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Always a beginning
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Topic: Always a beginning (Read 2825 times)
mamagemini
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It's all me.
Always a beginning
«
on:
February 18, 2012, 07:26:04 PM »
Some might already know me from the NephSpace also as Mamagemini.
I was first diagnosed in August 2005 with Nephrotic syndrome, then a biopsy led to FSGS. It has been a freaking wild ride since then. With many dark valleys and oe or two highs.
Last month I was told my GFR was 20 now and going fast. 2 weeks later it was 16. I was scheduled to see the vascular surgeon last week and they are putting in the referral for the vein mapping and so on. Going to Hemodialysis to begin with and see how it goes. A little scared because I heard the first 2 months are the hardest but if I can get over that then all will be okay. I keep telling myself this is my lifeline.
Any info I can get from here will be an asset.
Logged
FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
Joe
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Re: Always a beginning
«
Reply #1 on:
February 18, 2012, 08:48:14 PM »
and good luck mamagemini. Let us know how you are progressing.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
MooseMom
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Re: Always a beginning
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Reply #2 on:
February 18, 2012, 11:34:06 PM »
HI! Yes, I have seen you on NephSpace and have been following your story. There is no better place on the web than this site to get information AND support. If we do not know the answer, someone will know where to get it. I am really glad you have joined. Let us know how we can help you!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Poppylicious
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Re: Always a beginning
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Reply #3 on:
February 19, 2012, 03:49:27 AM »
mamagemini!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
Traveller1947
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Re: Always a beginning
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Reply #4 on:
February 19, 2012, 03:58:52 AM »
Hi, mamagemini, and welcome! You've come to the right place for comfort and support and lots of helpful information. All the best to you.
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Rerun
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Going through life tied to a chair!
Re: Always a beginning
«
Reply #5 on:
February 19, 2012, 04:29:18 AM »
Hi mamagemini, and welcome to IHD. I'm so glad you joined us. Starting dialysis is very scary and that is normal to be scared. We have lots of posts about what to expect and what to take to your first session.
Rerun, Moderator
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monrein
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Might as well smile
Re: Always a beginning
«
Reply #6 on:
February 19, 2012, 05:42:15 AM »
to IHD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
lmunchkin
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"There Is No Place Like Home!"
Re: Always a beginning
«
Reply #7 on:
February 19, 2012, 04:32:46 PM »
Welcome & glad you joined us! You will find this site very helpful in all things KIDNEY'.
Again welcome & God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
willowtreewren
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My two beautifull granddaughters
Re: Always a beginning
«
Reply #8 on:
February 19, 2012, 04:39:14 PM »
to IHD!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
mamagemini
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It's all me.
Re: Always a beginning
«
Reply #9 on:
February 20, 2012, 06:39:55 PM »
Thank you to all of you. It looks like a roller coaster of a ride.
Weird today, I ate lunch with my son, went to the movies and ran to the bathroom.
not vomit but well you get the picture. Anyways that came out of nowhere. I am guessing it is just the beginning.
I will go post a question now...again thank you to you all.
Logged
FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
looneytunes
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Wishin' I was Fishin'
Re: Always a beginning
«
Reply #10 on:
February 25, 2012, 07:43:02 AM »
Hi Mamagemini and glad to have you here.
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"The key to being patient is having something to do in the meantime" AU
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