First travel on PD.

[highway61]

 

Had a great overnight trip to NH to play Santa to the grandkids. There is no better medicine than the kisses, and hugs of your sweet little grandchildren.

My sweet bride picked up a travel case for the cycler from out PD nurse a coupla days ago. We packed it up all our manual and cycler supplies and all the fun presents and drove off to NY from Central NY. We went straight to the hotel and did a manual. We used a floor lamp to hang my dialysate bag and did ti up. I even drained 3500ml!

Overnight on the cycler was nicer since I was actually able to walk to bathroom to relieve myself. Sure sounds bad listing something like THAT as a highpoint. lol But I cannot do that at home.

I know this is nothing spectacular, but it is big for us. It means that this decease will NOT determine what we do, where, or when.

[Joe]

That's a fact highway61, we don't let this rule our lives. We were supposed to head down to Disney World next week, but had to cancel because of my daughter/s work schedule. I had Baxter, American Airlines and Disney World all set up to work my dialysis into the schedule so no break in treatment. I'll get an opportunity later in the year to do it again...

[wbdoug]

I've done dialysis inthe middle of the desert, literally out in the middle of nowhere! Enjoy your trips highway61, don't let D stop you

Bill

[lmunchkin]

It is an awesome feeling when you travel and know that things will be just fine!    for you my dear.

lmunch
 

[rileysmom]

so glad to hear it went so well. as someone who LOVES To travel it's good to know that pd will not slow me down. once i get the jest of how to pack it all up and travel. ill be on the road traveling with my daughter again in no time...

[Stu]

As someone who's about to go back on dialysis, doing CAPD this time, after having had a transplant for the last five years (I'm having the catheter put in in early January), you have no idea how you've made my day with this post!

I've chosen PD over Haemo this time for exactly this reason, the ability to travel and not be tied to the machine. Reading your post has validated that decision. Thank you!

[highway61]

As someone who's about to go back on dialysis, doing CAPD this time, after having had a transplant for the last five years (I'm having the catheter put in in early January), you have no idea how you've made my day with this post!

I've chosen PD over Haemo this time for exactly this reason, the ability to travel and not be tied to the machine. Reading your post has validated that decision. Thank you!

Wow Stu, you just made my day! I have been on this board for a very short time. I have ESRD and am new to PD and have been getting a lot of help from everyone here. This is the first time that something I said has been helpful to someone else. Thanks!

Sorry to hear that your transplant only worked for five years. Sure wish that had gone better.

[Grumpy-1]

Joe

you wrote "I had Baxter, American Airlines and Disney World all set up to work my dialysis into the schedule"  question on American Airlines.  How did that work?  what did you have to do to fly?  How about getting through security checks?   Just wondering as to flying as I need to do manuals mid day and I'm wondering how to take 2,500 ml fluid bag with me.

[Joe]

Grumpy-1, I had a letter from my center explaining that I was a dialysis patient and that I had to carry all the hoorah stuff to do an exchange in transit. I got hold of AA's special services folks and discussed what I needed to carry on with me. Their indication was that it wouldn't be a problem. Their indication was that I would be able to get my supplies through security with the letter as well as pre-board so I could stow my cycler and get situated before general boarding.
HTH

[Grumpy-1]

Joe

Thanks for the info.  I've put off even trying to fly.  Now If work requires, I'll be willing to go.  Thank again

[highway61]

Joe

Thanks for the info.  I've put off even trying to fly.  Now If work requires, I'll be willing to go.  Thank again

Good luck when you do travel.   :thumb up;