
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Going through life tied to a chair!
« Reply #2 on: March 21, 2012, 03:58:21 AM »
Hi TJ, you are funny!   :rofl;   I'm so glad you found us.  I'm sure this site will help you stay on your feet.

I welcome your husband too.  He may need to vent once in a while.  We are here to listen.

Rerun, Moderator   :welcomesign;
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looneytunes
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Wishin' I was Fishin'
« Reply #3 on: March 21, 2012, 08:44:40 AM »
Hey TJ and welcome to IHD...I'm also a care partner.  Hubby has been on D since 2007.   Love your attitude and I'm looking forward to seeing you on the boards.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
lmunchkin
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"There Is No Place Like Home!"
« Reply #4 on: March 21, 2012, 07:44:27 PM »
Hi TJ and welcome to IHD!  Caregiver here too, so we understand.  It is hard, to say the least.  Lots of love and support here and so glad you found us!

Again welcome and God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Poppylicious
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WWW
« Reply #5 on: March 22, 2012, 07:44:33 AM »
 :welcomesign; TJ!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Carlyon
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Do it trembling if you must...but do it!
« Reply #6 on: March 23, 2012, 12:15:36 AM »
Thanks for the warm welcome.    Thankfully with today's technology and some common sense a person can live a full life on dialysis.

My grandmother was on dialysis in the 80's and man was that brutal to see as a kid.  Comparatively speaking that little teeny tiny NxStage looks like it'll fit on the back of my bicycle.   So I think we'll be OK.  That is once I get over my initial OMG OMG OMG moment. :o

My husband being the dork he his, actually said that he'd rather do in-center just so I wouldn't have to worry.  But he was really asking if I'd be OK with him doing with HHD.  If I'd just said OK to in-center that would've been it, he was giving me an out because I've been so angry.

I admit I'm angry because he's had 10 years to get his weight and blood pressure under control.  I've done everything short of pulling a weapon to get him to take better care of himself but no dice.  Now that the BIG D is near, he's reformed but better late than never.

However I still find it funny that after 15 years of marriage he can still be so clueless. No matter how angry I get, he should know that I'd help him wash his kidneys in a cup if that what he needed me to do.

But I guess we all need a little reassurance from time to time.
Logged
Wife and Caregiver to ESRD patient
Husband Diagnosed with CKD 2006
Av Fistula created 6/12 Transposition 8/12
Thanks to the posts on IHD skipped in center and began NxStage 11/12
Still has 70 lbs to lose before going on donor list.
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