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hurricane
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« on: August 28, 2011, 12:38:10 AM »

Hi, my name is Carol and I have a daughter who has just recently developed problems with her kidneys. We don't know why but she has had a lot of kidney infections in the last few years. She is 25 years old. She isn't on dialysis, and I hope she won't need it but I joined this forum so I would be prepared for it if that time comes.
Another interesting thing about me is that I have a cousin who works for an organization that matches donors with people waiting for transplants, but I hope we will never need to use her organization.
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monrein
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Might as well smile

« Reply #1 on: August 28, 2011, 05:26:09 AM »

 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: August 28, 2011, 10:56:45 AM »

Hi, Carol.

 :waving;

I also hope your daughter never needs dialysis, but you are wise to become informed!

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"

« Reply #3 on: August 28, 2011, 10:01:29 PM »

Welcome, Hurricane, and you are very Wise to try to prepare for the "possibility" of her doing D.  How very brave of you to arm yourself with knowledge of this disease!  Hopefully, it will not be, but at least you will be prepared if it should come to this! So many on this forum had no warnings whatsoever and had to absorb so much in little time!

We thank you for being the Loving mother that you are!  It is hard when you see your child go through this, and it is our "instincts" to protect or shelter at all costs! Your love is so evident in your post and the "fear" also! And though I hope she never does D., if she has to, then it is not the end of the world!  D. is doable and it is just a thing one must do in order to live! IHD is a fantastic site to learn all things Dialysis. I was so thankful to have found it, hope you will find it helpful also.

I pray she doesnt have to do Dailysis

lmunchkin     :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
YLGuy
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« Reply #4 on: August 28, 2011, 11:18:43 PM »

 :welcomesign; Welcome Carol!  This site has a lot of very good information.  Not only about once kidneys have failed but also lifestyle changes that may prolong the time before needing dialysis.  Your daughter and you are in my thoughts and prayers tonight.
Marc
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Ang
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« Reply #5 on: September 03, 2011, 02:40:15 AM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
CebuShan
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« Reply #6 on: September 07, 2011, 05:53:54 PM »

    :welcomesign;

Glad you had enough warning to be able to do some research!


Again, welcome to the family!   :grouphug;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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