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Author Topic: Transplant people and other things  (Read 1967 times)
pagandialysis
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« on: August 15, 2011, 09:52:03 PM »

Today was my dreaded appointment to see the mysterious ~spooky voice~ “Transplant People”. I had no clue who they were until today. I had only gotten pre-made form letters from them once in a while. When I got to the building, which I had already been to a thousand times before, I noticed the room number on the form. It was the same office I had gone to before I started dialysis. Needless to say I was a bit annoyed but oh well, at least I already knew them. The kidney transplant orientation was short and boring and full of things I already knew.

Then I got to talk to the same doctor who diagnosed me with IgA and as it turns out she will be my transplant surgeon. This is not to say that I am on the waiting list yet. I still have some workups and some fillings to get done first.

The real reason I am writing tonight is because I feel horrible. I feel hot but I am not running a fever, I'm at 98.3. My heart is bothering me. I assume its because I forgot to take my second round of heart meds tonight so lets hope I'm not going to have a heart attack. Unfortunately, for me I have not had a dialysis treatment since last Tuesday....darn medical transport people. I feel horrible and just don't want to go to the E.R.  :(
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
MooseMom
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« Reply #1 on: August 15, 2011, 10:10:58 PM »

You've gone a week without dialysis?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
pagandialysis
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« Reply #2 on: August 15, 2011, 10:21:49 PM »

That's right.
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
MooseMom
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« Reply #3 on: August 15, 2011, 10:23:03 PM »

And you're wondering why you feel horrible?  I think I may have a clue... :secret;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
pagandialysis
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« Reply #4 on: August 15, 2011, 10:23:56 PM »

I guess there are symptoms that they didn't tell me about then.
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
Chris
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« Reply #5 on: August 15, 2011, 11:09:39 PM »

I'd be calling Medical Transport's manager or someone above if they are not picking you up. Calling them a couple hours before you need to be at your dialysis center to make sure they are coming and take down their name so if they do not come on time or do not show and you miss dialysis again, heads can roll because they have put your life at risk. If they do not show Tuesday, go to the ER or there won't be a need for a transplant if you get my drift. Then after the ER, chew the heck out of the transport company and possibly search for a new one..
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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Cattitude

« Reply #6 on: August 15, 2011, 11:13:19 PM »

You need to know more than the fact that toxins are building up as we speak?  How about that, on average, a person who stops D may not last longer than 2 to 5 weeks?  High potassium levels can stop your heart much faster than that and you are already having heart symptoms!

As a concerned fellow IHD member - GET YOUR BUTT TO THE ER!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

monrein
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Might as well smile

« Reply #7 on: August 16, 2011, 03:56:08 AM »

I hope you're at the ER and not reading this.  Very serious situation.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!

« Reply #8 on: August 16, 2011, 04:03:24 AM »

The transport team needs to be reminded that dialysis is a lifesaving treatment.  Ours comes even when the rest of the city is shut down for a blizzard.  Do you have a friend who can get you there today??

 :(
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Chris
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« Reply #9 on: August 16, 2011, 12:40:32 PM »

Just thought of this, if you were at my transplant center, they do labs on all that come for the seminar and you would have been put in the ER or sent to the dialysis department that day. As others have stated, I hope you are getting dialyzed today.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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