Because back then I remember you talking about ending it as soon as your son was done with school. I've noticed a difference pretty much since you started posting about the at-home dialysis - that new machine.
Well, whether you think so or not, I have noticed a difference in your "attitude" and I noticed it change around the time you posted about the NxStage.
Quote from: Sara on May 24, 2006, 08:06:39 PMWell, whether you think so or not, I have noticed a difference in your "attitude" and I noticed it change around the time you posted about the NxStage.Honestly I resent the fact that you think you know me and suddenly after 13 years of living hooked to a machine you think that a NxStage machine would change my outlook on life, a machine that I have not even begun training on yet. Here let me explain it again.I Hate Dialysis, and I will seriously consider stopping dialysis when my son goes off to college. By then I would be on for 24 years (STRAIGHT no transplant) I Hate Davita, I think they are a uncaring corporation. I Hate the fact that worthless gang-bangers who murder and steal have perfectly good kidneys. I Hate the fact that I have not taken a piss in 12 years I Hate the fact that I am in a WHEELCHAIR due to dialysis. The list can go on and on......Honestly I am not trying to put up this negative persona. On some things I am negative and somethings I am positive. I have the same feelings that I have when I first started this site. So show me the reason/proof of me having a change of attitude, please share with the rest of the members. Show me my posts that made you think I'm less negative now.Seriously you offended me. You offended me by telling me I have a better attitude about dialysis because of NxStage. It offends me that you think all my suffering (past and present) is now better and I'm in a "happy" place because of NxStage I have gone through so much shit in my life that GOD himself would have to come down and give me a brand new body to make me truly happy again.- EpomanOffended Admin
This will change my world and I can't express the feelings I have right now. Lately I have been getting really down going to the clinic and rightfully...
Before I used to dream of seeing my son graduate high school and I would be content in knowing that I raised him and turned him into a man before my kidney failure finally got the best of me. But then a company like NxStage comes along and gives me hope and the very possibility of seeing my own son become a father himself. NxStage did not invent a new dialysis machine, they found a way to keep a father alive longer for his son.
Quote from: Epoman on May 24, 2006, 11:07:49 PMQuote from: Sara on May 24, 2006, 08:06:39 PMWell, whether you think so or not, I have noticed a difference in your "attitude" and I noticed it change around the time you posted about the NxStage.Honestly I resent the fact that you think you know me and suddenly after 13 years of living hooked to a machine you think that a NxStage machine would change my outlook on life, a machine that I have not even begun training on yet. Here let me explain it again.I Hate Dialysis, and I will seriously consider stopping dialysis when my son goes off to college. By then I would be on for 24 years (STRAIGHT no transplant) I Hate Davita, I think they are a uncaring corporation. I Hate the fact that worthless gang-bangers who murder and steal have perfectly good kidneys. I Hate the fact that I have not taken a piss in 12 years I Hate the fact that I am in a WHEELCHAIR due to dialysis. The list can go on and on......Honestly I am not trying to put up this negative persona. On some things I am negative and somethings I am positive. I have the same feelings that I have when I first started this site. So show me the reason/proof of me having a change of attitude, please share with the rest of the members. Show me my posts that made you think I'm less negative now.Seriously you offended me. You offended me by telling me I have a better attitude about dialysis because of NxStage. It offends me that you think all my suffering (past and present) is now better and I'm in a "happy" place because of NxStage I have gone through so much shit in my life that GOD himself would have to come down and give me a brand new body to make me truly happy again.- EpomanOffended AdminOh please. You are reading way more into that than was intended. I thought it was a good thing. Where did I say "all is better, forget all your past troubles"? Please, point it out. And also, please forgive me for "thinking I know you." I just made a casual observation based on my spending the last several months on this site, reading just about every post you've made. You've offended me by jumping all over me for nothing. Thanks so much.
In case you were wondering, these are 2 of your posts that made me think that...QuoteThis will change my world and I can't express the feelings I have right now. Lately I have been getting really down going to the clinic and rightfully... QuoteBefore I used to dream of seeing my son graduate high school and I would be content in knowing that I raised him and turned him into a man before my kidney failure finally got the best of me. But then a company like NxStage comes along and gives me hope and the very possibility of seeing my own son become a father himself. NxStage did not invent a new dialysis machine, they found a way to keep a father alive longer for his son.I am sorry if you are truly offended. I hate to offend anyone. But I don't appreciate my head being bitten off for a friendly observation.
Fist of all Epoman and Sara calm down If you two want to agree can't you just send each other a PM. You two of gone miles of the tread of this post. You are just backward and forwards with the same Quotes. I thought the idea of this site was to help each other, give advise and have a rant about dialysis. Not have a RANT at each other.Now you two can have a RANT at me.Kevno.
Fist of all Epoman and Sara calm down If you two want to agrue can't you just send each other a PM. You two of gone miles of the tread of this post. You are just backward and forwards with the same Quotes. I thought the idea of this site was to help each other, give advise and have a rant about dialysis. Not have a RANT at each other.Now you two can have a RANT at me.Kevno.
Quote from: aMbEr_79 on May 20, 2006, 02:41:00 AMI am a little offended that people have said life isnt normal after a transplant. If you have never had one, how would you know? Its true that some people have alot of trouble afterwards, BUT thats not EVERYONE. You can lead a normal life with a healthy transplant. And YES, it does happen. I had an excellent transplant, and know many others who have too.The only main out of the normthings were - you must take all your pills, stay well hydrated, and generally look after yourself. Saying you cant lead a normal life is misleading and wrong. You will not know how it is going to be until you go through with it if you so choose.Its no comparison to dialysis, its the opposite. You have to drink alot, your diet is not restricted (you do need to be careful about weight gain), and you arent sitting on your arse 3-4 days a week for hours at a time hooked up to a dialysis machine!I'll repeat what I said:So bottom line is NO you won't live a normal life after a transplant. Unless you consider having a lowered immune system normal? or living with knowing that the kidney can fail at any time and you will be back on dialysis all over again. Because he is the hard truth "The Kidney WILL fail eventually" It could last an hour or it could last 20 years, but it's going to fail. That's why you hear all these people talk about multiple transplants. There will be side effects from the drugs you take, weight gain, possible steroid induced diabetes, greater risk of infection, a multitude of problems. BUT you may be the lucky one, every once in a while I hear about a PERFECT transplant experience. I'm not trying to scare you, just give you the facts.aMbEr_79, many people here have had transplant and most of them FAILED!. When I say you won't live a normal life that is very true, you may live a better life but it is different than having a NORMAL HEALTHY body/life. Some of our members here have had MULTIPLE transplants in their life. You ask ANY doctor and they will tell you the transplanted kidney will eventually fail. It is true there are success stories but the sad stories far out weigh the happy ones. Let me quote you:The transplant worked perfectly for 7 years. Then I started to get very tired all the time, but it took 2 years before I was showing signs of the transplant failing. It failed completely after 9.5 years.That's great that your kidney lasted almost 10 years and I glad it lasted so long for you, however when it happened, you had to go through all the emotions that you went through when you first started dialysis. And now you're back on dialysis, that's not living normal. I think you need to read the introduce yourself section again to read our members bio. You said:I am a little offended that people have said life isn't normal after a transplant. If you have never had one, how would you know?Well I'm a little offended to, that you made assumptions about the members here. Many who have posted here have had a transplant. It's true I have never had a transplant, I always choose not to, however I have seen many people get a transplant then get back on dialysis and some (a few) are now dead.A transplant can be a blessing or it can cause you to come out of it worse off. It's a gamble some are willing to take, I choose not to get a transplant almost 12 years ago, technology/drugs has improved so it's less of a gamble now-a-days. But it's still a crap shoot.- Epoman
I am a little offended that people have said life isnt normal after a transplant. If you have never had one, how would you know? Its true that some people have alot of trouble afterwards, BUT thats not EVERYONE. You can lead a normal life with a healthy transplant. And YES, it does happen. I had an excellent transplant, and know many others who have too.The only main out of the normthings were - you must take all your pills, stay well hydrated, and generally look after yourself. Saying you cant lead a normal life is misleading and wrong. You will not know how it is going to be until you go through with it if you so choose.Its no comparison to dialysis, its the opposite. You have to drink alot, your diet is not restricted (you do need to be careful about weight gain), and you arent sitting on your arse 3-4 days a week for hours at a time hooked up to a dialysis machine!
aMvEr 79If you are a fully qualified Nurse, why should Epoman need to get you the stats on failed Kidney Transplant,being an qualified nurse and on dialysis yourself YOU SHOULD KNOW THE STATS I know them. A so called successful transplant is one that lasts for five years. How can that be a success It has failed, mine never really worked properly from the beginning, but because It hang on for nearly sever years it was classed as a success. How is that It is the Specialists who make up these decisions, when a kidney is a success or failure, you own kidney you had it for over nine years. It still failed. There are only four of use left from when I was a child on dialysis two have had transplants with have lasted for twenty five years, one as had three transplants two so called successful ones. He is now back on haemo. The rest, I have a photo which shows seventeen of them have died. Nearly everyone of them had had a transplant are two that I know of. Not nice but that is the way it is. To put it another way stats stink I have noticed that you write the nurses way, the nurse is right the patient wrong. Many times I have shown a nurse how to deal with patients. Plus listen, not just jump in head first thinking what you think you know is right every time. I respect nurses, will always respect nurses. But you must respect what we have to say. You seen hell bent on trying to argue. If you feel you had a normal life with you transplant. Fair enough, no argument there. That is the way you feel. After being on dialysis. It would feel like a normal life to me, But I could never accept it as normal. Being on all those tablets, always at the back of your mind is the kidney going to fail. That is always at the back of your mind every time you have a blood test, are should I say it was when I had the blood tests for my transplanted kidney.Put another way chill out aMbEr_79 we all have our own views, leave it at that Kevno
Epoman is right on! A Transplant is just another form of dialysis. I had mine for 17 years and did very well. Too well! When I was losing it I was a basket case! I felt like I was losing my best friend and there was nothing I could do. I'm having to move back home to Spokane from Sacramento and giving up a $70K a year job. Hey! It was great while it lasted, but the higher you are the harder you fall!I'm trying to get back on the list just so I have the option for another one. But, to tell you the truth, I'm not ready to get back on that roller coaster ride again just yet. The drugs that keep your transplant have HUGE side affects. It is a big decision.
BUT I really dislike negativity.
aMbEr_79, You said: I honestly couldnt be bothered replying You couldn't be bothered? You don't have the respect to reply to the Admin/Owner of the site which you use.
I stumbled over to emergency with high potassium. And to my surprise, they didnt stuff arse around and got straight to work on me. And I have had my chill pills yesterday thanks, but Im off to dialyse them off so look out QuoteWhat? Is that English?
I was referred to this site from my HD unit website. The name is negative, but according to the heading up the top, its not.I haven't replied to certain threads because I forget to click on notify, its not intentional. It might take me a while to find that thread again. I don't spend all day on here.I did read both the rule threads and I thought I had replied. I usually leave webpages open to get back to later, but sometimes my other half closes them, so I forget about it. I apologise about that. As you may know, renal failure also causes memory failure And for your info, I do use spellcheck since reading the rules. I didn't notice it was there until I had read about it.To be honest I do think you are a bit of a prick on here. I respect that you own this website, but I have at times found you to be a bit overly controlling, as alot of forum owners are. Enough said I think. I would like to get on with interacting with other members and helping them anyway I can. I don't want to spend my time on here arguing with people. Rerun, what don't you understand about what I said? If you knew any Australian's, thats pretty good English!
I Hate Dialysis Message Board
I Hate Dialysis Message Board
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