I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 26, 2024, 12:40:26 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Off-Topic
| |-+  Other Severe Medical Conditions
| | |-+  Sarcoidosis anyone?		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Sarcoidosis anyone?  (Read 10824 times)
cattlekid
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1269
« on: February 10, 2012, 12:50:38 PM »
So Wednesday afternoon I am minding my own business in the car on the way to get lunch.  Started having chest pain, shortness of breath, dizziness, clammy feeling.  All the classic signs of heart attack in females.  I call 911 from the mall parking lot and am taken to the hospital by ambulance. 

After a few hours in the ER, one CT scan, one echocardiogram, a crap load of blood work - no heart problems, but inflamed lymph nodes in my lungs.  Pulmonary doc thinks it is sarcoidosis but is referring me to my normal pulmonary doc for followup just to make sure it isn't lymphoma.  Cancer runs deep and long in my family so this is not a word I wanted to hear. 

Had to stay in the hospital overnight and get dialysis yesterday.  Forgot just how crappy one can feel after a four hour run. At least I am home now.  Gave the NxStage machine a big kiss when I got home.   :2thumbsup;

Anyone here have sarcoidosis?  Is it being treated or just watch and wait?
Logged
cariad
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4208


What's past is prologue
« Reply #1 on: February 10, 2012, 01:00:55 PM »
Ack! Never had it and just popped over to say I hope whatever it is, it's treatable and won't trouble you much. How scary and what a horrible experience overall.
Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #2 on: February 10, 2012, 01:37:43 PM »
Oh gosh...what a scary experience!  No, I know nothing about sarcoidosis, but it sounds evil.   :cuddle;
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
thegrammalady
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3788
« Reply #3 on: February 10, 2012, 01:55:20 PM »
nener heard of it, so i looked it up.  "sarcoidosis is a disease in which inflammation occurs in the lymph nodes, lungs, liver, eyes, skin, or other tissues."
Logged
s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #4 on: February 10, 2012, 06:16:24 PM »
 :grouphug;

I had never heard of this. I wish you weren't facing it.  >:(

 :cuddle;

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cattlekid
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1269
« Reply #5 on: February 10, 2012, 06:45:24 PM »
Apparently, according to my sister, it is often a differential diagnosis on the TV show "House".   :rofl;
Logged
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #6 on: February 13, 2012, 11:25:31 AM »
Hope every thing is Ok. Take care.
Logged
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114
« Reply #7 on: February 13, 2012, 11:51:24 AM »
That is one nasty sounding disease. Hope you feel better fast.
Logged
One day at a time, thats all I can do.
stringbandbeth
Jr. Member
**
Offline Offline

Gender: Female
Posts: 58
« Reply #8 on: September 26, 2012, 05:34:52 AM »
I know this is an old thread but My Hubby has Sarcoidosis. Extra pulmonary sarcoidosis to be exact. He has no legions in his lungs but has them in his skin, heart and central nervous system. Did you get a diagnosis yet?  Bear is not being treated with meds for this because of  Hep. C . The prednisone can make it flare up. They changed his Pacemaker to one with a defibulator as a precaution. He had one flare up that caused double vision for 6 weeks but that resolved itself.   The treatment is a course of big doses of prednisone, similar to the transplant meds and can save your life in an emergency situation. He had another autoimmune disease Wegeners Granulomatosis 17 yrs ago that took out his kidneys . The treatment is the same as what they do for Sarcoid. Rough to get through but saved his life and can put the disease into remission for a long time.
      Wishing you the best of luck. Let us know how it turned out.
                  Beth
Logged
caregiver for husband on home dialysis 14 yrs
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114
« Reply #9 on: October 02, 2012, 12:40:57 AM »
Wow, that sounds ugly!!! Hope you are feeling better by now.
Logged
One day at a time, thats all I can do.
MomoMcSleepy
Full Member
***
Offline Offline

Gender: Female
Posts: 283


My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #10 on: October 16, 2012, 12:03:46 PM »
so what has happened?  Do Lucknow what it is yet?  How are you feeling?

I hope things work out, and you are well soon!
Logged
35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!