I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 30, 2024, 02:47:58 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  new to this community hi 		0 Members and 4 Guests are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: new to this community hi  (Read 3356 times)
dparham75
Newbie
*
Offline Offline

Gender: Male
Posts: 12


Im trying to enjoy life to the fullest
« on: February 09, 2012, 10:31:02 AM »
My name is Derrick and I haven't started dialysis yet but I am in stage 4 of renal failure and my health has been a steady decline for this past year. I hope to learn all I can before I start and I think its good to talk with people who are going thru the same things that I am. I have high blood pressure and I'm a diabetic that has been very difficult to control. I am a father of 4 beautiful kids and a husband to my loving wife. We have a strong family support group but non of us has gone thru dialysis until now. So I hope to make new friends and I'm willing to learn all that can be told to me on this format. Thanks in advance
Logged
D.L.Parham
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840
« Reply #1 on: February 09, 2012, 11:42:46 AM »
Welcome Derrick.  You will learn so much on this site.  I found it back in 2007 just days before I got my fistula.  I spent hours on the site reading and reading and reading.  I look forward to hearing more from you.  Hang in there.    :waving;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"
« Reply #2 on: February 09, 2012, 12:16:20 PM »
Welcome Derrick!  I am spouse of one doing D.  You will learn alot from this site.  Have wife come on too, tremendous support for the loved ones!

Can you get transplanted?  Check into all modalitys, In-Center, or at home: PD & Hemo at home!  This stuff is not easy but is not too bad when you get use to it!

Again Welcome & God Bless,
lmunchkin
 :kickstart;
Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
dparham75
Newbie
*
Offline Offline

Gender: Male
Posts: 12


Im trying to enjoy life to the fullest
« Reply #3 on: February 09, 2012, 12:27:59 PM »
Thanks for the response. I have decided to do PD only because I take insulin injections 4 times a day and I've been doing this over 20 years and I hate needles, lol. But the counselor explained that it would be best to have a fistula put in at the same time just in case that is needed in the future. At this time my insurance won't allow me to even get processed for a transplant until January 2013 but with my diabetes being so hard to control the Dr. Think it would be better to have a kidney pancrease transplant. The only problem with that is this procedure has not yet been performed in Arkansas, so when I can get on the transplant list I may have to go out of state to get this done. Thank-you once again
Logged
D.L.Parham
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #4 on: February 09, 2012, 02:59:15 PM »
This "pre-dialysis" period is a load of crap and I hate hate hate it.  It is so very stressful, so you have my sympathies!  BUT the silver lining is that you have time to do your research and decide how best to get your dialysis.

I don't know a thing about PD, and I know about as much about diabetes, but I would think long and hard about combining PD with diabetes that has been hard to control.  I think the dialysate used in PD has glucose in it...I'm really sorry, I shouldn't be blathering about something I know nothing about, but I just want to make sure you think about all modalities.  I can certainly understand you not wanting to have even more needles to contend with, but the most important thing is that dialysis shouldn't make you sicker.  I'm hoping one of our diabetic members will come by and speak more on this subject.

We have one member who had has a kidney/pancreatic transplant...Chris.  But, he's up here in Illinois...still, he may be someone you can talk to.

Welcome to IHD; I know you will find plenty of support here.  I'm glad your family is supportive.
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
chook
Sr. Member
****
Offline Offline

Gender: Female
Posts: 774


Born to be a Granma!
« Reply #5 on: February 09, 2012, 03:18:49 PM »
 :welcomesign; Derrick.
I have to second MooseMom - I feel that the pre-dialysis months/years waiting for the unknown is so hard on everyone.
I have a sister who is now at that stage, and having been through it myself only a few years ago, my heart really bleeds for her. All the worrying in the world won't change anything but it so hard not to worry. (I did PD for a short time and now am almost one year post transplant.) MooseMum is correct in saying about PD and the glucose but there is some other kind of dialysate that can be substituted - I think.
All the best and congrats for finding this site - it is such a life saver, full of info, humour and help.
The only complaint I have is that there is a counter for the time spent on here and mine says six days. Six days???!!!! So, careful, Derrick, IHD is addictive.
Logged
Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Traveller1947
Full Member
***
Offline Offline

Gender: Female
Posts: 469
« Reply #6 on: February 09, 2012, 03:27:11 PM »
Hi, Derrick, and welcome!  Glad you found this forum.  You'll find so much information and support from caring, generous people who will be happy to share their experiences with you.  Lots of humor here too. All the best to you.
Logged
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #7 on: February 09, 2012, 03:40:48 PM »
Hi, Derrick!

 :welcomesign;

As you can already see, we jump right in!  :clap;

You have already gotten lots of good advice. The most important thing is to learn, learn, learn. And speak up for yourself!

Welcome to the ride. It isn't fun, but you can still lead a fulfilling life.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #8 on: February 09, 2012, 03:42:06 PM »
Quote from: chook on February 09, 2012, 03:18:49 PM
The only complaint I have is that there is a counter for the time spent on here and mine says six days. Six days???!!!! So, careful, Derrick, IHD is addictive.

Only six days?  Harumph...I've been on 29 days! ::)
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
ToddB0130
Full Member
***
Offline Offline

Gender: Male
Posts: 348
« Reply #9 on: February 09, 2012, 06:18:26 PM »
MooseMom --- ONLY 29 days, really ???  I find that hard to believe .......HA !

Derrick..... welcome to the board.  I hope you find all of the information you need.  It is all very helpful.

I am a Type 2 diabetic.  I am listed for transplant (when I had asked about kidney/pancreas,  they advised me they typically only use that for a Type 1 diabetic).

Anywhoooooo ..........I've got my fistula four months now and I've chosen to do notturnal hemo in center (until I can convince my doctor I'm capable of doing it at home alone).   I'm not concerned about the needles...I'm planning to quickly develop buttonholes.  (I just started using lantus insulin at night and those needles on the lantus pen are really tiny and don't bother me at all)

 I too was concerned about doing PD with the glucose, etc.   But every modality works differently for every person.  I hope this one is a good one for you.  Best of luck and welcme again.
Logged
No day but today
CebuShan
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2848
« Reply #10 on: February 10, 2012, 05:06:17 AM »
   :welcomesign;   This site is a great place to get info and support. I have some friends in Caraway! Anywhere near you? Anyway, glad you found us! BTW, I've been on 11 days!
Logged
Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #11 on: February 10, 2012, 06:57:52 AM »
dparham75, first of all welcome to the si   :welcomesign; It is good that you want to learn about dialysis before the event happens.There is so much to learn. Feel free to ask any questions.
Logged
chook
Sr. Member
****
Offline Offline

Gender: Female
Posts: 774


Born to be a Granma!
« Reply #12 on: February 10, 2012, 09:05:30 PM »
@MooseMum: hey, I'm just an occassional IHD visitor. I think you might be the addict! But how lucky for all those people you lend your well-thought out responsess to. :)
Logged
Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #13 on: February 10, 2012, 11:02:46 PM »
Quote from: chook on February 10, 2012, 09:05:30 PM
@MooseMum: hey, I'm just an occassional IHD visitor. I think you might be the addict!

Exactly my point!  Your 6 days don't come anywhere close to my 29, so you've got to step it up, girl!  LOL!  You have a lot more valuable experience with this stuff than I do.  It's always nice to see you posting from down under.

Quote
But how lucky for all those people you lend your well-thought out responsess to. :)

Oh, you mean my 29 days of well-thoughtout whingeing? :P  Yeah, lots of lucky people have read lots of my complaining and have been gracious enough not to tell me to shut up.  That will probably come on day 30.
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
looneytunes
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2071


Wishin' I was Fishin'
« Reply #14 on: February 11, 2012, 06:28:22 AM »
Hi Derrick and welcome!   :welcomesign;
Logged
"The key to being patient is having something to do in the meantime" AU
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile
« Reply #15 on: February 11, 2012, 06:36:41 AM »
 :welcomesign; to IHD.  This really is a great spot for both information and support.  I hope you will find what you need here.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!