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Author Topic: Home hemo and having to pee  (Read 11481 times)
Zog
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« Reply #25 on: January 18, 2012, 09:41:29 PM »

Don't recirculate too long using a peanut.  The machine still thinks you are attached.  If you are clever and turn the DFR to zero to "pause" the treatment, you will get a yellow 6 alarm.

Food for thought... your blood cells are alive and part of you.  When you leave them in the machine and go pee, you are two places at once.
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
MooseMom
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« Reply #26 on: January 18, 2012, 09:42:54 PM »

Food for thought... your blood cells are alive and part of you.  When you leave them in the machine and go pee, you are two places at once.

Ooooh, that sounds all quantam physic-y!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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"There Is No Place Like Home!"

« Reply #27 on: January 18, 2012, 09:53:01 PM »

You know, that is a good way to explain it!  Just stick to porta potties Moosey!

lmunch
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Annig83
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« Reply #28 on: January 18, 2012, 10:59:35 PM »

I'm on CAPD at home, so it's probably different for me than you guys.  I still pee at night, but I have a 20 foot line of tubing that allows me to reach the bathroom, living room, my son's crib, and of course my bed.  I do nocturnal because during the day I don't have time with having a 1 yr old son... but I like the nocturnal also because I don't feel full from filling, and when I wake up in the morning all I have to do is disconnect myself and go. :clap;
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
natnnnat
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« Reply #29 on: January 18, 2012, 11:10:25 PM »

Food for thought... your blood cells are alive and part of you.  When you leave them in the machine and go pee, you are two places at once.

I love it!!!    :clap;
How long do your cells remain part of you?  So when you've pee'd, and you are walking back to your machine, are you... three places at once?
(ARHG)
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
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Heartfelt thanks to IHD, KK and ADB for your generosity and support.
lmunchkin
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"There Is No Place Like Home!"

« Reply #30 on: January 19, 2012, 01:47:30 PM »

I'm on CAPD at home, so it's probably different for me than you guys.  I still pee at night, but I have a 20 foot line of tubing that allows me to reach the bathroom, living room, my son's crib, and of course my bed.  I do nocturnal because during the day I don't have time with having a 1 yr old son... but I like the nocturnal also because I don't feel full from filling, and when I wake up in the morning all I have to do is disconnect myself and go. :clap;

Yes PD does accomodate with longer lines.  Much different for hemo.

lmunch
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
richbl
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« Reply #31 on: December 14, 2012, 08:23:58 PM »

I don't know what he's for

 :rofl;  Well, that's just odd.  The Mysterious Mr. Peanut.

We use Mr. Peanut to connect the two ends of the blood line (venous to arterial) during setup. So, you end up with one continuous loop that keeps the ends aseptic until it's time to get on the machine. He ultimately gets tossed after I've placed my needles.

That said, I call Mr. Peanut " the monkey paw" since it sounds more ominous...

As for having to pee (particularly when doing extended runs), I use a good old-fashioned hospital urinal.
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bmil1652
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« Reply #32 on: January 07, 2013, 05:13:14 AM »

So you diconnect both lines from the body and attach to the peanut.  Then you push treatment??????  And then stop when you get back, attach and then treatment again???
How does affect your actual treatment results?
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CebuShan
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« Reply #33 on: January 07, 2013, 08:59:17 AM »

How funny! We've always called it "The little guy"!   :rofl;
We were told to attach it to the yellow line coming off the Saline bag when you hook up the waste line.
As for recirculating, we have a bag full of hook ups to attach. They function the same way as "Mr. Peanut" but look slightly different. Not as fancy! 
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
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Willis
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« Reply #34 on: January 07, 2013, 10:05:26 AM »

With my normal CAPD line I can't quite reach the bathroom. I don't have to get up during the night often so I really don't want to hassle with an extra section of tubing. So...I keep one of those plastic bottles like they give you at the hospital near my bedside. When I had my PD cath surgery I took a bunch of unused bottles home with me, but I'm sure they could be purchased online. I suppose using a plastic bottle is easier for a male, but there have been a few times I just couldn't wait and the plastic bottle is designed for this purpose. In the morning after I disconnect I dump the bottle and rinse it out good and then it's ready for next time.

 
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M3Riddler
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« Reply #35 on: January 07, 2013, 10:11:02 PM »

So you diconnect both lines from the body and attach to the peanut.  Then you push treatment??????  And then stop when you get back, attach and then treatment again???
How does affect your actual treatment results?

In the large picture, it would have very little affect on your treatment results...
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Adam_W
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Me with Baron von Fresenius

« Reply #36 on: January 12, 2013, 08:05:20 AM »

I knew a guy who was on nocturnal home hemo and when he had to use the bathroom at night he would roll his entire dialysis machine into the bathroom with him. It wasn't a NxStage machine either!
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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