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Author Topic: just back from 3 weeks in the UK  (Read 7336 times)
yliebert
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« on: August 07, 2011, 03:03:44 PM »

 My Hubby is on nocturnal hemo with a NXStage cycler.  We just returned from a 3 week trip to the UK, 2 Nights in Southampton, 12 nights on board the Crown Princess and 5 nights in London.  The customer service people at Kimal, the UK affiliate of NXStage were fantastic. They made certain that all of our fluids, cartridges and sharps containers were delivered in advance to each location.  We ha a mini suite aboard ship so there was plenty of room to maneuver.  They kept our boxes in the hold and brought them up as we needed them.  My only suggestion  would be to make certain you inventory all the boxes prior to departure.  We think they accidentally tossed a box of cartridges, so we had to call London to get replacements.  Kimal was great about it and had a new box at our next port of call.  As long the hotel has an elevator you can certainly travel with a cycler.  :bandance;
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MooseMom
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« Reply #1 on: August 07, 2011, 03:20:29 PM »

Oh, thanks so much for posting this!  My son lives in London, and my biggest nightmare has always been that he might need me and I couldn't come because I was stuck here in the US on dialysis.  Once I start D, I plan to use NxStage, and I was aware that it was just recently available in the UK, but I didn't know any more than that, so your post gives me a lot of info.

What did you do about plugging in the cycler?  Did you have to use a converter and an adaptor?  How does that work?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
yliebert
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« Reply #2 on: August 08, 2011, 08:54:20 PM »

Before we left the US we bought a power strip with an English plug on the end the fits into the wall and universal sockets on the bar where you plug everything in.  I think Hubby bought it on line.  It was great because we could plug in everything, the cycler, the computer, our phone chargers and my curling iron.
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Bill Peckham
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« Reply #3 on: August 08, 2011, 09:24:59 PM »

What did Kimmel charge?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
yliebert
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« Reply #4 on: August 10, 2011, 11:36:03 PM »

Kimal charged nothing
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Bill Peckham
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« Reply #5 on: August 11, 2011, 07:26:13 AM »

Kimal charged nothing

I'm confused - Kimmel gave away the dialysate?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
yliebert
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« Reply #6 on: August 13, 2011, 08:18:11 PM »

We have been home for 2 weeks and I haven't received a bill.  I suppose it's possible that we were a test case for them, but they arranged everything, including pickups for our sharps containers.
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Bill Peckham
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« Reply #7 on: August 13, 2011, 08:38:24 PM »

We have been home for 2 weeks and I haven't received a bill.  I suppose it's possible that we were a test case for them, but they arranged everything, including pickups for our sharps containers.


Was your unit billed? Did you remain on your home unit's patient rolls while you were traveling?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
yliebert
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« Reply #8 on: August 14, 2011, 04:25:35 PM »

I don't know if my unit was billed.  I ceretainly never gave them that info.  The customer service manager said he would arrange everything with NXStage and he did!
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Bill Peckham
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« Reply #9 on: August 14, 2011, 10:04:02 PM »

I don't know if my unit was billed.  I ceretainly never gave them that info.  The customer service manager said he would arrange everything with NXStage and he did!


The only way this makes sense to me is if your home unit continues to keep you on their patient roles and NxStage is willing to organize dialysate delivery in the UK just as they would if you were traveling to a destination in the US.


That would be fantastic news - it would be the normalization of holiday travel to Europe, with the rest of the world hopefully soon to follow.

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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
texasstyle
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« Reply #10 on: August 15, 2011, 12:24:29 PM »

goes to show that yes, you can still live life!
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caregiver to husband using in-center dialysis 4 years
yliebert
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« Reply #11 on: August 15, 2011, 06:20:09 PM »

Absolutely!!  As you know if you read my old posts, I was originally planning on shipping all the liq
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yliebert
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« Reply #12 on: August 15, 2011, 06:37:10 PM »

Sorry about that, I think I accidentally hit post.  I originally planned on shipping the liquids, but the cost was astronomical. I continued to dig on the Kimal site for an actual person to email, rather than just customer service.  When I found a name with email address I explained what I was trying to do.  The rep I spoke with said it should be no problem and that he would contact nexstage for payment.  I told him that wouldn't work because they take payment only from Medicare (that's why we can't pay them to ship dialysate out of the US).  He said not to worry, that he would speak with them and at most there would be a nominal fee.  I realized that we stayed on the rolls at our home center, because after we got home we had to send them our logs (that's how they get payed)  Also, they supplied everything except the saline and the dialysate.  We took a suitcase of supplies with us.  I Made labels that said Life Sustaining Medical Equipment so the airlines wouldn't charge us for the extra bag.
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jbeany
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« Reply #13 on: August 15, 2011, 07:20:35 PM »

Going off-topic for minute...
yliebert, if you accidentally post something or see something in a post you typoed - just hit the little blue modify button in the upper right of that post - it lets you edit it.

jbeany, Moderator

Okay, tips and hints detour over - back on topic.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

yliebert
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« Reply #14 on: August 15, 2011, 08:50:54 PM »

Thank you
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yliebert
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« Reply #15 on: August 15, 2011, 08:52:18 PM »

I just typed "thank you, but didn't see a "blue modify button"
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Bill Peckham
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« Reply #16 on: August 15, 2011, 09:53:14 PM »

upper right corner of your message? next to the quote button?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
yliebert
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« Reply #17 on: August 15, 2011, 11:41:51 PM »

got it, thanks
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jbeany
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« Reply #18 on: August 16, 2011, 11:02:11 AM »

It only shows after the message is posted.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

amanda100wilson
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« Reply #19 on: November 09, 2011, 02:35:48 PM »

I'm  living in the US but am from the UK.  I have recently started HHD using NxStage.  Not having been back home for a couple of years we are anticipating a visit next year.  Just wondered who you contacted at Kimal to get the fluid set up so that it was billed to the unit?  I really don't understand why it can't be covered whether you are or aren't in the country.  After all, you would be using the supplies if you were at home during that period.

If you have a secondary insurance, if Medicare don't pick up the tab for the fluids, would the secondary insurance do so?
« Last Edit: November 09, 2011, 02:37:47 PM by amanda100wilson » Logged

ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
yliebert
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« Reply #20 on: November 30, 2011, 09:21:50 PM »

I sapoke with Jonathan Thornycroft at Kimal UK.  Yes, we also have other insurance....Kaiser Permanente. :flower;
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amanda100wilson
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« Reply #21 on: December 31, 2011, 01:37:37 PM »

Thanks for theinfo.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
amanda100wilson
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« Reply #22 on: January 03, 2012, 01:34:57 PM »

One more question.  What transformer (manufacturer, model no. Etc.) did you use to step down the voltage for your machine?  We have one for when we used to travel to the UK with my PD machine, but the machine would never work properly and we would have to get a temporary replacement from Baxter in the UK which wasn't a problem, but I think that this would not be possible with Kimal/Nxstage.   (From  my talking to a fellow NxStage user I understand that if your machine goes belly-up when you are overseas you can't get a temporary replacement and would then need to get emergency in-unit dialysis for the remainder  of your vacation).
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
yliebert
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« Reply #23 on: January 09, 2012, 12:10:44 PM »

The nxstage doesn't need a transformer, just a plug adaptor.  We used a Wonpro model WE - 4A X series that we bought on-line. It's a power strip with 6 universal outlets.  It worked very well and was well worth the money.  Also, be certain to let your unit know well in advance of travel as they will reserve the cycler airline travel case for you.
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amanda100wilson
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« Reply #24 on: January 09, 2012, 05:11:24 PM »

Oh, I thought that either you or your unit needed to purchase one?
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
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