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Author Topic: Newbie from CA  (Read 2651 times)
JenOfCA
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« on: March 04, 2012, 03:30:32 PM »
Hi all! I've been browsing the forums for a while now and finally decided to join. Here is my story: When I was a child they found I had protein in my urine, I had a kidney biopsy at 18 and they labeled me with Glomerular (sp?)Nephritis. I guess that's just a fancy word for "we don't know why but you have bad kidneys". When I was 27 I went into kidney failure and started hemodialysis. I received a transplant 3 years later from a cadaver donor, finally I felt like I had my life back! Well after 15 years of freedom I'm back on the transplant list and back to hemodialysis which I've been doing since November 2010. I've come here to find out more about PD and am thinking of switching so that I can have a little more of my life back. Thanks for taking the time to read a little about me.
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Traveller1947
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« Reply #1 on: March 04, 2012, 04:59:30 PM »
Welcome, JenOfCA!  Like you, I've been struggling with kidney disease since childhood.  Don't know much about PD, but there are many knowledgeable people here who will be happy to answer any questions you have.  All the best to you.
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conchman
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« Reply #2 on: March 04, 2012, 05:03:28 PM »
Cool, I am no longer the youngest in the family...Well, IHD family that is! (okay so I am only older than Jen by like, 10 hours)

 :welcomesign;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
Jean
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« Reply #3 on: March 05, 2012, 12:01:44 AM »
Well,   :welcomesign;  to IHD Jenof CA, for certain there are lots of knowledgeable people here. Some one will be able to help you. I am also in Ca. Southern, that is!!
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One day at a time, thats all I can do.
lmunchkin
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"There Is No Place Like Home!"
« Reply #4 on: March 05, 2012, 08:35:53 AM »
Welcome JOCa!!  This site is excellent for a whole fellowship of info, from personal experiences & other family who have gone through this with another family member.

As for PD, it is an awesome modality.  My husband did it for 5 years, and he did very well with it.  I remember the sanitizing part of it and having to have alot of protein to work with it. The best thing about PD in my memory, is if you do manual exchanges, you did not have to have a machine to lug around.  But the cycler at night also allowed your days to be freed up!

TBarrett has a day by day experience on another thread that you might look at.  It may help you in your choice. It is listed in "Home Dialysis" section and was done on June 30, 2011.  I don't know how to pull the thread up, but you should go back and check it out!

Good luck & God Bless,
lmunchkin
 :kickstart;
« Last Edit: March 05, 2012, 08:43:17 AM by lmunchkin » Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: March 05, 2012, 08:45:46 AM »
 :welcomesign;

Jen!

I'm glad you came out of the closet!  :rofl;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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« Reply #6 on: March 05, 2012, 01:07:11 PM »
Hi Jen, we have lots of members in CA.  I lived in Sacramento for a few years but am back in WA State.  I'm so glad you found us.  Lots to read and learn on here.  I think the PD section is under Home Dialysis. 

Rerun, Moderator    :welcomesign;
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conchman
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« Reply #7 on: March 05, 2012, 04:42:32 PM »
 :welcomesign;

From one newbie to another newbie welcome, we can grow up together...
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
looneytunes
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Wishin' I was Fishin'
« Reply #8 on: March 06, 2012, 07:45:08 AM »
Hi Jen and glad you joined!   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
JenOfCA
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« Reply #9 on: March 06, 2012, 08:37:22 AM »
Thanks for all the warm welcomes! Since I've been doing a lot of lurking around before I decided to join I've read lots of the PD posts which has really helped me get closer to making a decision. So glad I found this website!
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billybags
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« Reply #10 on: March 06, 2012, 11:11:19 AM »
JenOfCA   :welcomesign; to our family.  15 years with a transplant, that is awesome.Any chance you will get another? PD is the way to go if you have a choice, a more gentle way of dialysis. Look forward to your posts.
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JenOfCA
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« Reply #11 on: March 06, 2012, 11:54:05 AM »
Quote from: billybags on March 06, 2012, 11:11:19 AM
JenOfCA   :welcomesign; to our family.  15 years with a transplant, that is awesome.Any chance you will get another? PD is the way to go if you have a choice, a more gentle way of dialysis. Look forward to your posts.

Billybags, Thanks for the welcome! Yes I am currently on the transplant list they listed me 3 years ago. I only waited 3 years for my last transplant but now I've been told that this time it will be a 6-8 year wait. I've been back on hemo for over a year now and the thought of doing it for almost 3-5 more years makes me want to scream!!  >:(
I am married and have a 14 year old son, I hate being tired all the time and stuck on a machine 3 mornings a week so switching to PD has become appealing to me, just nervous about the unknown I guess.
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Poppylicious
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« Reply #12 on: March 06, 2012, 01:36:52 PM »
 :welcomesign; Jen!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
lmunchkin
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"There Is No Place Like Home!"
« Reply #13 on: March 06, 2012, 03:38:32 PM »
JOCa, I think any kind of D out of In-center sounds appealing to just about anyone! In-center was just not for us at all. After reading your reply above, maybe doing PD on cycler at night would be better for you.  It will leave your days freed up to do the things you need to do.  Then if you and your family want to go somewhere during the day, you can!  But if you want to get away for a vacation, then I would use the manual exchanges.  The machine, to me, would be so much to lug around, but it can be done!

It will be overwhelming at first, but you should do fine with it.  With what you have been through, I think you'll do fine with any kind of D at home.

God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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