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Author Topic: Everything has changed  (Read 54514 times)
cariad
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What's past is prologue

« Reply #175 on: December 25, 2011, 10:45:55 AM »

We need a smiley of the wreakage post package opening!  :rofl; :rofl; :rofl;
I'll see if I can post a pic as a model of what we're going for.  :rofl;

It's been a fantastic morning. This Christmas was far less stressful than any in recent memory. Gwyn and I had a long, (at times, painful) talk last night and I think we've made some breakthroughs, so that has just added to the feeling of peace that I've been seeking for so long.

My parents gave the boys iPod touches (once again, against my better judgment) but they seem quite taken with their new books for now. Score one for the power of a good story well-told.

Thanks for the Christmas wishes. Enjoy the time with your daughter, Carl, and of course those two little cuties! Give everyone a hug for me!
 :cuddle;

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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
willowtreewren
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« Reply #176 on: December 25, 2011, 12:32:03 PM »

Quote
Thanks for the Christmas wishes. Enjoy the time with your daughter, Carl, and of course those two little cuties! Give everyone a hug for me!
 :cuddle;

Done! And I'm glad you had a "less stress" Christmas! Our truly most wonderful gift was given to us Christmas Eve - news that another grandchild is on the way!

 :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
CebuShan
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« Reply #177 on: December 25, 2011, 04:25:31 PM »

Quote
Thanks for the Christmas wishes. Enjoy the time with your daughter, Carl, and of course those two little cuties! Give everyone a hug for me!
 :cuddle;

Done! And I'm glad you had a "less stress" Christmas! Our truly most wonderful gift was given to us Christmas Eve - news that another grandchild is on the way!

 :2thumbsup;
Glad to hear you had a good Christmas, Cariad!   :christmastree;
Congratulations, Willowtreewren! That is the best news!   :laugh:
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
willowtreewren
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« Reply #178 on: December 25, 2011, 06:22:05 PM »

Quote
Congratulations, Willowtreewren! That is the best news!   :laugh:

Yep! It isn't "public" yet, but I know you won't tell.  :rofl; :rofl; :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue

« Reply #179 on: December 26, 2011, 11:55:01 AM »

Oh, Aleta! How marvelous! Congrats to all! When is the new arrival expected?
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
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What's past is prologue

« Reply #180 on: December 27, 2011, 09:33:36 PM »

My grandmother died last night. It was around 8:30 here, I was watching Finding Nemo with the boys.

Two deaths in one year. I don't think there will be a funeral, but I don't know. We cannot go even if there were.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Desert Dancer
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« Reply #181 on: December 27, 2011, 09:55:46 PM »

Oh, cariad! I'm so sorry.  :cuddle;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
galvo
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« Reply #182 on: December 28, 2011, 02:52:28 AM »

My sympathy, cariad.
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Galvo
CebuShan
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« Reply #183 on: December 28, 2011, 06:04:46 AM »

Oh, Cariad. I am so sorry for your loss.
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
Joe
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« Reply #184 on: December 28, 2011, 06:18:51 AM »

My condolences Cariad. Prayers for all that is needed.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
cariad
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What's past is prologue

« Reply #185 on: December 28, 2011, 10:16:47 AM »

Thanks, everyone. It was not a huge surprise, she way 94 and really enjoyed her life and had the good fortune to decline rapidly. Mother sent an email last night with the details of her passing, which sounded peaceful and exactly what any of us would hope for when it's time. Because my mother had attached a picture of my grandmother, the email would not open on my phone, so I abruptly raced out of the bedroom to get onto the computer to read what I already knew.

I still have to call my mother, though. She seemed OK in the email, but I reckon it's hard no matter what. I wanted to make sure I did not wake her if she needed a lie-in, but as it's past 10AM there, I think I better ring the west coast....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #186 on: December 28, 2011, 10:58:41 AM »

 :cuddle;

Thinking of you and your family!

Xoxoxo,
Rachel
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
okarol
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« Reply #187 on: December 31, 2011, 10:54:59 AM »

 :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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« Reply #188 on: December 31, 2011, 02:36:50 PM »

Oh, Cariad....

I'm so very sorry.  :cuddle;

At least it was a peaceful passing. Hugs to your mom, too.

In answer to your question, the new arrival is due in July.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
glitter
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« Reply #189 on: December 31, 2011, 09:34:46 PM »

I am sorry for your loss, even with the consolation of a long-well lived life, saying goodbye is never easy. I am glad your Mom has you. :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
cariad
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What's past is prologue

« Reply #190 on: January 01, 2012, 08:15:13 PM »

Thanks so much, everyone. I truly appreciate you all taking the time to offer condolences.

The talk with my mother went fine. She cried a little bit, but overall seemed to be at peace with it. She asked me if there was anything I particularly wanted of my grandmother's, and I said any souvenir of her travels or something of cultural significance from Alaska (where my mother grew up). I asked for her to especially look for an eskimo yoyo. Anyone else play with these? Since my mother did grow up there, we used to have nice sets made of leather and animal fur, probably made by one of the native populations there (perhaps even Eskimos? I don't know.) I think my boys would get a real kick out of learning to use them. Yes, like the hula hoop, I have no doubt I could pick up an eskimo yoyo after all these years and keep it going for hours.

I am so grateful that my mother did not have to watch her mother linger on for years with severe dementia. That is what is happening with Gwyn's mam, and it is so devastating I can hardly bear it.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
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What's past is prologue

« Reply #191 on: January 05, 2012, 09:19:04 AM »

Gah! I have to leave in 24 hours, the boys and I are all under the weather and I just have too much to do. I need to mail out returns from Christmas before that gets too far away, need to drop off the car at the shop to have a repair done from when another mom at the childrens center hit the car as we were parked in the loading zone. I so hope she doesn't fight me on this. The damage is not that bad, but I hate having to call her up when it's over and say "Hi, remember me? You owe me several hundred dollars! Happy New Year!" We don't know each other as her daughter is much younger than my boys, and I just hope she is still reachable. She was very embarrassed and apologetic when it happened. (I was not even in the car, standing by the curb with Aidan waiting on his school bus.) It has been almost a year since it happened, but as usual, too much to do and too little time so I am only addressing it now. I wanted to go to Costco today but that will probably have to wait until we get back.

Gwyn moved into the new place and says it's pretty good. He has his bed and he bought a dining table and chairs off Craigslist last night. He should have internet access, so I will probably be around as usual. He is borrowing airbeds for the boys and I sent extra blankets in the truck so those should be there and ready to use. Condo has laundry which is a necessity for me. I cannot go back to coin-op! I would love to be able to connect with any SoCal members, assuming both parties have the time and energy, but a warning, kids will be in tow. If it looks like it will work out on my end, I will try to connect via email, and I'll have my mobile, too. Please feel free to contact me if you like.

Ta for now!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Desert Dancer
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« Reply #192 on: January 05, 2012, 02:43:08 PM »

I guess you're probably flying, not driving. *sigh*

An hour before you get into L.A., look down and wave to me! I wish you safe journeys.
Logged

August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
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Born to be a Granma!

« Reply #193 on: January 06, 2012, 04:36:37 PM »

 :cuddle; for you, Cariad, on the passing of your grandmother.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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« Reply #194 on: January 12, 2012, 01:13:10 AM »

Sorry to hear cariad on both parts regarding Gwyn and your Grandmother. I still need to reed pages 2 thru 7 to get caught up.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
KraigG
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I feel like I'm on the Dark Side of The Moon.

« Reply #195 on: January 13, 2012, 01:53:27 AM »

So, Cariad, where in So Cal did you move to? I spent over 11 years out there, and lived in 6 cities there. Some of them good, some not so good. The best city for kids, neighborhoods, and houses, was Thousand Oaks. Stay out of the high desert area.

I'm back in the northern Illinois area now, just a few miles south of WI. People and food are better here, but the weather sucks. I came back for a transplant, but my kids are still in CA.

Good luck to you!
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First bout on dialysis: June, 1990
Kidney/Pancreas transplant: August, 1990
Pancreas removed (hospital error): January, 2001
Kidney fails: August, 2011
Second round of dialysis: August, 2011
okarol
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« Reply #196 on: January 13, 2012, 03:26:42 PM »

All my phone numbers did not carry over to my new phone, so hopefully you'll call me soon!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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What's past is prologue

« Reply #197 on: January 14, 2012, 01:23:09 PM »

Hi Kraig,
Well, it's a bit complicated where/if I am officially moving in SoCal. G's job is on the westside of LA which is too crowded/expensive and a touch too superficial for my taste. Everywhere I could picture myself living makes his commute too long. We are discussing N. Holl or Sherman Oaks area. Traffic is perpetual nightmare. I think we'd rather go to the UK though the weather is divine here. Oz won't have us. :( Meanies! Have to disagree with you re: better food in Wisc. Had my birthday dinner last night. Much to tell, pickies of amazing food, but that will have to wait as we are going to try to meet up with Karol for a working visit.


More later....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #198 on: January 16, 2012, 03:28:18 AM »

 :cuddle;


thinking of you...still....

xo,
R
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
okarol
Administrator
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #199 on: January 16, 2012, 09:19:29 PM »

Great to see you both at the kidney prom last night - how long did you stay? I limped home, my poor ankle had enough abuse.
 :thx;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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