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Author Topic: I just saw the surgeon...  (Read 1872 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« on: July 19, 2011, 01:13:32 AM »
I just got over pancreatitis from last month. I was advised that I have a 2.2 cm mass growing on my right kidney. I saw the urologist who told me based on my history it is probably kidney cancer. The next step is for the surgeon to speak to my general practitioner and neph about the benefits/risks of a partial nephrectomy vs. a radical nephrectomy.

I feel overwhelmed by all of this news. If they do the radical nephrectomy, I will have no kidneys and absolutely no kidney function.

I just wanted to vent... so thanks for reading.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Ang
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« Reply #1 on: July 19, 2011, 02:10:03 AM »
for my  :twocents; for me i;d go radical, because if it is kidney cancer i'd want it all removed.

over a 2 year period i had both kidneys removed.

only downside was the fluid or lack of
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live  life  to  the  full  and you won't  die  wondering
monrein
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Might as well smile
« Reply #2 on: July 19, 2011, 05:18:15 AM »
Mikey, I'm so so sad to read this news.  I'm thinking of you and only wish that that helped in any way at all.     :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boswife
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us and fam easter 2013
« Reply #3 on: July 19, 2011, 07:27:25 AM »
Is there anything else it could be?  Im sorry for this news as it is always scarry to get any news of 'mass' of any sort.  Wishing you well, sending  :grouphug; and prayers for health... 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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« Reply #4 on: July 19, 2011, 08:14:47 AM »
Mikey, so very sorry, it's awful news. Will they biopsy first? I hope you get some answers soon.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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« Reply #5 on: July 19, 2011, 08:22:13 AM »
Wow, shocking and overwhelming to say the least. If it does require the nephrectomy, you may want to read Bill Peckham's experiences with kidney cancer and nephrectomy. I am sure there would be loads of helpful information there, and may alleviate some of the fear as well.

So sorry this has come up, Mikey. You are in my thoughts.  :grouphug;
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MooseMom
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« Reply #6 on: July 19, 2011, 03:50:40 PM »
May I ask, what is it about your history that makes the doc suspect it is cancer?  Apologies for my ignorance.

I imagine you felt the world just stop when you heard that news. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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