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Author Topic: I'm nervous, and it's making me cry  (Read 8456 times)
MooseMom
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« Reply #25 on: January 23, 2012, 05:28:33 PM »
Quote from: amanda100wilson on January 23, 2012, 05:10:45 PM
It'sdefinately something that they need to know in advance of you getting 'the call. '.

Yeah, I guess that's kinda important. ::)  LOL!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
AguynamedKim
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« Reply #26 on: January 23, 2012, 05:29:29 PM »
Yay!  No colonoscopy!   :yahoo; 

So glad to hear this isn't something you'll have to do for a while.  Maybe when you get your transplant done they can do a 2-fer and knock out the colonoscopy too (I kid, I kid).

I'm still sending positive thoughts your way!
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
ToddB0130
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« Reply #27 on: January 23, 2012, 09:33:37 PM »
So glad it all worked out.  I had my colonoscopy prior to getting listed and recently heard from the insurance company that if they couldn't get a copy of the colonoscopy from the transplant team,  they would take a copy of the "self test" (I'm sure you know what I mean ....) where you mail in samples for study.   Of course the transplant team had BOTH (because I had done both),  but that would've been my hope for you if necessary. (Being able to get 'the kit' from your doctor to mail in the samples, etc.    Glad it turned out not to need anything more than a letter !!
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No day but today
billybags
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« Reply #28 on: January 24, 2012, 04:10:20 AM »
Wow, Moose, what a relieve for you.  :bandance; :bandance; :bandance;
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SooMK
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« Reply #29 on: January 24, 2012, 07:45:54 AM »
Excellent!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Joe
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« Reply #30 on: January 24, 2012, 10:09:00 AM »
Glad that everything went well MM! :bandance;
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
lmunchkin
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"There Is No Place Like Home!"
« Reply #31 on: January 24, 2012, 07:23:56 PM »
Sorry, I missed this one!  Little late, but good to hear!

lmunch
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
fearless
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« Reply #32 on: January 29, 2012, 10:33:24 PM »
this is after the fact, but once i had a doctor say to me (after I'd described repeated episodes of alarm-raising and never-diagnosed chest pain) "well, at least you have a history now".
You've had repeated bad episodes with post-anesthesia complications - but at least it's a history!  You've survived every one, and that is a very good prognosis that you will continue to do so!  Of course, you still want to try to avoid these awful complications.  And my prayer is that you can do so.  I'm always on your side MM, and I so admire your determination to do the very best for yourself and others too.
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MooseMom
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« Reply #33 on: January 30, 2012, 12:08:08 AM »
That's so kind of you to say, fearless.  And you are right...I've survived despite the complications.  Thank you for reminding me of that! :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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« Reply #34 on: January 30, 2012, 01:03:49 AM »
 :bandance; Yay! On to other things!  :beer1;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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