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Author Topic: Sean Michael's birthday  (Read 3303 times)
paris
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« on: August 31, 2011, 08:07:19 PM »

1 year ago right this minute, I was in the surgical room; about to receive the greatest gift ever.  The kidney wasn't placed into my body until after minute so the official anniversary is Sept 1st.  I have been thinking of the donor family all day.  They are marking this day too, but it isn't a happy day for them.   Looking back over the past year, I can hardly believe how much I have changed.  It still is surreal.  I have been able to go and do things I haven't done in years.   Thanks to all who kept encouraging me. All of you who held my hand in the bad times and celebrated with me on Sept 1st --- I love you all.  "Sean Michael" continues to do well. I take care of him and he takes care of me.   :2thumbsup;   This has been the most humbling experience one could ever have. 

Now who's turn is it?   It was never suppose to be me ---- so I hope no one ever gives up.  God bless donors and their families.  And God bless IHD!!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
cariad
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What's past is prologue

« Reply #1 on: August 31, 2011, 08:22:19 PM »

Wow, already??

 :birthday; to the special little bean!

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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
edersham
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« Reply #2 on: August 31, 2011, 08:32:45 PM »

Paris,

I am so pleased how your year has gone.  You totally deserve every great moment you have experienced. Our post transplant experiences have been so similar I completely understand the joy of those experiences and wish you many, many more years of this.

Ed
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jbeany
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Cattitude

« Reply #3 on: August 31, 2011, 08:42:25 PM »

 :grouphug;

I hit my 2 year just a couple of days ago.  Amazing, isn't it?   :beer1;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: August 31, 2011, 09:08:28 PM »

 :cheer: HAPPY  :cheer: KIDNEYVERSARY!  :cheer:
Best wishes for many more happy years together!
 :flower;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rodneyss1
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« Reply #5 on: August 31, 2011, 09:50:31 PM »

Congratulations on you anniversary!!!!  May you have many more to come.  It will be my turn come September 9, and I'm hoping we can both celebrate our anniversaries together. May God bless you for many years to come!
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Diagnosed with FSGS- 2003
End Stage- December 2010
Dialysis Journey Started- December 2010
Transplant List- December 2010
Living Donor Transplant Non-Related Surgery at St. Vincents (Indianapolis)- September 9, 2011
***Living life like its Golden***
paris
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« Reply #6 on: September 01, 2011, 08:07:01 AM »

Congratulations on you anniversary!!!!  May you have many more to come.  It will be my turn come September 9, and I'm hoping we can both celebrate our anniversaries together. May God bless you for many years to come!

I am thrilled for you!  A couple of tips -- I wish I had brought some chapstick with me. The hospital was so dry and my lips got very sore. Also some hard candies. I was there for 12 hours before surgery with no food or drink. A life saver would have been nice!    They asked if I wanted to see my new kidney before they put me completely under --I said yes.  And there it was , in a stainless steel bowl sitting on ice.  So ask if you can see yours.     Wear their hospital gowns --the drainage bag at the surgical site tends to leak and it leaves stains.  I knew there would be lots going on, but when you wake up with lines coming out all over, you feel a tad bit Frankensteinish!!    Truly the most amazing thing that can ever happen to you.  You're in my thoughts and prayers.  Stock your house with lots of water, juices, milk, etc.  You're going to be drinking all the timea!!!    :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile

« Reply #7 on: September 01, 2011, 09:12:27 AM »

 :flower; :flower; :flower; :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Marina
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God Bless my donor family!! :)

« Reply #8 on: September 01, 2011, 09:49:19 AM »

Paris,   
  :bandance;   so happy  you  reached your  one  yr  milestone  and  there  will be  many more  to  come,  so  be  ready to  celebrate them  all  (don't  forget to  include us   :)  )


I'm  already  10 months  out,     so  hard  to  believe!!!


Live it  up!!!   :yahoo;
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Darthvadar
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« Reply #9 on: September 01, 2011, 10:23:54 AM »

Congratulations, Paris... Here's to many more years with Sean Michael...

Thinking of and praying for the donr family...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Rodneyss1
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« Reply #10 on: September 01, 2011, 03:43:00 PM »

Paris, drinking all the time?????  Thats a big change....a welcome change!  Thanks for all of the advice :bandance;
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Diagnosed with FSGS- 2003
End Stage- December 2010
Dialysis Journey Started- December 2010
Transplant List- December 2010
Living Donor Transplant Non-Related Surgery at St. Vincents (Indianapolis)- September 9, 2011
***Living life like its Golden***
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: September 02, 2011, 12:03:17 AM »


They asked if I wanted to see my new kidney before they put me completely under --I said yes.  And there it was , in a stainless steel bowl sitting on ice.  So ask if you can see yours.     

And take a photo, or ask the doctor or nurse to, if they are willing. I think it would be cool to frame a photo of your new kidney.  :pics;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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