I Hate Dialysis Message Board
Welcome,
Guest
. Please
login
or
register
.
October 03, 2024, 04:21:34 PM
1 Hour
1 Day
1 Week
1 Month
Forever
Login with username, password and session length
Search:
Advanced search
532606
Posts in
33561
Topics by
12678
Members
Latest Member:
astrobridge
I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Transplant Discussion
The Wait How Long
0 Members and 3 Guests are viewing this topic.
« previous
next »
Pages:
1
[
2
]
Author
Topic: The Wait How Long (Read 8830 times)
Alisa
Jr. Member
Offline
Gender:
Posts: 50
Re: The Wait How Long
«
Reply #25 on:
March 04, 2007, 09:26:40 AM »
Sorry I am very confused. My transplant cooridnator told me that she cannot tell me where or what number I am on the list. All I know is that I was approved for transplant and have been having my monthly antigen bloodwork for the last 8-10 months now? How do I find out more info. Is this just a Canadian thing?
Alisa
Logged
PD since 2005
Waiting for transplant
jbeany
Member for Life
Offline
Gender:
Posts: 7536
Cattitude
Re: The Wait How Long
«
Reply #26 on:
March 04, 2007, 10:16:22 AM »
Alisa, we don't know our exact number on the list. When we are talking about wait times, we are talking about statistical averages. Some places have a much shorter average wait time than others. I'm trying to get on the list in Michigan. The average wait time is 5 years. That only tells me that most of the people in Michigan have to wait that long before they get a transplant. The last person from my center to get on the list only waited a month because he was a perfect match for someone. Another woman at my center has been waiting for over 6 years.
As the saying goes, there are lies, damned lies, and statistics.
Logged
"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
angela515
Elite Member
Offline
Gender:
Posts: 3385
i am awesome.
Re: The Wait How Long
«
Reply #27 on:
March 04, 2007, 01:59:47 PM »
Nobody ever has an exact "number" on the list as thelist is constantly changing everytime an organ becomes available. When I got the call for a kidney, I know I was directly at the top of the list at #1 because it was a perfect match, means I would go directly to the top, however minutes before that info was entered I could of been 10,000 or whatever.
Logged
Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
renal30yrs
Full Member
Offline
Gender:
Posts: 167
Re: The Wait How Long
«
Reply #28 on:
March 05, 2007, 12:34:59 AM »
Don't count too much on whatever these coordinators have to tell you. I was told I was number 3 in my blood group almost 3 years ago and yet still dialyzing.
Logged
angela515
Elite Member
Offline
Gender:
Posts: 3385
i am awesome.
Re: The Wait How Long
«
Reply #29 on:
March 05, 2007, 06:50:44 AM »
They should of never gave you a specific number renal, nobody is a specific number as I said the list changes everytime an organ's info is put into the system.
Logged
Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
RichardMEL
Member for Life
Offline
Gender:
Posts: 6154
Re: The Wait How Long
«
Reply #30 on:
March 05, 2007, 08:10:35 AM »
hmm I've done a search and still am not clear about what these FRA levels refer to?
I doubt it is something to do with Frankfuirt... I wish they were though.. mmm.. hot dogs
Anyhoo... A+ here, on the lise approx. 2 years (I am not 100% certain when i was put on the list).
I've heard various reports as to how long the average wait is down here.. anything from 3 to 7 years... but you know it's just that.. an average.. you could get a call tomorrow or not for the next 10 years (but I bloody well hope not!)
Wishing everyone gets the call sooner rather than later!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
angela515
Elite Member
Offline
Gender:
Posts: 3385
i am awesome.
Re: The Wait How Long
«
Reply #31 on:
March 05, 2007, 11:14:10 AM »
It's PRA levels not FRA levels, Richard. And they have to do with matching you to someone else. High PRA levels makes you a very hard match, and low PRA levels makes you an easier match. I forgot what PRA stands for but the A Is Antigen.
Logged
Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
okarol
Administrator
Member for Life
Offline
Gender:
Posts: 100933
Photo is Jenna - after Disneyland - 1988
Re: The Wait How Long
«
Reply #32 on:
March 05, 2007, 12:08:33 PM »
What is a PRA?
PRA stands for Panel Reactive Antibody. It is a blood test that is routinely performed on patients waiting for kidney transplants. It is a way of measuring the anti-human antibodies in the blood. A person's PRA can be anywhere from 0% to 99%. Your PRA represents the percent of the U.S. population that the anti-human antibody in your blood reacts with. For example, if you had a PRA of 25%, then the antibodies in your blood would bind to the tissue types of 25% of the people in the population.
How does the PRA effect kidney transplantation?
If a patient has a high PRA, then his blood contains antibodies that react with a large portion of the population. Therefore, a large portion of the population cannot be a kidney donor for him. As a consequence, patients with a high PRA usually wait much longer for a kidney transplant than patients with a low one. The following table shows data from the most recent UNOS annual report (which keeps track of national transplant waiting times, among other things):
Peak PRA Portion of Kidney Transplant Waiting List Median Waiting Time before Transplant
0 - 19 60% 490 days
20 - 79 21% 1042 days
80+ 19% 2322 days
As you can see, for patients placed on the kidney transplant waiting list in 1992, those with a peak PRA over 20, which represented 40% of that years' kidney waiting list, median waiting times were 2 to 5 times longer than for patients with a low PRA. A substantial portion of the patients with the highest PRAs will never get transplanted without some treatment to reduce their antibody levels. The problem is especially frustrating for patients with a live kidney donor, since their waiting time could be very short were it not for the positive crossmatch.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
Member for Life
Offline
Gender:
Posts: 43869
Re: The Wait How Long
«
Reply #33 on:
March 05, 2007, 12:22:53 PM »
Thanks once again Karol, you really do your homework.
Logged
Pages:
1
[
2
]
« previous
next »
Loading...