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tyefly
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This will be me...... Next spring.... I earned it.

« on: July 14, 2011, 11:42:48 PM »

Ok  who has vacations planned this summer... anyone going camping.... I have made reservations at a lake only 1.5 hours away... Iam going every week for three days...  bought a kayak, going fishing and hiking....  then I will come down off the mountain and dialysis for 4 days straight....  I think I will be just fine.... hope the fish are biting..   The place I choose has cell phone reception so if I do get that call for a transplant .... I will beable to get there....  This is going to be fun.... first camping I have done in two years.... I use to go all summer long.... for most of my life....  I sure have missed it..... 

So what is everyone else doing this summer..... lets talk vacation or trip or adventures.....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Riki
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« Reply #1 on: July 16, 2011, 01:18:20 PM »

We can't really afford anything big this year. It's starting to look like our trip to New York in October is out, and it's causing me a lot of anxiety, because I really really want to see my friend, Kelly.  We've been doing some little things, though.  I made Mom take me to Moncton in June, so I could see Stephen Sondheim's Company in the theatre. Last Thursday, we went to Moncton again to see INXS, which was pretty cool.  Moncton is only a 2 and a half hour drive away, so we can go to something there and come home the same night.  There's a zoo there that I'd like to go to, and across the street from the zoo is a water park that I wouldn't mind going to, if it ever warms up.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: July 18, 2011, 09:08:03 PM »

I went to Las Vegas for a kidney thing last weekend. Then came home for one day and went to Idaho for a week with my mom. Got to know my cousin's kids, she has 6 and they are fabulous. I don't have any other plans to travel but will drive to the beach a couple of times, and do some local hikes.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Cordelia
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« Reply #3 on: August 18, 2011, 05:43:03 PM »

Yup, Me, I'm going away on a camping trip way up north where da bears are LOL     :rofl;

I can't wait!     :yahoo;     :2thumbsup;     :bandance;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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