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New Member!
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Topic: New Member! (Read 2315 times)
sykotic_mess
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New Member!
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January 26, 2012, 09:35:34 AM »
Hi there! I had no idea there was an nonlinear community for people just like me. I was told in March of 2011 that my kidney functions were low and that I would probably have to start dialysis in a year or so. Well that didn't happen and I ended up starting two months later. My story is a sad reality check. I was diagnosed with juvenile diabetes when.I was 11 and I did all of the wrong things. I didn't watch my diet, never took my insulting, refused to see my doctors, and would not take my mess. I never knew the effect it would have on me today. I dabbled in drugs and drank on occasion, still never stopping to see what I was doing to myself. It all hit me when I got really sick and that finally made me start taking the steps to getting better. I did all the things I was supposed to but within two years I lost vision in one eye, losing sight in my good eye too, had all kinds of diabetes related stuff. I have No one to blame and I know that I should have done things different but I can not change the past. I love that there is a place that I can go to and people can relate. So that is my story. I look forward to meeting and talking to everyone here
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Poppylicious
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Re: New Member!
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Reply #1 on:
January 26, 2012, 10:05:49 AM »
sykotic_mess! I'm sorry for your reasons for being here, but have to say that it's refreshing to know that you're taking responsibility for it and not thinking up excuses as some people would do. Thank you for joining us!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
willowtreewren
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My two beautifull granddaughters
Re: New Member!
«
Reply #2 on:
January 26, 2012, 11:49:14 AM »
yes, the past is water under the bridge and can't be changed. BUT now you are taking control. This is a good site for learning more about dialysis and getting support from folks who understand.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
Joe
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Re: New Member!
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Reply #3 on:
January 26, 2012, 12:48:25 PM »
Hi, and
Hope you find what you are looking for here.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Traveller1947
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Re: New Member!
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Reply #4 on:
January 26, 2012, 03:51:38 PM »
Hi and welcome, sykotic_mess! The past is past. Now you're in the right place to go forward knowledgeably with help from the compassionate and experienced members of this forum. I have an idea you'll do fine! All the best to you.
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chook
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Born to be a Granma!
Re: New Member!
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Reply #5 on:
January 26, 2012, 04:05:25 PM »
Welcome! I'vve found IHD a great place for support and information and am sure you will too. All the best!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
lmunchkin
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"There Is No Place Like Home!"
Re: New Member!
«
Reply #6 on:
January 26, 2012, 06:17:29 PM »
Welcome to our family! We all have made some not so great choices in our lives, so you are no different, and please don't ponder on it! Just keep looking forward now!
Anyway we can help let us know! We are here for you!
Again Welcome & God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
ToddB0130
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Re: New Member!
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Reply #7 on:
January 27, 2012, 07:03:22 PM »
Welcome to the board.
I truly hope you're as at peace with your past as you can possibly be. As others have said, you can't change it. And dealing with all of those issues from the age of 11 .... Well one of the most common realities is that as younger people, we think we're invincible and "nothing bad can happen to us" ............. which means you're like millions and millions of other people in that respect !!!
You're doing all that you can now to take control and the very best you can do is deal with your present in order to keep control of your future. Best of luck to you and WELCOME again.
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No day but today
Chris
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Re: New Member!
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Reply #8 on:
January 27, 2012, 10:35:47 PM »
Hello from a fellow diabetic with one eye, or so called vision...lol I can understand not thinking of the effects of diabetes as a kid. When I was diagnosed at 7 in the late 70's, the hospital did not give us (me and another kid) any training about the effects, diet, and so forth after our parents took us out of the class due to smoking and the seniors arguing at the diabetes instructors. I was no model diabetic, I acted like a normal kid away from my parents eating candy and so forth wth friends. When I asked for a candy bar after waking up from a diabetic coma when I was first diagnosed, the doctors and nurses never explained why I couldn't, nor did my parents.
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
MooseMom
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Re: New Member!
«
Reply #9 on:
January 27, 2012, 11:02:57 PM »
Welcome! How are you doing now? What kind of dialysis do you do? Are you feeling pretty good?
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Ang
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Re: New Member!
«
Reply #10 on:
January 28, 2012, 07:37:21 PM »
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live life to the full and you won't die wondering
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