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Author Topic: Another adventure  (Read 2746 times)
glochis
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« on: December 01, 2011, 03:52:54 AM »

I am the mother of a 39 year old childhood cancer survivor.  Leukemia @ 4, marrow transplant @ 9 and then one "adventure" after another as she keeps trucking along.  Apparently total body radiation is a double sided sword - stroke 4 years ago and now kidney failure looming.  I have been creeping @ IHD and like the straight talk.  Thanks for being here.
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Mother of 39 year old childhood cancer survivor.
Living with the long term effects of chemo and radiation. 
Kidney failure the latest twist on the horizon.
billybags
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« Reply #1 on: December 01, 2011, 04:18:29 AM »

first of all   :welcomesign; to the site, so glad you have found us.
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Pam
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« Reply #2 on: December 01, 2011, 05:41:43 AM »

 :welcomesign; You will find lots of support and hopefully the answers you need here,
Pam
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Joe
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« Reply #3 on: December 01, 2011, 05:45:30 AM »

Hi there glochis, and  :welcomesign;
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Poppylicious
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WWW
« Reply #4 on: December 01, 2011, 11:39:54 AM »

 :welcomesign; glochis!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Traveller1947
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« Reply #5 on: December 04, 2011, 10:42:52 AM »

You've been through so much for so long taking care of your daughter and struggling through her many health problems with her.  Now, with dialysis looming, I'm so glad you've discovered this website.  You will learn so much here and find moral support whenever you need it.   There are so many good people here eager to support you and give you the benefit of their experience.  All the best to you and to your daughter.
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looneytunes
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Wishin' I was Fishin'

« Reply #6 on: December 05, 2011, 05:56:08 PM »

Hi Glochis and glad you have quite creeping and joined in!.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Rerun
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Going through life tied to a chair!

« Reply #7 on: December 08, 2011, 05:09:16 AM »

Hello Glochis, and welcome to IHD.  I'm glad you joined us.  Your daughter; bless her heart.  You will find lots of support here when she does finally have to start dialysis.  Hang with us.

Rerun, Moderator     :welcomesign;
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glochis
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« Reply #8 on: December 08, 2011, 06:42:40 PM »

My daughter has a narrow spot in her fistula that they are going to fix next week.  Still hanging in there without symptoms, so hopefully it will be ready when she needs it.  Apparently they put a balloon in there and expand it, deflate and take it out and the vein/artery stays open.  Does this work the first time??  Thanks in advance for advice.
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Mother of 39 year old childhood cancer survivor.
Living with the long term effects of chemo and radiation. 
Kidney failure the latest twist on the horizon.
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