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Author Topic: Hi  (Read 6782 times)
Maz
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Hi
« on: January 30, 2007, 03:53:35 AM »

I would like to  introduce myself, My name Maz I am 46yrs young, I live in Queensland Australia, I was diagnosed 3.5 yrs ago I was pretty ill at the time with renal failure, had a catheder put in for PD, then I seemed to stablise,so 8 months later I had the catheder removed now things have turned again and I have elected to do home hemo, I am still working 6 days a week as we have a business, and have been told I will feel better with dialysis, it is all a bit daunting, but I found this site very helpful so far, and as i travelled down this track I am hoping for a little help in understanding all this, it is a bit of a mind field at the moment, I will be having a fistula put in place in 3 days, so I guess I will have a few questions once that happens   :thx;
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Sluff
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« Reply #1 on: January 30, 2007, 04:08:56 AM »

Hey Maz,

We can get through the mine field together. We are a strong well experienced community. Take the time to enjoy life once in awhile and don't let this disease or it's treatment dictate your life. However when you need to get advice or rant or offer help feel free to come here and do just that. We are here for you.

Here is a good place to start http://ihatedialysis.com/forum/index.php?board=25.0.

Here is one of a few threads on a New fistula http://ihatedialysis.com/forum/index.php?topic=1305.0

If these links don't get you started then you can use our search feature and find almost anything that will help answer questions you might have.

Most importantly I just want to thank you for joining our family here at IHD.




Sluff, Moderator
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Zach
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"Still crazy after all these years."

« Reply #2 on: January 30, 2007, 04:43:42 AM »

Welcome to the site Maz!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!

« Reply #3 on: January 30, 2007, 06:32:15 AM »

Hi Maz, and welcome to our site.  I've never heard of someone preparing for dialysis in a chronic situation and then pulled off.  Count that as a blessing that you were granted more time.  But, you will feel better than you do right now once you are on dialysis.  Not much.... but better.   :D

With your fistula.......my advice is don't freak out when you see the incision.  You have to have it, so just consider it your life line.

I wish you the best.  Any thoughts on a transplant??

 :welcomesign;

Rerun / Moderator
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kelliOR
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« Reply #4 on: January 30, 2007, 08:37:40 AM »

Nice to meet you, Maz!  There is a wealth of information and wisdom here.

Kelli
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Denied PKD for years (Boy, was I good at it!)
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angieskidney
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« Reply #5 on: January 30, 2007, 10:06:49 AM »

Hi Maz! The more often you can have dialysis the better you will feel (that is why I liked Peritoneal Dialysis .. but that is because they don't have home hemo in my city Yet).

Hope all goes well and  :welcomesign;
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
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Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
paris
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« Reply #6 on: January 30, 2007, 10:24:50 AM »

Nice to meet you  :welcomesign;
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charee
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« Reply #7 on: January 30, 2007, 02:03:58 PM »

Welcome Maz Great to see another Aussie  here , there is a few of us now. I had my fistula done in October 06 starting home hemo training very soon. Looking forward to your posts.( I live in country NSW)

Cheers  Charee
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Home Hemo  18 months
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Royal Prince Alfred Sydney Australia

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boxman55
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« Reply #8 on: January 30, 2007, 05:06:03 PM »

Welcome Maz, if you want info about kidney dialysis you found the right site. Look forward to hearing about your progress. Boxman55
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
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anja
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« Reply #9 on: January 30, 2007, 08:17:33 PM »

 :welcomesign;  Maz, to the community.
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RichardMEL
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« Reply #10 on: January 30, 2007, 09:09:07 PM »

G'day Maz and welcome... Always good to have another aussie... I shall be flying to QLD in a few days so will wave! *grin*

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
mrhecht
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« Reply #11 on: January 30, 2007, 09:19:09 PM »

Hi Maz!!!
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peace............marian
CAPD 1989 to 1992
HD 1992 to 2007
2007 Back to PD;  CCPD...18 years & counting!

Real danger is the refusal to consider another option.
Maz
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« Reply #12 on: January 31, 2007, 02:45:45 AM »

Thanks for making me feel welcome to the IHD family, I live on the Sunshine Coast if any aussies are up this way,I would love to meet you.
Yes,  my neph said I should feel as those I had won the lottery, I was a bit upset when he said we need to get ready again.
 In my case it is hereditary, my brother has had 2 transplants,1 from one of our other brothers which lasted 5 years, the other didn't take at all, he is back on HD. My mother also had it and did PD for years, she's been gone 11years now, I don't know about having a transplant I will cross that bridge down the track, It was hard watching my brother go through this twice, I will see how i go with HD first.
Anyway thanks again I will keep reading your posts they are very informative, and you realize your not on your own.




EDITED:  This post merged with the introduce yourself thread created by Maz - Goofynina/Admin.
« Last Edit: January 31, 2007, 03:11:50 PM by goofynina » Logged
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #13 on: January 31, 2007, 03:20:48 AM »

Be up your way in September, going to do some holiday dialysis at Noosa Hospital

Am from Melbourne and am waiting impatiently to be up at one of the most beautiful places in the world.
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Joe Paul
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« Reply #14 on: January 31, 2007, 10:19:50 AM »

Welcome Maz, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Wattle
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« Reply #15 on: January 31, 2007, 02:44:20 PM »

Hi Maz,

 :welcomesign; Another Aussie here.... Melbourne. You will find great info on this site.  :)
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kimcanada
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« Reply #16 on: January 31, 2007, 03:59:59 PM »

Well Maz I guess you are me on the other side of the planet!

I own a business also and can't quite figure out how all this time will happen, but I am reassured that what doesn't kill you makes you stronger!   :thumbup; 

I am also getting my fistula in the next few days , (I haven't gottin the exact date as of yet) So hello and maybe we can figure this all out!

Kim
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shay_pcb
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« Reply #17 on: January 31, 2007, 11:53:11 PM »

 :welcomesign;
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doglvr02
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« Reply #18 on: February 01, 2007, 05:30:21 PM »

Welcome Maz!
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aharris2
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Volcan Pacaya, Guatemala

« Reply #19 on: February 01, 2007, 05:40:09 PM »

:welcomesign; Maz, hope you enjoy your stay in this great site for us dialyzors.

cheers :beer1;

Rolando
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My dear Rolando, I miss you so much!
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Ohio Buckeye
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« Reply #20 on: February 01, 2007, 05:53:13 PM »

Welcome to IHD Maz.
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« Reply #21 on: February 02, 2007, 08:13:57 AM »

Welcome to IHD, Maz, it's good to have you with us!   :welcomesign;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Maz
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« Reply #22 on: February 05, 2007, 03:03:33 AM »

Be up your way in September, going to do some holiday dialysis at Noosa Hospital

Am from Melbourne and am waiting impatiently to be up at one of the most beautiful places in the world.

Hi Tamara
Noosa is about 30 mins from us and a relaxing spot for a holiday, let me know when your'e in town, and maybe we can get together if you  would like, were you able to get a spot in Noosa hospital for your dialysis while your away, I have heard there a nice group up there.

 :beer1; Maz
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #23 on: February 05, 2007, 03:36:20 AM »

Hi Maz,

I learnt to book early after trying to get into a Perth dialysis centre in January this year, I started to try and book a place in September and it wasn't early enough, 15 centres i tried, was even willing to travel up to an hour, but no luck.

So I have booked Noosa in November last year for September this Year, and I can't wait !
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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« Reply #24 on: February 06, 2007, 04:36:13 PM »

Welcome to our community, Maz from Oz!!  We are so glad to have you.  By now, I am sure that you realize that this is the place to be!  There is so much information.  And apart from that, we have developed a caring and sharing community here.  I notice that you are already planning to meet another member.  Great!  Don't forget pictures!
Feel free to rant when you need to, ask questions (and answer some yourself), check out the arcade, go in the chat room (if you see anyone there!), check out Renal Romance.  Just take advantage of all this great site has to offer.

Bajanne/ Moderator
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I LOVE  my IHD family! :grouphug;
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