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Author Topic: Going to ER  (Read 5038 times)
pagandialysis
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« on: September 28, 2011, 06:57:21 PM »
Missed my last dialysis treatment and it hurts to breath, my lungs feel heavy, and there is a crackle in them when I breath. So yeah, off to the ER.
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Dining on Dialysis - www.diningondialysis.com
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Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
sullidog
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« Reply #1 on: September 28, 2011, 07:13:56 PM »
Just curious why did you miss your last treatment? I know this doesn't have to do with the subject but per your signature KTV is a little low so it sounds like you aren't getting enough dialysis as well which maybe leading to some of your issues, good luck!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
lmunchkin
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"There Is No Place Like Home!"
« Reply #2 on: September 28, 2011, 07:18:53 PM »
Pagan, let us know what's up and if we can help.  Thinking of you!

God Bless,

lmunchkin

 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
okarol
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« Reply #3 on: September 28, 2011, 11:55:40 PM »
Oh no! I hope you're ok.  ???
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Poppylicious
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« Reply #4 on: September 29, 2011, 03:36:18 AM »
Hope you're okay, pagan.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
sullidog
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« Reply #5 on: September 29, 2011, 06:28:58 PM »
any updates?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
pagandialysis
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« Reply #6 on: September 30, 2011, 08:25:52 AM »
Well I am fine now it seems. Turns out I had too much fluid on me. It got hard to breath so I went to the ER. They kept me there for seven hours and then let me go at 5:30am. They told me to go to my dialysis treatment the next day. I loved the ER doctor. I said to him "So, I can hardly breath, when I lay down I can't breath at all, and your telling me to go home, go to bed, and good luck?" He said "Yeah, pretty much."

%$#@ that ER.

I know its my own fault....and as I was writing this my dietitian just gave me a lecture.
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
lmunchkin
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« Reply #7 on: September 30, 2011, 03:48:12 PM »
PaganD, don't feel bad about it.  Im sure alot of people here have missed a session or two.  They use to get on to J. too, when he wasn't doing what he was told!  You are not alone in this mistake, just don't miss very many more, cause you can see what trouble it causes you! 

Glad you are okay!

lmunchkin

 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Riki
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« Reply #8 on: September 30, 2011, 07:29:31 PM »
I don't know if anyone else has this problem, or if it's just me.  I don't miss treatments.. ever.. because missing a treatment, a clinic, or doing anything that hasn't been ok'd is considered non-compliance, and any act of non-compliance is grounds to be taken off the transplant list.  The doctors tend to hold this over my head, as I wasn't exactly compliant as a teenager.  You would think, considering that I was a teenager more than 15 years ago, they'd let up a bit.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
sullidog
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« Reply #9 on: September 30, 2011, 08:08:22 PM »
Yeah that er should of gave you dialysis, the er here does, or at least the one  I go to, after all that is the reason why you rent in the first place.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
rsudock
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« Reply #10 on: September 30, 2011, 10:41:19 PM »
Even though he didn't do anything you will still receive a bill!  :urcrazy;  :stressed;
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Riki
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« Reply #11 on: September 30, 2011, 11:46:27 PM »
If I went to the ER like that here, I'd probably be told the same thing.  There is no dialysis in the hospital, at least not yet.  They're still building it and say it should be ready in the spring.  I doubt they'd try to find someone to go into the unit that we do have after they've closed for the night.  I'd be told to go in first thing in the morning.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
pagandialysis
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« Reply #12 on: October 01, 2011, 01:19:53 PM »
Quote from: rsudock on September 30, 2011, 10:41:19 PM
Even though he didn't do anything you will still receive a bill!  :urcrazy;  :stressed;

I'm unemployed, they forgive whatever my insurances doesn't cover....so far at least.   ;D
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
sullidog
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« Reply #13 on: October 01, 2011, 06:19:42 PM »
If someones fistula clotted would they be like too bad as well? Some er doctors amaze me.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Riki
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« Reply #14 on: October 01, 2011, 07:31:53 PM »
Quote from: sullidog on October 01, 2011, 06:19:42 PM
If someones fistula clotted would they be like too bad as well? Some er doctors amaze me.

We have a vascular surgeon, who'd probably be called in for something like that..
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Adam_W
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« Reply #15 on: October 01, 2011, 11:27:08 PM »
Ahh, the old fluid overload. I had that happen a few months ago and I thought I was gonna die! It was so bad they kept me in ICU overnight and stuck me on a dialysis machine immediately. I also had to be on oxygen for over 24 hours. At the time I had normal urine output, and I never took off much on dialysis (I was also blessed to be off of dialysis for six months not too long before this happened), but the fluid snuck up on me. I'm a lot more careful now when it comes to fluid removal.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
sullidog
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« Reply #16 on: October 02, 2011, 03:12:55 PM »
Last time I was at the hospital they brought a guy in who wasn't on oxygen but was on a non rebreather, I've never had the fluid issue and hope I never do, it sounds horrible.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
dyann
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« Reply #17 on: October 02, 2011, 09:26:18 PM »
Very interesting  everytime I go to ER I am admitted  they say I am to complex of a case to send home  even though I have requested to go home,  I usually appreciate it that they don't because I am usually requiring some type of treatment,  and this might sound bad but sometimes its nice just having someone take care of me for once.  selfish huh
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MooseMom
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« Reply #18 on: October 02, 2011, 09:40:35 PM »
Quote from: dyann on October 02, 2011, 09:26:18 PM
...  and this might sound bad but sometimes its nice just having someone take care of me for once.  selfish huh

No, that's not selfish.  That's perfectly understandable, and it is also smart.  If they say you need to be in the hospital because your case is "complex", it's probably best to stay.  I think you probably know in your gut what is the right thing to do.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
sullidog
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« Reply #19 on: October 03, 2011, 06:21:31 PM »
Nope I enjoy the care too! Not selfish at all.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
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