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Author Topic: Going to NYC tonight!  (Read 4171 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: February 14, 2012, 06:43:08 PM »
I have been working for 8 weeks straight on a volunteer project - we raise money for children's music programs and community grants. We still have 8 weeks more until we open but I am leaving town for 5 days to visit a friend in NY. She is there for a month from Paris so it's a great chance to get away. I miss everyone on the forum and have been hopping on when I can, but I really appreciate Sluff being here and running everything.
Looking forward to a much needed break - even sleeping would be nice!
If you're interested in the project I am working on it's here http://www.pasadenashowcase.org - I am co-chair of the interior design.
 :bow; Thanks again to Sluff and the mods for all they do!
 :waving; Take care!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
glitter
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« Reply #1 on: February 14, 2012, 08:09:24 PM »
Have a great time girl!  :clap;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
galvo
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« Reply #2 on: February 14, 2012, 11:54:05 PM »
Enjoy!
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Galvo
Chris
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« Reply #3 on: February 15, 2012, 12:50:53 AM »
You deserve a break today! An old commercial said. I've said it before that you needed a break and now that you are, enjoy it and then comeback and pace yourself! Don't try to do as much if there is no rest with the time, energy, and money you put into a project. You gotta make time for you, so run along you little rugrat and relax, have some fun!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Riki
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« Reply #4 on: February 18, 2012, 09:23:45 PM »
I saw some of your pictures.. very cool. I miss NYC. I hope to get back there sometime this spring
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
billybags
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« Reply #5 on: February 19, 2012, 03:38:48 AM »
Have a good break and relax.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #6 on: February 24, 2012, 08:24:12 AM »
It was a great time - the weather was mild - I ate everything.  :waving;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #7 on: February 24, 2012, 12:14:45 PM »
I need to know...what did you eat? :P
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #8 on: February 25, 2012, 03:07:25 PM »
I want the dessert she had ;D
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #9 on: February 25, 2012, 09:20:10 PM »
Quote from: MooseMom on February 24, 2012, 12:14:45 PM
I need to know...what did you eat? :P
I wish you were on facebook - you could have followed along!
We ate a range of places, from Curry In A Hurry to L'Atelier de Joel Robuchon.

My friend loved this at L'Atelier: amachi - Japanese yellowtail with avocado, jalapeņos (soy sauce, orange reduction, mint, honey in the sauce) - I loved the Sugar bubble with ice cream, currant and blueberry, with lavender and gold drops.

At the Viand Coffee Shop of 61st Street we had delicious eggs, crusty bread and lovely, rich coffee.

We listened to jazz at the bar at the Carlise Hotel. Bemelmans Bar, a timeless New York watering hole that has drawn socialites, politicians, movie stars and moguls for more than five decades, is decorated with an amazing whimsical mural by Ludwig Bemelmans, best remembered as the creator of the classic Madeline books for children. My friend says the martinis are the best, I loved the nuts, crispy snacks and coke with lime!

We had an amazing dinner at the Crown Restaurant - gorgeous dining room, so NY, but noisy when packed with diners.

The photo below is from Il Buco - the squid was beautiful and I loved looking at it, but didn't try it. About Il Buco, it's a "transformed rustic antique store transformed into a charming enoteca with an eclectic menu - part Italian, part Spanish, part invention, dedicated to local ingredients with a wine list made up of small boutique producers."
« Last Edit: February 25, 2012, 09:27:16 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #10 on: February 26, 2012, 06:03:24 PM »
Here's the Sugar Bubble - it was a sugar shell with ice cream and blueberries inside. Amazing!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #11 on: February 26, 2012, 06:36:33 PM »
I want!
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Galvo
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #12 on: February 26, 2012, 10:17:42 PM »
Here's the hamachi  (by the way, I took this with my iPhone - the clarity is amazing!)
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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Gender: Male
Posts: 9219


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« Reply #13 on: February 26, 2012, 10:27:36 PM »
Quote from: galvo on February 26, 2012, 06:36:33 PM
I want!

Sorry galvo, I intercepted it in mid travel  ;D
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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Posts: 9219


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« Reply #14 on: June 16, 2012, 11:19:02 PM »
Quote from: okarol on February 26, 2012, 06:03:24 PM
Here's the Sugar Bubble - it was a sugar shell with ice cream and blueberries inside. Amazing!

Where was this at? I want to try to go there next month if training is close downtown. Hope they have a good tiramisu too ;D
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Traveller1947
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Posts: 469
« Reply #15 on: June 17, 2012, 05:10:35 AM »
L'Atelier de Joel Robuchon is closing June 30th.
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