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Author Topic: High creatinine levels  (Read 2996 times)
Shona_
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« on: August 24, 2011, 08:17:51 AM »

I am on PD and creatinine levels are above 1300... They're running tests etc but the nurse said today it might be due to being active/mobile

Has anyone else experienced this?
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willowtreewren
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« Reply #1 on: August 24, 2011, 08:39:24 AM »

Have you been doing "strenuous" exercise? If so, that CAN cause your creatinine to rise temporarily.

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
Shona_
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« Reply #2 on: August 28, 2011, 01:33:01 PM »

Thanks for the reply but no, I am pretty lazy!!

Haven't done proper exercise in donkeys!!
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Cordelia
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« Reply #3 on: August 28, 2011, 02:10:57 PM »

Apparently not drinking a lot of water (being dehydrated) can even cause creatinine levels to increase too.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
mcclane
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« Reply #4 on: August 28, 2011, 03:53:24 PM »

how long have you been on pd ?

is this the first time your creatine levels are that high ? 

not to alarm you, but starting last year (around sept - oct) my creatine levels were creeping up towards the high side (i was on pd, cycler), then in mid - late march of this year, they told me with a creatine level of around 1000, my membrane gave up the ghost.  My nephorlogist jokes "people with 1000 creatine level, i would strongly recommend dialysis, but you're already on dialysis !"

I hope it is just a blip and things go back to normal for you.
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Willis
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« Reply #5 on: August 28, 2011, 04:01:34 PM »

Maybe my doctors are crazy, but I was told by two nephrologists independently that my creatinine level didn't matter once I started dialysis as long as all the other numbers were OK. When going over my labs each month my current neph doesn't even mention my creatinine level...

 
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Shona_
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« Reply #6 on: September 07, 2011, 09:06:27 AM »

Thanks for all your replies.

Got my PET test results back and am a low transporter. I'm dialysing at around 75% (apparently as long as its above 60% we're good...)

Who knows...
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Lillupie
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« Reply #7 on: September 07, 2011, 11:22:54 AM »

Apparently not drinking a lot of water (being dehydrated) can even cause creatinine levels to increase too.

I believe this because my creatinine level has been as high as 17! Yikes.
 I know. I am not a big person. I am only 4'11". I do have a problem with being dehydrated on PD.

Lisa
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sullidog
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« Reply #8 on: September 09, 2011, 09:34:51 PM »

what's your KT over V?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
mykey711
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« Reply #9 on: September 11, 2011, 04:54:35 PM »

mine is 1.91. They want it over 2.0
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I'm a 58 year old Family doctor with Alport's syndrome. I've been on PD for almost a year. I've been on transplant list since May 2010 at three centers, Michigan, Cleveland, and Indiana.  My brother has the same disease and is on his second transplant for about 12 years now.
sullidog
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« Reply #10 on: September 11, 2011, 05:43:05 PM »

not bad but I think it could be better, but that is my oppinion.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
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