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Author Topic: I'm in the hospital again.  (Read 11898 times)
Adam_W
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Me with Baron von Fresenius
« on: February 09, 2012, 07:32:20 PM »
Sunday as I was getting ready to watch the Super Bowl, I started having some intermittent diarrhea that I didn't really think too much of. As the day progressed, the diarrhea got more frequent and violent. It was very liquidy and the stools were tarry black. I described that to a friend who has a lot of medical experience, and he though it was stomach bleeding and I should go to the hospital right away. Sure enough, I was bleeding internally and no one knew where it was coming from. The stool from the diarrhea was actually almost pure blood! I was taken to a larger hospital and they did an emergency endoscopy and found two large bleeding ulcers in my stomach, which they surgically repaired. I had lost so much blood by then, that my brain was starting to suffer. I was becoming very confused, I would yell out randomly, and I was even combative with the nurses. I've received six units of blood, and I'm due for at least one more tonight. I also seem to have an unknown infection. I have no clue when I'll go home but I just want this madness to be over!  :banghead;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
MooseMom
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« Reply #1 on: February 09, 2012, 07:36:55 PM »
Oh my god, what a horrible story!  I'm so sorry to hear this.  Having an "unknown infection" is particularly worrying.  Is there anything we can do for you?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
ToddB0130
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« Reply #2 on: February 09, 2012, 07:38:24 PM »
Oh Adam, YIKES !!  I'm really sorry to hear about this latest setback for you.  I know you've been dealing with so much emotionally already and this must just add even more to your burden.  Thank goodness for your knowledgeable friend and I'm so glad you addressed it quickly yourself and got help from professionals who were able to get the situation under better control.  I hope you're soon better and out of the hospital.  Please keep us all posted.  Thinking of you and wishing you a speedy recovery.
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No day but today
galvo
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« Reply #3 on: February 09, 2012, 10:18:14 PM »
Sorry to hear this, mate. I hope you improve rapidly.
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Galvo
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« Reply #4 on: February 10, 2012, 12:15:44 AM »
Wow Adam, I am glad you listened to your friend. If not, well, lets not think about that. Hope you are feeling better very soon.
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One day at a time, thats all I can do.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: February 10, 2012, 12:20:31 AM »
 :cuddle; :cuddle; :cuddle; That's frightening! I am glad you got good help right away - take care Adam.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
billybags
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« Reply #6 on: February 10, 2012, 07:13:45 AM »
Adam, have you run over a black cat. You have certainly been in the wars a lot lately. It was good you took notice of your friend and went to get some help. I hope you are improving, are you giving the nurses any grieve. Have they found out what infection you have?  Keep your  "pecker up" can I say that, because you Americans have different meanings for things.Any way you take care.
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boswife
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us and fam easter 2013
« Reply #7 on: February 10, 2012, 11:13:14 AM »
doggone it Adam.. enough is enough!!  I sure am glad yu got it taken care of and hope ya get back on your feet again quickly AND that the infection is easly taken care of..!!!!!!!   :pray;

ANd BB......  well you *can* say that, but it's really funny  :rofl;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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"There Is No Place Like Home!"
« Reply #8 on: February 10, 2012, 03:54:45 PM »
 :pray; &  :grouphug; to you, Adam. Get well soon!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
willowtreewren
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« Reply #9 on: February 10, 2012, 05:48:19 PM »
Dang!  :thumbdown;

The next post better be that you are improving and getting released!

 :grouphug;

Enough is enough!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Adam_W
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Me with Baron von Fresenius
« Reply #10 on: February 12, 2012, 06:34:03 PM »
Well, my hemoglobin is stabilized, and I didn't need that last unit of blood. There is no more apparent bleeding. Unfortunately, I have pneumonia. I'm on IV antibiotics for it, which will be switched to oral when I go home. My doctor said that if everything remains stable, I can go home tomorrow. Because my mobility has suffered so much during this hospital stay, I will be having outpatient physical therapy to help me get my strength back. I'll keep you all updated. 
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
looneytunes
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Wishin' I was Fishin'
« Reply #11 on: February 12, 2012, 10:18:07 PM »
Aw Adam...this sucks.  But, here's hoping you have an easy and speedy recovery!   :beer1;
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"The key to being patient is having something to do in the meantime" AU
natnnnat
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« Reply #12 on: February 13, 2012, 03:54:51 AM »
Pneumonia sucks.  I guess, at least there's a name for it, not like that other stomach thing.  Were they related and how?
Hope you feel a bit better?
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
amanda100wilson
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« Reply #13 on: February 13, 2012, 05:11:23 AM »
So glad to hear that everything is getting sorted ou.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
billybags
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« Reply #14 on: February 13, 2012, 11:23:50 AM »
Adam are you home yet.
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Adam_W
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Me with Baron von Fresenius
« Reply #15 on: February 14, 2012, 05:42:32 PM »
I got home yesterday afternoon. I've been very tired and have a lot of pain, but I'm doing alright. I didn't sleep well last night though.
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
natnnnat
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WWW
« Reply #16 on: February 14, 2012, 05:52:29 PM »
Stomach pain?
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
fearless
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« Reply #17 on: February 14, 2012, 06:03:43 PM »
wow, that is REALLY SCARY!  Hope you are doing better now.  Good friend you've got there.
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Adam_W
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Me with Baron von Fresenius
« Reply #18 on: February 14, 2012, 06:47:28 PM »
Quote from: natnnnat on February 14, 2012, 05:52:29 PM
Stomach pain?
Yes, primarily stomach pain. It's gradually been getting better, though.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
billybags
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« Reply #19 on: February 16, 2012, 10:42:59 AM »
Adam you take it easy now. Glad you are home.
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