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Author Topic: 21 year old From Los Angeles introduction!  (Read 3491 times)
Antizking
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« on: October 17, 2011, 01:24:23 PM »
I started dialysis in may 2011. I was diagnosed with kidney disease at 18. I came home from a summer job an found that my legs where extremely swollen and as I pressed into my skin it felt like a memory foam bed. My father rushed me to the doctors and I waited in the lobby for hours thinking my legs would stop working. They ended up admitting me which was very odd to my parents since I had been completely healthy all my life. The doctors said that my kidneys were failing, I would need a transplant, and I would be on medication for the rest of my life. For the 1st 6 Months I stayed on my low sodium diet and took my medication everyday. The kidney disease never slowed me down or gave me any signs that would let me know the gravity of OUR  unfortunate circumstances. the doctors told me that I got the disease out of "bad luck". I went back to a normal diet and took my medication here and there and in about 2 years I was forced to go on dialysis because my creatinine was too low. I choose peritoneal dialysis. The operation to put in the catheter was almost perfect until I clean the exit site 4 days after surgery with soap and a wash cloth. I caught peritonitis. Just recently all my donors which have been worked up have been declined. I would be depressed but I have transformed from the days of a neglectful teen. I want to bring awareness to the world for US with kidney problems. Eventhough I connect everynight for 10 hours I am very active still playing sports everyday, school and work. I'm Trying to to prove that you can live normally on dialysis even tho I HATE IT!!!!!!!!!!!! thanks :)
« Last Edit: October 17, 2011, 01:38:08 PM by Antizking » Logged
Cordelia
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« Reply #1 on: October 17, 2011, 01:27:37 PM »
Welcome!     :welcomesign;     :grouphug;     Sounds like you have a really great attitude!   :clap;

I hope you enjoy the site, everyone is really nice here!    :2thumbsup;     :clap;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
MooseMom
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« Reply #2 on: October 17, 2011, 01:53:08 PM »
It is great to hear of people, particularly young people, just getting on with their lives despite (or because of!) dialysis, so continue to spread the word!  Welcome to IHD.

Do you know what caused your kidneys to fail?  "Bad luck" isn't a diagnosis. :P

I'm surprised that someone of your tender years would have so many donors declined.  Were any of them from your peer group?  On what grounds were they declined?  Are you on the waiting list for a cadaveric kidney?

So many questions!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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"There Is No Place Like Home!"
« Reply #3 on: October 17, 2011, 05:32:25 PM »
Welcome and so young to be suffering this disease, but there are other young people on here that know exactly what you are feeling.  Please keep posting cause you could definately reach others with your story.

Again welcome & God Bless.

lmunchkin    :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
kellyt
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« Reply #4 on: October 17, 2011, 06:02:43 PM »
 :welcomesign;

So glad you found us.  you seem to be very informed and doing a great job thus far.  Are you on "the list"?  Do you have any other live donors lined up?  My first three were declined, but my fourth was accepted!!   Good Luck!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #5 on: October 17, 2011, 06:09:45 PM »
 :welcomesign;

Hi!

There are other young folks here, so I hope you get to connect. Your attitude will help you immeasurably!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
st789
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« Reply #6 on: October 17, 2011, 06:16:06 PM »
 :welcomesign;  I am southern cal. also.
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Rerun
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Going through life tied to a chair!
« Reply #7 on: October 17, 2011, 07:09:09 PM »
Hi Antizking, and welcome to IHD.  I'm so glad you found us.  We would all love it if you could educate the world on this dreadful lifestyle and have everyone volunteer to donate a kidney.  There would be no waiting list.  It is possible....  there are 300 million people in the US and only 400 thousand on dialysis.  Keep working at it.  You are too young to deal with all this.  Sounds like you are doing well.  Stay tuned to learn all you can for people with questions.

Rerun, Moderator          :welcomesign;
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RichardMEL
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« Reply #8 on: October 17, 2011, 08:24:12 PM »
Welcome to IHD AnitzKing!!!

You are MY kind of woman!!!!! Oh wait, people on here will take that the wrong way given my track record!!  :rofl;

What I mean is that it is so wonderful that you are making the most of your "bad luck" situation and want to bring awareness to others, but not only the "outsiders" but also to others with ESRD that you *can* live a pretty normal life and get on with it even with dialysis. This is exactly the sort of thing I've always tried to do so like I said.. you're my kind of person! I love that you've fit this in to your life but don't let it get in the way.. and at such a young age (I mean this in a nice way) to be focused on spreading the (postiive) word - there are those out there of a similar age who could learn much from the example you're obviously setting.

So, welcome to IHD! Hopefully you'll fit in well here!!

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #9 on: October 17, 2011, 09:28:19 PM »
 :welcomesign;

and when you get situated, please take the time and hop on over to the home dialysis thread and read all you wish (and post too) all about PD (which is what I am on) and I just LOVE it!!!
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Joe
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« Reply #10 on: October 18, 2011, 06:26:04 AM »
Yes,  :welcomesign; AnitzKing. You do have a great attitude! I'm with tbarrett as a PD practitioner and loving it. Hope all works out for you.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Mr. B 123
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« Reply #11 on: October 18, 2011, 09:04:03 AM »
Keep the positive attitude going, makes life easier with kidney issues.  Hope all works out well with you!  Welcome to the group.
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Honor God, work hard, and keep show'in up.
Philippians 4:4-7
lou
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« Reply #12 on: October 18, 2011, 09:31:14 AM »
a massive hi and welcome from the UK!  :waving; :waving; :waving;
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monrein
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Might as well smile
« Reply #13 on: October 18, 2011, 11:53:22 AM »
 :welcomesign; 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
CebuShan
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« Reply #14 on: October 18, 2011, 02:55:14 PM »
    :welcomesign;   to the family!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
Ang
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« Reply #15 on: October 20, 2011, 04:00:05 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
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