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| | |-+  why do some transplant patients still need epo?
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Author Topic: why do some transplant patients still need epo?  (Read 3180 times)
sullidog
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« on: September 13, 2011, 05:40:11 PM »

Just curious of why some transplant patients still need epo? I know some take it for the life of the transplant.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Marina
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« Reply #1 on: September 13, 2011, 09:03:12 PM »

Just curious of why some transplant patients still need epo? I know some take it for the life of the transplant.

The  explanation  I got  from  TX  center  was  that   since our  immune  system  is  so  supressed,  it might  prevent  the bone  marrow  from  making  enough red  blood  cells.
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Chris
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« Reply #2 on: September 13, 2011, 09:58:53 PM »

When I am hospitalized, sometimes I do get epo shots. So it can be how your body is reacting to something.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
coravh
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« Reply #3 on: September 14, 2011, 09:03:11 AM »

There are several reasons. It's just like some folks get off all their bp meds, and some don't. I no longer take any meds for blood pressure (it's actually low) but I've always needed the epo. Some get a full "recovery" and some do not.  Some of the tx drugs also cause anemia, so that could be part of it too.

Cora
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RichardMEL
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« Reply #4 on: September 21, 2011, 05:03:23 AM »

Right after my tx my hb dropped to like 72 (7.2 US)  -very low. They gave me a couple of shots of aranesp to "kickstart things"(yes, I thought of our member :) ) because they claimed sometimes it can take some weeks or months for the body to get back to normal and start producing everything in the right amounts. I only needed a couple of shots, but it still took prob a month before hb got up to normal type levels (stable ever since around 125). Sio that can also be a reason.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
natnnnat
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« Reply #5 on: September 21, 2011, 06:13:30 AM »

Gregory is on aranesp every week now because his haemoglobin is low these days.  His 20 year old kidney transplant might not be working as well as it used to.  Creatnine was 220 last time they checked, which is great, down from his normal which is around 260.  Gregory is lying here talking to me as I type and he's noticed all the emoticons.  He's laughing because there's a dancing banana.  Should be a dancing kidney he says. 
 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #6 on: September 21, 2011, 06:20:44 AM »

After transplant my hemoglobin was 8.4... one shot of epo and a IV iron and a three weeks  and I am not up to 10.1....  feel   way better.....  still shooting for 12 or 13 .....  I want more energy   thank you .......LOL
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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The clearest way into the Universe is through a forest wilderness.
- John Muir
renalpenguin
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« Reply #7 on: September 21, 2011, 06:33:27 PM »

I got "Ned" the kidney fifteen months ago tomorrow, and at surgery, I had a lot of internal bleeding. My hemoglobin was 5.0 (US- I don't know about anywhere else) with hematicrit at 15. For the first ten days (while I was inpatient), they gave me Aranesp and blood transfusions to help. For the past fifteen months, I've been between 8.0-10.5 hemoglobin... I'm a 19-year-old female, so once I month I lose quite a bit, usually to regain it and lose it again. My kidney is working great, but I just started Aranesp to see if we can get it to a more normal range, since I've never really built back to normal since transplant.

I haven't been on here for a while because I've actually been busy!  :)  Not that I'm not busy anymore, but now that I've finally gotten into the schedule of college (at my local community college) I have time to hang out here! And after fifteen months Ned the kidney is still going strong, against all odds, with no FSGS recurrence! ;D
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
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