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This will be me...... Next spring.... I earned it.

« on: July 14, 2011, 11:42:48 PM »

Ok  who has vacations planned this summer... anyone going camping.... I have made reservations at a lake only 1.5 hours away... Iam going every week for three days...  bought a kayak, going fishing and hiking....  then I will come down off the mountain and dialysis for 4 days straight....  I think I will be just fine.... hope the fish are biting..   The place I choose has cell phone reception so if I do get that call for a transplant .... I will beable to get there....  This is going to be fun.... first camping I have done in two years.... I use to go all summer long.... for most of my life....  I sure have missed it..... 

So what is everyone else doing this summer..... lets talk vacation or trip or adventures.....

IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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« Reply #1 on: July 16, 2011, 01:18:20 PM »

We can't really afford anything big this year. It's starting to look like our trip to New York in October is out, and it's causing me a lot of anxiety, because I really really want to see my friend, Kelly.  We've been doing some little things, though.  I made Mom take me to Moncton in June, so I could see Stephen Sondheim's Company in the theatre. Last Thursday, we went to Moncton again to see INXS, which was pretty cool.  Moncton is only a 2 and a half hour drive away, so we can go to something there and come home the same night.  There's a zoo there that I'd like to go to, and across the street from the zoo is a water park that I wouldn't mind going to, if it ever warms up.

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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Photo is Jenna - after Disneyland - 1988

« Reply #2 on: July 18, 2011, 09:08:03 PM »

I went to Las Vegas for a kidney thing last weekend. Then came home for one day and went to Idaho for a week with my mom. Got to know my cousin's kids, she has 6 and they are fabulous. I don't have any other plans to travel but will drive to the beach a couple of times, and do some local hikes.

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #3 on: August 18, 2011, 05:43:03 PM »

Yup, Me, I'm going away on a camping trip way up north where da bears are LOL     :rofl;

I can't wait!     :yahoo;     :2thumbsup;     :bandance;

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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