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| | |-+  I'm Going To Be Doing A Paired Exchange For My Transplant!!!
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Author Topic: I'm Going To Be Doing A Paired Exchange For My Transplant!!!  (Read 7602 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #25 on: May 05, 2012, 12:43:13 AM »

 :2thumbsup; That's great!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Cordelia
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« Reply #26 on: May 06, 2012, 11:42:49 AM »

Hi MM and Okarol, thanks  so very much!          :grouphug;

I'm just wishing the month of may away! LOL         :rofl;

Thanks so much for your best wishes, I'll be sure to keep you all posted here       :grouphug;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
paris
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« Reply #27 on: May 07, 2012, 05:18:21 PM »

This is exciting and such a blessing for your family.  Your husband is a good man for donating.  A real hero.   Keeping you in my thoughts and prayers.    :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Cordelia
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« Reply #28 on: May 08, 2012, 05:30:38 AM »

Thank you so much, Paris!      :thx;      Thank you so much for your really sweet compliments on my husband.        :cuddle;      Thanks for keeping us in your thoughts and prayers         :thx;
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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« Reply #29 on: June 07, 2012, 12:29:43 PM »

I talked to my transplant co-ordinator today and she told me that Canadian Blood Services which organizes the paired exchange program, will do a June 18 listing to find out who will all be in the paired exchange, etc. Anyways it will take 2 weeks from there, for my translant team to find out yay or nay.

That would roughly take to the beginning, mid July for my husband and I to find out where we stand. That's IF they find a match.

Sounds like some of these chains are sometimes up to about 14 people, that makes me a bit nervous......but I will wait and see what becomes of this.

Getting a little closer, babysteps, I say. Who knows?         ;D

My coordinator said it can sometimes take up to a few months for surgery to happen, that's hoping that nobody backs out or gets sick.        ;)

« Last Edit: June 07, 2012, 12:31:03 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
cassandra
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When all else fails run in circles, shout loudly

« Reply #30 on: June 07, 2012, 03:30:16 PM »

Oh it all sounds really exciting, and nerve wrecking Cordelia. I wish you all the luck in the world!

lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Cordelia
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Posts: 2012


« Reply #31 on: June 08, 2012, 06:27:58 AM »

Oh it all sounds really exciting, and nerve wrecking Cordelia. I wish you all the luck in the world!

lots of love Cas

Thanks, Cas!  I'm sooo excited and nervous LOL

Thank you so much for your best wishes!         :beer1;
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
lainiepop
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« Reply #32 on: June 08, 2012, 07:28:19 AM »

Good Luck Cordelia hope it all Works out!
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Cordelia
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Posts: 2012


« Reply #33 on: June 08, 2012, 11:25:06 AM »

Good Luck Cordelia hope it all Works out!

Thanks so much,  Lainiepop!          :thumbup;
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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