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Author Topic: New to dialysis not going well  (Read 7016 times)
RichardMEL
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« Reply #25 on: November 23, 2011, 06:45:44 PM »

Dinks - glad your session went well - how about ones since?

And what a FINISH to that test match?! I stayed up till > 2am to watch it. It was absolutely thrilling and down to the wire stuff for the aussies, but we got there!! WOOHOOO! :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
chook
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Born to be a Granma!

« Reply #26 on: November 23, 2011, 08:03:35 PM »

G'day dinks, great to read your story and see that things are looking up. Hang in there!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Ang
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« Reply #27 on: November 24, 2011, 11:47:27 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
billybags
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« Reply #28 on: November 25, 2011, 05:18:10 AM »

 :welcomesign; Dinks
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dinks
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« Reply #29 on: November 25, 2011, 11:19:08 AM »

Dinks - glad your session went well - how about ones since?

And what a FINISH to that test match?! I stayed up till > 2am to watch it. It was absolutely thrilling and down to the wire stuff for the aussies, but we got there!! WOOHOOO! :)

Hey Richard, was thinking of you as I ended up watching the last of the test match at the Renal Unit.  It was a great exciting ending.    :bow;

PS everyone.  They tried the fistula again yesterday and all went well, ten more times with no problems and the permcath comes out.  :bandance; :cheer: :yahoo;
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IgA Nephritis Oct 2009
AV Fistual May 2011
Hemo Dialysis Oct 2011
amanda100wilson
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« Reply #30 on: January 06, 2012, 06:23:20 PM »

Low BP does make you feel really tired.  When I decided to switch to home HD, I had been having some terrible problems with my BP often walking around with it at about 70/50 - i felt like death warmed up.  I was so puffed up, and I kept telling the docs. That I had too much fluid on board.  Turns ou the I did as I lost 20lbs in weight rapidly after starting HD, it was just trapped in my tissues, but my circulation was hypovolaemic.  On acouple of occasions, I had to go to the ER andget an infusion of saline.  Have you the option of switching to home HD?  You will determine howmuch you should take off, to the point that if you feel that you shouldn't take any off but just clean the blood then you can do so, basing this on what your BP is on that day and whether you are showing signs of carrying too much fluid or not.  It is a juggling act but you definately have more control over it.  I am doing short daily home HD.  It'smuch more gentle on your body, and even if you do drop your BP, you don'thave that journey home to contend with.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
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