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Author Topic: nxstage users in north-west enland  (Read 8042 times)
cassandra
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When all else fails run in circles, shout loudly
« Reply #25 on: September 20, 2012, 04:04:43 PM »
Ooooo I have dates!
Maybe the 22' Oct or 5' Nov!! Thats actually this year  >:D 
Still no blunts arrived ofcourse
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MightyMike
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Why do bad things always happen to good people?
« Reply #26 on: September 20, 2012, 04:56:30 PM »
The blunt needles come with scab pickers in the package.  A suggestion too is to put some neosporin on the scab site on your off days it will make them easier to pick.  Good luck.
Logged
"The greatest pleasure in life is doing what people say you cannot do."
   -Walter Bagehot
==========================
December 2003 diagnosed with IgA Nephropathy 80% Function.
October 2004 started In-Center Hemo Dialysis Perma-Cath 5% Function.
September 2005 Living Related Donor (Mother) Transplant.
March 2009 Diagnosed CKD and IgA Nephropathy.
August 2009 Upper Left Arm Fistula.
November 2009 started In-Center Hemo Dialysis.
December 2010 started Home Hemo Dialysis.
January 2012 went back to In-Center Hemo Dialysis.
cassandra
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When all else fails run in circles, shout loudly
« Reply #27 on: September 21, 2012, 07:41:15 AM »
Thanx Mightymike, I'll get that too. At the moment I use antibac elastoplast with silver in it. But I'll get neosporin too.

love Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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When all else fails run in circles, shout loudly
« Reply #28 on: September 22, 2012, 02:23:16 PM »
Tatataraaa ha, a little triumph to be celebrated. The right needles were delivered yesterday, just before my session.
Yes sometimes it works to be a pain in the but, and get very angry, and call the medical secretaries to ask what the name is of the Medical Director  :boxing;  So I used the blunts, one was a doodle, the top one not.
But Monday we'll try again. But really...... BH are an improvement so I'm just hoping to never get an infection.
That reminds me to find the pages about BH cleaning so I can show the staff, cos to me (after everything I've read, and seen on the net) is that they are asking for trouble.
Can't wait to get my Nxstage, and get out of there.
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #29 on: October 06, 2012, 03:08:11 PM »

Yes happy days are coming (touch wood  :bow;  ) Yesterday after taping my needles a shadow fell over me. It was the HH nurse who informed me I would start Nxstage training the 23'!!!  :bandance;   I had to sign a few papers to give consent for delivery materials etc, and med.info. He went to check the house situation (hubby was home) and that's okay apparently  :P   . Oh and they start me on 5 days for 3 hours, and may adjust later.
Ha, am I happy or what. No more techs I have to check on their gloves. No more machine checks. Time for a rum and coke

    :cheer:
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #30 on: October 16, 2012, 09:00:53 AM »
Well, the electric extra special thingy has been installed this morning (the eleccy man did take hubbies hammer, so he's not pleased about that, but its only a hammer), the plumber comes tomorrow.
More rum and coke.
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #31 on: October 23, 2012, 01:30:23 PM »
Tatatataaaa today was training in Aintree day 1. Cos I had my last day in centre yesterdayevening I only did 2 hrs 15 as hubby had to work, which was great cos I was getting kinda bored without my normal entertainment. But the machine looked 'interesting', the instructor was friendly. But 'they' expect us to know it all within 2 weeks for some reason, so I'll watch the instruction DVD straight away, cos 2 weeks driving to Liverpool every day is motivation enough to make sure, I actually do know it all by than. Lovely though, and before Christmas

     :cheer:
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #32 on: October 25, 2012, 03:23:27 PM »
Today, day 3 went pretty well. I remembered the first couple of steps, and I start seeing the overall view of the workings of the machine now. Hubby took samples blood, and only managed to forget the arterial clamp once. The staff are pretty nice. Forgetfull but nice. I think we will manage it by next week.
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #33 on: November 01, 2012, 04:44:37 PM »
So today I had day 8 of training, and I set up the machine: by myself, I connected myself, hooked up. Did have some alarms 50,51,52 and as they left me alone in the room I couldn't reach the instruction 'bible' thing, and the reaction of the ward nurses was: no I can't help you with that machine, so I asked them to find the instructor, so the

left me. So glad that, in theory  :bow;  , I don't have to be there for quite a bit.

Anyways, machine is set up. Boxes are a pain. Not too many, like with APD, but you have to keep the big boxes

in case the machine needs returning  :waiting;  .
Tomorrow day off. Saturday first day. OMG I'm tired
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #34 on: November 03, 2012, 03:57:58 PM »
Well session 1 went okay. Hubby more nervous than I was, but it's done, and I will have my day off tomorrow.
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MaryJoe
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« Reply #35 on: November 07, 2012, 04:26:19 PM »
 :clap;  Way to go cassandra!  Enjoy your day off!  Time for another rum and coke!   :cheer:
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #36 on: November 08, 2012, 02:00:41 PM »
Thanks Mary Joe, Everything seems to be under controle now. The HH nurse came round and apologised for leaving

hubby an me by ourselves from they one. misscommunication   :sir ken; 

No probs. Panic is a good teacher too, in those situation. Hubby less stressed now. I think I'll have an other coke and rum.
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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