Another Turn in the Path

[billybags]

Fingers, legs, arms all  crossed.

[willowtreewren]

 

Lots of hugs, Looney. Lots of hugs.

Aleta

[boswife]

oh please let this be just a fluke and not something bad...         

[bevvy5]

Add me to the good thoughts coming your way.  That sepsis threat is always nasty.  Here's hoping the antibiotics gets whatever it is quick.

[monrein]

Thinking of you both and hoping that things improve very soon.   

[looneytunes]

Well, night # 3 is over.  He still did not sleep at the clinic so we are back home and he has crashed out.  Blood cultures are clear so far but we have to wait another 48 hours for them to finish growing them out.   Hubs is still not feeling too good. 

Thanks to all of you for your encouraging words, thoughts and prayers.   

[willowtreewren]

 

You both need some rest! 

 

[amanda100wilson]

Do you know that when you want to stick with your neph. That as long as they are willing, that they can get privilages at dialysis units that they currently aren't with.  My neph. Did that.  I liked him but not the dialysis unit, so I stuck with him and he got admitting privilages at the one that I wanted to swap to.

[lmunchkin]

Looney, how are you holding up? What do you do while he is at the clinic? 

Thinking of you,
lmunchkin
 

[looneytunes]

Oh Munch, I'm doing all right for now.  Tired of looking at the windshield though!   

I drop him at the clinic at 8:30 p.m. and head for our vacation home which is about 40 minutes from the clinic.  Get there around 9:30....Take a shower and fall into bed...up at 4:00 to pick him up by 5:30 a.m.   So far, I am thinking he seems to be feeling a little better.  May be wishful thinking but we'll see. 

[natnnnat]

Hopefully  not wishful thinking.   

[billybags]

Looney thinking of you both.

[boswife]

you've been on my mind too Looney.  Sounds do-able for now and if it works, will be great!!  We all wish you well and hubby too.  Im glad at least he's in for a good amt of time.  The 5 min drive too and from D (when incenter) even got to me    But that was only when he started to feel so lousy that it was a drag to go as i knew i'd be dropping off a seemingly well man, and picking up an illish one    I so hope this turns out good for you guys.  It will make it all worth while...   

[Poppylicious]

Hope everything is going okay in your world, looney.

*huggles*

[looneytunes]

Thanks, my friends, for all your support.  We have now completed week #2 of this "trial" period.  Last night, our neph was in the clinic and in listening to he and hubby's conversation, it sounds like hubby may want to continue this indefinitely.  He has had a couple of good days this past week (My definition means that he felt like doing something besides just sleeping or watching TV) and that's better than it has been for the past several months.  His main complaint is that there is no bed for him at the clinic, it is a chair with some extra cushions.  He feels like he might sleep better on D nights if they had beds. 

We are starting to transition into a move to our 2nd home (which is only about 30 miles from the clinic) and though it will be a slow process, my mind will be more at peace to be closer to medical care for him. 

[boswife]

Im glad it still seems to be working for him .  I think in time, once your closer and all, it will give you a whole lot of reliefe.  It's hard to deal and accept our 'hand'  when they're stable much less NOT stable as you have had to deal with. We too lived on our ranch an hour away from any town for 20 years and it was wonderful but to do it alone..whew! .   Thank The goood Lord we did 'our' move closer in to town, because that drive to dialysis (before Nx stage) woud have been a bear!!  I wish all the best for ou. 

[cassandra]

all the best Looney,

[willowtreewren]

I know the farm was important to your husband. How is he taking to the idea of moving to the closer home? 

If he is feeling better and able to do more, perhaps the trade off will be worth it for him. And for you, too. And perhaps there is a bed in his future.

 

Keeping you both in my thoughts.

Aleta

[billybags]

I think you are so right if you can pull this move off. You will feel better not having to drive all that way two or three times a week and as you said you are a lot nearer to the facilities. I say go for it. Will some one be able to look after the animals for you?

[del]

It should make it easier on both of you being closer to the dialysis clinic.  When hubby was doing in center dialysis he had about an hour and 15 minute drive to get there.  He spent 4 hours 15 minutes on the machine and about 3 hours driving 3 days a week.  He found the drive worse than the dialysis.  If he hadn't started home hemo I would have applied for a teaching job in the town where the dialysis unit was and we would have moved.

[lmunchkin]

Can anyone explain to me why patients doing nocturnal in-center have to "lay" in a chair, and how that is done? How can you lay in a chair? You can recline, but its not like laying.  My husband lays in his bed or sits up if he wants.  I don't understand why they don't furnish beds.  What if the patient brought their own beds, would that satisfy these people.
Jeeze, why can't they at least allow yall some leave way. Looney, you mean He has to wait for a bed to come up? That just stinks!!!!!  Its a damn shame he couldnt do the NxStage.  If he had had good access, it would have been good for him.

Hope all is well with you my dear.  Think of you often!
God Bless,
lmunchkin
 

[looneytunes]

We have now completed week #3 and are starting week #4 tonight.  There is no longer any doubt in our minds that hubby is doing much better.  He is having more good days than bad days.  Believe me, this is SUCH a welcome change.  To see him with a little energy and a desire to be more active is heartwarming.  He has now decided he will continue nocturnal indefinitely.   

There are still some fistula issues and we have a fistulagram set up for tomorrow morning to see what can be done. 

I'll keep you posted as I can.  I hope to have internet service at our new location by the end of the week.  Hugs to all of you!   

[willowtreewren]

This warms my heart, it does.

I hope the fistulagram goes well. 

Aleta

[billybags]

Fingers crossed loony,

[bevvy5]

Me three.  When they start having more good days than bad, anything you have to do seems like a small price, doesn't it. 

Don't understand the whole bed thing either.  Don't they want you to sleep through nocturnal?  I mean, gotta to be hard enough in a centre as opposed to at home, but I know I couldn't sleep reclined in a chair.