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Author Topic: Everything has changed  (Read 54477 times)
CebuShan
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« Reply #100 on: November 04, 2011, 06:58:55 PM »

Another CA pro: Northern is soooo much nicer than southern! You could visit my Mom (who is not crazy & loves company!) she lives on the coast and has a beautiful view of the ocean. On second thought, why don't you move into the house we are moving to and we will move back to CA!    :rofl;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
cariad
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What's past is prologue

« Reply #101 on: November 04, 2011, 08:58:55 PM »

Oh. My. God. Karol that picture is simply divine!
CAL PRO: Marc lives there and he has camped from Mt Shasta to San Diego and from Big Sur to the Colorado river.  He can tell you about hundred's of camp areas.
:rofl; :rofl; :rofl; :rofl; :2thumbsup; It is getting really heavy over on the Cal Pro side of the scales!

MM, you're crazy! (you said I could ;D). No, absolutely right on the positives of no fire season. That is one horrible memory (well, months of memories) that I have from our latest time there, everything was spontaneously combusting around us. We would come outside and the car would be covered in a layer of ash. Aidan's soccer games were cancelled due to wildfire making for unbreathable air. It got old. The hours of my life wasted in a car every bloody day also was beyond wearing. Cannot agree with you on the heat, though. I have a pretty wretched case of SAD and I need the heat and light to be functional. That is a UK Con for sure, at least in winter. Summer, I could not get enough of those endless days. Having been in CA for the meltdown of the US financial system, I know only too well what a mess the whole state is in. One of my best friends is an economist, and he once put it this way: Pretend you're in debt. (Gee, I'll try!) Let's say it's a substantial amount of debt, around $250,000, you'd be concerned, right? It would be a struggle, you'd have to make a lot of adjustments, you might not be able to pay it back, but there would be some hope. Now let's say that overnight increased to $8 million. That is the type of situation that California is up against. Yes, Cal Con.

Aleta, yes, PLEASE come visit us, wherever we land. Door is always open.

Thanks for the support, Todd. Yes, options, even logistically difficult ones, are certainly preferable to what we were facing last week.

CS, I love the Bay Area, but I don't dare open up the NoCal/LoCal debate right now. That could last weeks.... :)
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
natnnnat
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« Reply #102 on: November 05, 2011, 05:31:01 AM »

UK Con: [...] uncertain school opportunities for kids, culture shock for kids, uncertain ReLo

When I was a kid, we moved very often.  I went to two preschools, four primary schools and two highschools. My brother and I got used to being the new kids.  I think it was good for us.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
cariad
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What's past is prologue

« Reply #103 on: November 05, 2011, 12:00:26 PM »

UK Con: [...] uncertain school opportunities for kids, culture shock for kids, uncertain ReLo

When I was a kid, we moved very often.  I went to two preschools, four primary schools and two highschools. My brother and I got used to being the new kids.  I think it was good for us.
Thank you, Nat, this is unbelievably appreciated. Gwyn began tearing up when I read it to him. I told him that if our kids turn out anything like you, we'll count ourselves lucky.

Wanted to share these school photos of the kids. Keep in mind, we've been so distracted, we completely forgot about picture day, so the boys were not wearing their usual formal gear, and they had not even combed their hair properly. Aidan has told us he wants to grow his hair long, and we always tell him he's got 'soccer player hair', so he seems to like the look of the unkempt, flowing locks.

Anyhow, I was shocked to discover how great these pictures turned out. Aidan, who is gorgeous (and cannot stand the embarrassment of hearing this :rofl;) has never been particularly photogenic. This photo manages to capture what the world sees when they meet him face to face.

Liot was wearing his shirt that he painted with a water pistol on holiday. It would not have been my first choice of attire, but that mischievous glimmer of a smile could not be any more Elliot unless they were able to insert a microchip with him saying "No, Mommy, that's a brachiosaurus. See that bump on the top of his head?...." (He actually said this to me in Chicago, once again correcting my pitiful dinosaur ignorance. He was three.)

We can have the photos redone for free. I love the Aidan shots and don't think we could do any better. I may send Liot in with a nicer shirt, and hopefully they can work their magic with him twice.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #104 on: November 05, 2011, 12:29:25 PM »

Such handsome boys!!  :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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My two beautifull granddaughters

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« Reply #105 on: November 05, 2011, 01:12:34 PM »

They are BOTH great shots!  :2thumbsup;

Aleta
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"

« Reply #106 on: November 05, 2011, 03:25:09 PM »

So Adorable Cariad!  Thanks for sharing!  Good looking lads!!!!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
pitagory
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Sorry guys for my spelling and punctuation

« Reply #107 on: November 05, 2011, 07:43:48 PM »

Cariad your boys are super handsome and I would not do anything to change the pictures if any thing, I think that these kind of pictures where they are not all dressed up to take a picture, are the best ones. those are the ones that  will always have a grate story to tell behind it.
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CebuShan
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« Reply #108 on: November 06, 2011, 10:01:20 AM »

Aww, great photos!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
cariad
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What's past is prologue

« Reply #109 on: November 06, 2011, 04:08:24 PM »

Thank you, everyone! I love them to bits!  :thx;

Liot wants a haircut and his photo reshot, so we'll probably do that, but you're right, Pitagory - although these photos are so staged, the real kids shine through because we did not plan for this at all.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #110 on: November 07, 2011, 11:01:11 AM »

love the boys' pics!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
del
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del and willowtreewren meet

« Reply #111 on: November 07, 2011, 12:02:18 PM »

Great pictures!!
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monrein
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Might as well smile

« Reply #112 on: November 08, 2011, 04:32:34 AM »

I was so excited to see photos of the boys Cariad and even more so since having met you and Gwyn.  I was searching for bits of each of you in them and there they were! 

Thanks for sharing these with us.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #113 on: November 08, 2011, 05:09:31 AM »

Awww, I love school photots!  They're gorgeous, cariad.

 ;D
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
cariad
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« Reply #114 on: November 09, 2011, 11:53:08 AM »

You all are so sweet! The quickest way to a permanent spot in my good graces is to compliment my children! I never tire of hearing them admired.
 :thx; :thx; :thx; :thx;

Update: Gwyn signed an offer, so he is now employed again. He starts Monday. Yes, as in less than 5 days! They have promised to make allowances in these early months for him to fly back and forth as we pack up and get out of Milwaukee, hopefully for the last time!

It is not ideal, nothing about this is ideal, HOWEVER this did sort out better than we could have dared hope. I guess MM was right, the universe did actually send us a blessing in disguise, instead of the usual disaster that is too lazy to pretend to be anything else! Wonder of wonders! :yahoo; :yahoo; :yahoo; Because of Gwyn's severance agreement, he will draw two salaries for a brief while. This is just the symbolic Eff You he wanted toward the company that sacked him.

Oh, and now that he is employed again, I may as well pass along our amusing cautionary tale. After G was let go from the first company, he sent an email to his colleague with an Onion article that he said could be about his former boss. The satirical article was about a company director being discovered to be 'an asshole'. This email accidentally went to his friend's work email instead of her personal account, and was intercepted by HR at their former workplace.

So, not only are they paying G while he is working for and being paid by someone else, but he called his boss an a-hole and got away with it. Just remember, kids, never send anyone an email if you are not prepared to see all of that information eventually leak out to the world. This would have been devastating if he had made that mistake while still employed with them, so I've made him promise to never, never, ever do anything like that again.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
MooseMom
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« Reply #115 on: November 09, 2011, 11:58:30 AM »

Wait a minute...exactly where are you going?  Is it CA after all?  It's great news that he's found employment so quickly!  How are you feeling about this?  And the boys?  Have you all had time to really process all of this?   :clap;  Maybe it's best that you don't have time to think, only to DO!  This is fabulous news, congratulations to all of you!

Your boys look just like you and Gwyn!!  It's amazing!  Especially Liot!
« Last Edit: November 09, 2011, 01:20:43 PM by MooseMom » Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #116 on: November 09, 2011, 01:17:12 PM »

    :2thumbsup;    :yahoo;    :clap;   Congratulations on the job! Is it CA then? Just in time to avoid the midwest winter! Best of luck to you! If we can't meet before you leave, I'll be out there in July for my "decade" (class) reunion.
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
YLGuy
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« Reply #117 on: November 09, 2011, 09:21:48 PM »

Yes!  :2thumbsup;
I think you forgot to tell us the three most important things...Locatoin, location and location! (City & State)?
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Desert Dancer
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« Reply #118 on: November 09, 2011, 10:43:40 PM »

Update: Gwyn signed an offer, so he is now employed again. He starts Monday. Yes, as in less than 5 days! They have promised to make allowances in these early months for him to fly back and forth as we pack up and get out of Milwaukee, hopefully for the last time!

*GASP!* That was fast! (Though I bet it didn't seem that way to you.) Congratulations!!!  :yahoo;

And: WHERE, woman, WHERE???!!! Geez, it's like pulling teeth...
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
cariad
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What's past is prologue

« Reply #119 on: November 10, 2011, 11:13:37 AM »

Slight change in plans! (It's good, though.) Because we have this mediation appointment that we are trying to change to late November, Gwyn has requested that they not ask him to keep flying to and fro. Mediation may be changed to week after Thanksgiving holiday, or may be mid-December as it's currently scheduled. They want Gwyn to start on a Monday (no idea) and do not have the time to prep for him to start this coming Monday, so it has been pushed back all the way to December 5. We lose the week or two of salary, but for the extra time and breathing room, I think it is more than worth it.

And: WHERE, woman, WHERE???!!! Geez, it's like pulling teeth...
:rofl; :rofl; :rofl; :rofl; :rofl;
D'oh! Left that out, did I?
I think you forgot to tell us the three most important things...Locatoin, location and location! (City & State)?
So I wouldn't make much of a real estate agent!
City of :angel; :angel; :angel; :angel; :angel;
State of Chaos, Confusion and.... California.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
CebuShan
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« Reply #120 on: November 10, 2011, 01:21:14 PM »

    :bandance;    :bandance;    :bandance;   Hurrah! Someone else to visit (and an excuse to extend my trip!) when I go home next summer! Best of luck to you all!
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Desert Dancer
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« Reply #121 on: November 10, 2011, 01:45:53 PM »

So I wouldn't make much of a real estate agent!
City of :angel; :angel; :angel; :angel; :angel;
State of Chaos, Confusion and.... California.

YAY!!! We're gonna be neighbors, we're gonna be neighbors!  :bandance; :bandance; :bandance; :bandance;

Well, almost. It's just a five-hour drive!  :yahoo; I can come see you when I finalize my Italian citizenship! You can come to Phoenix and stay for a long weekend! It's all so good.

I know California's not your first choice (particularly LA, yuck), but it's gotta be for the best, right?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
monrein
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Might as well smile

« Reply #122 on: November 10, 2011, 01:51:35 PM »

OK, I'll admit it now....I've been holding my breath waiting for good news on the Gwyn job front and while I love the colour blue, as a complexion shade it's not the greatest.
I'm relieved that this offer is here, ideal or not.     :cuddle; :cuddle; :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
YLGuy
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« Reply #123 on: November 10, 2011, 04:13:13 PM »

The city of Angels!!!  :2thumbsup;
Around the weekend of April 20th next year Gwyn and the boys are welcome to come with me and my boys to a campout at Diaz Lake.  It will be about 100 fathers and sons catching fresh trout, riding quads and shooting guns in the desert. 
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willowtreewren
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My two beautifull granddaughters

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« Reply #124 on: November 10, 2011, 04:45:02 PM »

Oh, Cariad! I'm so very glad for all of you!

So you HAVE been able to rip the disguise off of this opportunity.  :2thumbsup;

I'm still trying to find the opportunity in this torn rotator cuff! LOL!  :bow;

 :cuddle; Aleta

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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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