amycdaa
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« on: January 17, 2012, 05:26:19 PM » |
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So I finally decided to sign up as a member of this site even though I have been coming to the forum daily for the last year. In October of 2008 I was diagnosed with rapidly progressive glomerulonephritis. Eight months of chemo and a ton of other drugs my kidneys finally gave up. So this past July I hit my two year mark with Fresenius in center hemo dialysis. I hate being sick but I have the best doctors, nurses and techs anyone could ask for. Yesterday I had my second year eval for a transplant so I have accrued about that much time on the list with an estimated five year wait. Mainly I just want to say what a wonderful site this is. I have always researched every treatment and every drug since the beginning and this site is number one on my list. Thanks guys for being there!
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YLGuy
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« Reply #1 on: January 17, 2012, 05:56:09 PM » |
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 Glad you signed up! It is nice to read that your medical staff is so capable.
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RichardMEL
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« Reply #2 on: January 17, 2012, 07:24:01 PM » |
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Glad you finally signed on after lurking for so long, Amy!!!
Look forward to more of your contibutions and sharing your experiences and wisdom gained with us!
RichardMEL, Moderator
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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Rerun
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« Reply #3 on: January 18, 2012, 08:09:05 AM » |
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Amy, I'm so glad you signed up. It is nice to hear that this site has helped you. I know it has saved me from so much worry. Hope you get a transplant soon! Rerun, Moderator |
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willowtreewren
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« Reply #4 on: January 18, 2012, 08:49:23 AM » |
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Good for you for de-lurking Amy!  Now we can get to know YOU!  Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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MooseMom
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« Reply #5 on: January 18, 2012, 02:48:43 PM » |
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Thank you for coming out of the shadows! Welcome!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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lmunchkin
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« Reply #6 on: January 18, 2012, 04:00:10 PM » |
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Hello & Welcome Amy! You are right, this is a Great Site! lmunchkin  |
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
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Lindia
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« Reply #7 on: January 18, 2012, 09:02:51 PM » |
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It is overwhelming !! |
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Bajanne
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« Reply #8 on: January 18, 2012, 09:08:40 PM » |
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Welcome to you! I just love delurkers! It means that they have tested this site and know it is the best for anyone facing the renal challenge. Looking forward to hearing more from you.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!  |
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amycdaa
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Posts: 17
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« Reply #9 on: January 18, 2012, 09:55:04 PM » |
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Thanks for the warm greetings guys. This site has been so great. It's like that saying that you can only tell what a person is going thru by walking a mile in their shoes. Well I figure with all the advice and information here there has to be thousands of miles. It is so good to see that we are all in it together.
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Poppylicious
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« Reply #10 on: January 19, 2012, 12:23:38 PM » |
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Amy-Lurker!
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looneytunes
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« Reply #11 on: January 19, 2012, 05:28:04 PM » |
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Hi Amy and welcome! |
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"The key to being patient is having something to do in the meantime" AU
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kristina
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« Reply #12 on: January 22, 2012, 02:27:53 AM » |
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Hello, amycdaa and welcome to IHD.
It was interesting for me to read that you were treated with chemo and “a ton of other drugs”.
Was it to treat the progressive glomerulonephritis?
I am interested because I am ESRF pre-Dialysis with chron. proliferative glomerulonephritis
and Lupus/SLE/MCTD and I have not heard of chemo-treatment for glomerulonephritis.
Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
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Ang
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« Reply #13 on: January 28, 2012, 07:56:56 PM » |
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live life to the full and you won't die wondering
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