Teepo18
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« on: September 22, 2011, 06:19:10 AM » |
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Ok guys just a quick one, everything is great creatine is now 103 but my kidney is working overtime. I'm constantly going to the toilet. Docs have told me to keep drinking as much as possible. Is this normal and how long will it take to settle down?
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Rerun
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« Reply #1 on: September 22, 2011, 07:27:46 AM » |
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My Neph told me to drink when I'm thirsty. Maybe start the morning out with a huge glass of water and keep water with you at all times so when you are thirsty you have immediate access. You know it is working everytime you see the liquid gold.
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Marina
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God Bless my donor family!! :)
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« Reply #2 on: September 22, 2011, 08:08:26 AM » |
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I was told to drink 2-3liters of of h2o on a daily basis. If we're drinking that much water it's the kidney's job to remove excess amounts. The more water we drink the lower the chances of having prograf (or any other drug for that matter) toxicity. If you feel you are peeing way too much, having urgency or burning sensation, then call your Dr it could be an UTI. Take care! Marina
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"Anything is possible, if you BELIEVE....." ~~~Joel Osteen
"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"
************************************************* Nov 1979 ~ Diabetes Apr. 2004- Nov 2010 ~ CAPD Nov 9, 2010 ~ Received the THE GIFT OF LIFE at California Pacific Medical center (CPMC) in San Francisco, CA
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paris
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« Reply #3 on: September 22, 2011, 08:35:59 AM » |
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I was told 75-100 oz. a day or more if I could get it down. Peeing a lot during the day is a good thing. At night, right after transplant, I would get up a couple of times. Now, 1 year post, I still get up once a night and the daytime is 8 +. If you don't drink enough, you may see a rise in your creatinine. Everything else going well? Are you healing ok? I've been thinking about you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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tyefly
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« Reply #4 on: September 22, 2011, 10:04:18 AM » |
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Ok ..... I admit it..... I kind of liked it when I didnt have to pee so much..... LOL I am drinking about 64 oz water a day...... I guess I could drink more..... pee more.... I do get up in the middle of the night but then I did that too when I was do dialysis at night.... still know where all the bathrooms are at all the stores..... I am not complaining..... it just that I dont seem to hold it like I use to.....must be a sign of the times as we get older...... life is still good.....LOL
I hope that it settles down....next spring when I am sitting in the kayak.... looking for bank access just to go pee....well.... I am thinking I am going to have to make a funnel thing or something to accommodate this frequent flow problem.....LOL
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IgA Nephropathy April 2009 CKD May 2009 AV Fistula June 2009 In-Center Dialysis Sept 2009 Nxstage Feb 2010 Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine. - John Muir
The clearest way into the Universe is through a forest wilderness. - John Muir
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Teepo18
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« Reply #5 on: September 22, 2011, 10:41:05 AM » |
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Ahh well that's put my mind at rest. I'm actually just waiting for my uncle to come pick me up. Not bad eh for just 6 days in hospital I'm still very sore and it's very painful to walk but I'll be better once home. More sleep will help along eh. Thankgod I'm not on prednisolone wooo. So happy that was the one med I didn't want.
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Deanne
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« Reply #6 on: September 22, 2011, 02:42:56 PM » |
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If it's really that constant/seems abnormal, it might be worth getting your blood sugar checked, too. Prednisone made me diabetic. One of my symptoms was that I was constantly peeing.
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis) 1994: Diagnosed with FSGS September 2011: On transplant list with 15 - 20% function September 2013: ~7% function. Started PD dialysis February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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coravh
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« Reply #7 on: September 22, 2011, 02:56:51 PM » |
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Part of the problem, especially at the beginning for most of us is that our bladders shrank when we were producing less urine (if any) while on dialysis. I know that I was getting up 2 and 3 times during the night to pee initially. Eventually my bladder stretched back to normal and I was able to hold it longer and not have to get up.
Cora
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willowtreewren
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« Reply #8 on: September 22, 2011, 03:45:06 PM » |
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Another factor is that the stent may make you feel the urge to pee more often. It does get better! Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.
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Teepo18
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« Reply #9 on: September 23, 2011, 12:52:15 PM » |
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Well it seems to be calming down now. My Bladder must be tiny because I didn't pass much before so hopefully will get better. Why do people stay on prednisone? I was only on it for 5 days an then they stopped it? I'm only on 2 other anti rejection drugs and they ate prograf and errr something else I can't remember lol myforrtic?
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C904
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« Reply #10 on: September 23, 2011, 06:22:56 PM » |
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I was told to drink 2-3liters of of h2o on a daily basis.
If we're drinking that much water it's the kidney's job to remove excess amounts. The more water we drink the lower the chances of having prograf (or any other drug for that matter) toxicity.
If you feel you are peeing way too much, having urgency or burning sensation, then call your Dr it could be an UTI.
Take care!
Marina
The part of the post about drinking enough water to try and avoid drug toxicity should be the mantra for anyone who has a transplant. When I was in the hospital they really stressed this over and over. It can be a pain because the water does tend to go through you very quickly, but it is so necessary to keep that kidney as healthy as possible.
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Poppylicious
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« Reply #11 on: September 26, 2011, 07:50:02 AM » |
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Thankgod I'm not on prednisolone wooo. So happy that was the one med I didn't want.
... This is the one med that Blokey is really fretting about being back on after transplant so this post has given me hope that maybe (just maybe!) he won't need to be on it. I'm so pleased you're peeing lots! Hope you're recovering well at home.
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jbeany
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« Reply #12 on: September 26, 2011, 09:10:27 AM » |
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It does get easier - and at 2 years out, I usually sleep through the night.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
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