I have PKD. My urologist told me that it wouldn't the new transplanted kidney.I have a lot of pain though from my cysts. I will be pushing to have my old kidneys removed after my transplant. They will not remove them at the same time of having a transplant.
I'm sure there's an easy answer to this, but I don't know what it is...why won't they remove your cystic kidney and just pop in the new one where the old one was? Easy peasy lemon squeezy! See, that's not so hard!
I can totally relate to you on the pain. I'm not on any pain pills at this point. I am so intolerant to pain meds, then my butt suffers so I choose not to take any pain relievers.Have you had a transplant yet? I was told they wouldn't even try to surgically get rid of the cysts only. I'm stuck with them AND the diseased kidneys until after transplant. Whenever that will be I had a huge cyst burst just before Christmas and I had blood in my urine for a whole week. To some degree, it has helped alleaviate some pain. I'm surpised actually the bursting of the cyst didn't happen sooner since I have had pkd for 20 years.I have pain meds, but like you, i am so tolerant to them, that it is like eating candy! They do no good what so ever, and the DR will not up the Milligrams, for fear of getting addicted to them. I've tried DALIDUD but, it makes me so foggy, that I can't concentrate the next day, for work. I have NOT had a transplant, but he keeps at me to take out the two kidneys!!!! I get blood in my urine, too, when they pop. Not all the time, but more than normal, I think. One of my nephs told me my kidneys are the size of two hand palms placed together.
Quote from: Cordelia on February 21, 2012, 12:11:20 PMI can totally relate to you on the pain. I'm not on any pain pills at this point. I am so intolerant to pain meds, then my butt suffers so I choose not to take any pain relievers.Have you had a transplant yet? I was told they wouldn't even try to surgically get rid of the cysts only. I'm stuck with them AND the diseased kidneys until after transplant. Whenever that will be I had a huge cyst burst just before Christmas and I had blood in my urine for a whole week. To some degree, it has helped alleaviate some pain. I'm surpised actually the bursting of the cyst didn't happen sooner since I have had pkd for 20 years.I have pain meds, but like you, i am so tolerant to them, that it is like eating candy! They do no good what so ever, and the DR will not up the Milligrams, for fear of getting addicted to them. I've tried DALIDUD but, it makes me so foggy, that I can't concentrate the next day, for work. I have NOT had a transplant, but he keeps at me to take out the two kidneys!!!! I get blood in my urine, too, when they pop. Not all the time, but more than normal, I think. One of my nephs told me my kidneys are the size of two hand palms placed together.
MM, I was very upset when my urologist told me this. I said EXACTLY the same as you, it's as easy as 1-2-3! Why not?! It makes sense to do it that way but as Restorer said, yes, that's why. I was disappointed because I thought it could all be done in one surgery too. Why go through 2 general aneshetics? I figured.....I hate to know how much weight my cysts are inside of me, my tummy is always looking poofed out. I wonder once they are gone, how much weight I will lose instantly? Even though I have lost 65 pounds since I started dialysis, likely because of the renal diet.... I can't seem to get rid of that jutting out tummy.....I know its the cysts. My left enlarged kidney has actuallly caused my left side to look lobsided-jutting out of my body....if I look at my body in the mirror while standing naked........When I suggested the idea of getting rid of my old kidneys, my urologist was't impressed. I told him I'm in a lot of pain, which is true....I get stabs of pain in my flanks and back. I may have to do some pushing, he seemed uninterested doing the added surgery but I think have a good case to have them removed. He told me I had 'room' to plunk the new one in. This disease has held me back doing things I want to do.....I want to do gardening and I want to jog and I can't with this pain. I will not let his disease take over me and I will fight to the fllippin' end if I have to to have these diseased kidneys removed. I wanted them gone now but they won't take them out before transplant because I have always urinated and that urine is like gold when you're on dialysis so they refuse to take them out now. I've lived with the pain long enough .......I can't wait to get rid of them, they've been nothing but a thorn in my side for esp the last 20 years of my life!!!