A step by step PD experience!!!

[tbarrett2533]

8-25-11

Just a quick little update:

I have been filling with the 1500ML and no pain, shortness of breathe 

Recently though (since yesterday) I am absorbing like crazy!!!

Today went like this
1.  1200Ml
2. 1400ML
3.  1500ML
4.  1400ml
5. will be done at 11pm. 

Now, I do 4 exchanges a day however, I decided to do 5 today with all Greens to see if this helps 


What I do not understand is why I am absorbing all of a sudden??

Answers anyone??
tips??

prior to yesterday my total UF's were 1500ml-2500ml then this crap I don't get it, any advice on this would be great!!

I have my first clinic visit tomo at 1pm  and you can bet that I will be talking about this

I just hope that I can continue to do PD as long as possible... I gotta say at first I thought that this was a HUGE burden in my life, but now it has just become a part of my life and I do not stress over it anymore!!!

until next time
 

[tbarrett2533]

Bill,

I love it!!! I hope and pray that I can continue to do PD until Transplant!!!!
How are things going for you?

I have had some personal things going on in my life and IHD has takin a backseat, so I have not been reading anything on here.... I feel like I am having withdrawls 

Give me a quick update... you should be training by now??
did you do any flush's??
any exit site problems??

[drgirlfriend]

  So glad things have smoothed out for you! Good to hear! My boyfriend started absorbing earlier this week and it turned out that his seemingly minor constipation was the culprit. Once things started flowing, things started flowing! Hope your answer is as simple.

Be well lady!

[wbdoug]

Good to hear from you!!! You hadn't posted for awhile and I was a tad worried.

Bill

NOTE: You posted while I was typing the above responce

Exit site looking good----Been flushed 3x and working O.K. I start training on Monday

[tbarrett2533]

Good to hear from you!!! You hadn't posted for awhile and I was a tad worried.

Bill

NOTE: You posted while I was typing the above responce

Exit site looking good----Been flushed 3x and working O.K. I start training on Monday

Are you doing baxter? if so... its a cake walk!!

I know you are not excited about starting the D, but it will just become a part of who you are 

Keep us posted on here.......

I can't wait to hear how training goes for you.......

 

[tbarrett2533]

  So glad things have smoothed out for you! Good to hear! My boyfriend started absorbing earlier this week and it turned out that his seemingly minor constipation was the culprit. Once things started flowing, things started flowing! Hope your answer is as simple.

Be well lady!

as soon as I read this I literally took of running to the bathroom to take two stool softners 

these last few days I have had a lot of personal CRAP going on and it turns out that I "forgot" that I have not gone to the bathroom for about 2 days 

I hope this works!!

thanks so much!!!

[Willis]

Recently though (since yesterday) I am absorbing like crazy!!!

Today went like this
1.  1200Ml
2. 1400ML
3.  1500ML
4.  1400ml
5. will be done at 11pm. 

Now, I do 4 exchanges a day however, I decided to do 5 today with all Greens to see if this helps 

So I assume you've been using yellows (1.5%)? I can't use yellows or I absorb like crazy. I may keep one box of yellows on hand, but they are worthless to me. Even greens are a bit weak for me...since I'm on a cycler I can use 1 red and 1 yellow which has a net effect of slightly more strength than greens...I figured something like 2.8%. On CAPD I guess you can't do that, so I'd recommend if you have a negative UF after a cycle that you try a red. I'm using straight greens right now, but occasionally do green/red and a couple of times when my BP was extra high I went red/red. Probably wouldn't want to do red/red all the time, but every one has a different absorption rate. Did you have a PET test yet? That measures your individual absorption rate.

 

[paul.karen]

Also make sure there is no fibrin in the bag.  That can block the output when drianing but can easily be fixed with some heprin.

[JLM]

I was having a problem retaining fluid.  Now I do yellow, green, yellow, green.  BUT with a 3 hour dwell and I am dry at night.  I drain, but don't fill.  This has made a BIG difference for me. I am hoping when I get back to Texas the clinic there will let me continue.  Although it is a pain having to get hooked up every 3 hours.  I start at 7 am

[tbarrett2533]

9-8-11

I went to my first clinic visit and had my first months labs on PD which were PERFECT!!! 

Neph told me that I am not getting enough dialysis, but that he is not that worried about it b/c of my residual kidney function is carrying me!

I am absorbing like a crazy person and I just don't get it, my weight is up, fluid in my legs-feet (but not too bad) my BP is perfect
I spoke to Mandy and she just keeps telling me not to worry about it b/c I have my first PET test this month & after that we will have a better idea of what my prescription will be!

Oh yea I am back to 2000ml fills and so far no pain!!!
Neph says that he wants me even higher than that........
Oh yea, Baxter is RETARDED!! .... they send me 20 boxes of green for the cycler (I do manuals) I call them, then they send  me 20 boxes of yellows when I already have 15 yellows and needed only green this month!! I call them, and they finally got it right, however I now have 40 boxes of crap that I do not need and I have to store it until next month when a Baxter driver delivers my shipment!! UGGHHHHH!!!

All in all, I feel pretty good and I really do love PD!!!!!!!!! thank god for it!!
Until next time
 

[billybags]

I know what you mean about Baxter. They ring up, you tell them what you have got, you tell them what you do not want and wholler they send what they WANT any way. Fu**ing pointless. mean while the box's are every where. They are thinking of adding   another bag, my husband  does the over night cycler, we do 3 x 5000 and final fill of 200. Whwere the hell am I going to put more box's. I am glad your labs are good, we always breath a sigh of relieve when they are, over a bacon butty, so naughty. What a treat. you take care.

[drgirlfriend]

Congrats on the great labs!! Good job!
Sorry that Baxter is so lame. The only "problem" we're had with Fresenius is that their deliveries tend to be early!

[Willis]

So far I've just TOLD Baxter what to send. I don't even tell them what my inventory is. The one time they questioned why I wanted so many Reds I said call my PD nurse! They did and she told them to just send the damn boxes I asked for.

Kudos for my PD nurse! 

 

[tbarrett2533]

I have 70 boxs of crap in my tiny little area so you know what i did?
I moved them right outside on the outside uncovered porch where they first delivered them in the frist friggin place!!
The kicker when UPS delivered them to me (both times) I was home making jewlery they never even friggin rang the bell or knocked they just litarrally left them outside on the porch!!!!!!
They could have at least knocked on the god damn door so I could have carried them in or better yet refused the god damn order in the first place b/c it was wrong!!!
Now who knows how long I gotta wait to get them out of my friggin house!!!
UGGGHHHHHHHH

[Willis]

I guess it depends on where one lives. I get my delivery from a Baxter truck. It's not always the same driver, but all they do is deliver Baxter supplies. They bring in the boxes and will stack them where and how I want them. They will even go upstairs if that is necessary. (I keep mine downstairs and the driver thanked me for that!) The drivers also check the expiration dates and will rotate the older boxes to the top if necessary. So far, so good!

 

[drgirlfriend]

Depending on where you live, UPS can be the laziest bunch of jackasses in the world. They have taken packages straight to the apartment management office then come by and left a note INSTEAD of knocking on the door! Grrrrrrr! I called the dispatcher and complained. They never did that again.

Fresenius has been great so far. My bf calls in what he needs, they deliver on time or early and put the boxes wherever I ask. Super nice!

[tbarrett2533]

9-19-11.... Update

I am just about ready to throw in the towel with PD 

Last week I started to have the absolute worst pain when I filled and drained it literally felt as if my insides were being riped out of me 

I called the center and was told to get on all fours and rock back and forth a few times to see if that would help..... I did this twice and then I was right back on track.... no pain, no problems 

then yesterday arrived and the pain is back, yet much worst and when I went to drain, nothing came out....... I kept trying to get solution out for almost an hour then finally I went to the ER which they did not even know what PD was so they had to call Mandy in on her day off and once she got there and hooked me up she was able to get 700 ml (of 2000ml) out in 65 minutes b/c it was a slow drip that she literrally had to milk to get that out........ for everyones information my drains have been running on average 10-15 minutes, and my typical fills last the same so to have a 65 minutes drain is not "normal" for me

Mandy filled me which the pain was out of this friggin world and lasted another half hour......... I got home and go to bed wake up this AM, managed to get 1700ml (of 2000ml) out in a half hour, I fill in about 15 minutes with 2000ml  (with pain that you can not even imagine) go about my dwell......
then at my next exchange........ I go to drain and NOTHING comes out..... i stay hooked up and keep trying for the next hour and NOTHING so I call Mandy and she has me come in, she manages to get 2100 ML out in 2 hours!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

WE fill the pain in out of this world (as if my insides are being pulled from my body)
my Neph comes, I tell him all about my problem the first thing he says is "back to Hemo"    I freak out and tell him that I don't want to go back to Hemo and that I hate it, he then says, "Well I am not going to let you go weeks on end without a dialysis treatment."
Then he gives me a slip for radiology which I will go in the AM.
and if nothing can be done to fix this pain/no/slow drains in a fast amount of time then I will not have a choice in the matter, I will have to go back to Hemo or die...... I guess it's my choice 

I do not know what to do, I am scared, worried, stressed and making myself even more sick about this....
for the record I am not constipated, tried every postion you can think of to try to get these drains to work......
I just feel like giving up with the whole thing, maybe some people can do PD and maybe some can't.........
I am praying something good comes my way   

until next time

[HouseOfDialysis]

Damn, Doll. I hate it for you. I'm hoping they can rectify this for you.

[Joe]

Hope they can get this under control for you. I'm finding when I have a slow drain I put Heprin in the next bag and it comes back in line. Just a thought.

[pitagory]

I hope eveything goes well and can stay on pd. I also hate hate hate hemo did I mention
HATE.

[rsudock]

OH NO!!! TB I am so sorry you are suffering like this with all the pain...I don't know how you can even type all this out...I would totally be freakin' if nothing was draining out....you are one tough cookie!!  I know you want PD but don't let your life hang in the balance....stay strong.

xo,
R

[tbarrett2533]

Hope they can get this under control for you. I'm finding when I have a slow drain I put Heprin in the next bag and it comes back in line. Just a thought.

Joe, do you do this b/c you have fibrin in your drain bags??
if so I NEVER, and I mean NEVER have fibrin so would it hurt to give Heprin a try anyway??

[tbarrett2533]

I hope eveything goes well and can stay on pd. I also hate hate hate hemo did I mention
HATE.

I think I may hate it more than you, just saying    
and I really hate it when people that are on it, try to convince me that I should love it like they do!!! I just wanna scream at them, then beat them over the head 

[Joe]

Joe, do you do this b/c you have fibrin in your drain bags??
if so I NEVER, and I mean NEVER have fibrin so would it hurt to give Heprin a try anyway??
[/quote]

Not necessarily because I have seen fibrin in my drain bag. My PD Nurse advised me that if I see a slow drain, putting Heprin in the next bag would not be a bad idea. I guess you don't always see fibrin in the drain, though it may be building up against the cath inside.

[mcclane]

Hope they can get this under control for you. I'm finding when I have a slow drain I put Heprin in the next bag and it comes back in line. Just a thought.

Joe, do you do this b/c you have fibrin in your drain bags??
if so I NEVER, and I mean NEVER have fibrin so would it hurt to give Heprin a try anyway??

i don't know if this helps, but last year on our alaskan cruise (when I was on PD) the draining stopped, I only got like (guess-timating) 200 mL drain.  So I had somewhere between 8-10 L in my gut.  A membrane ripped and I don't have to explain where the dialysis fluid drained too.

Anyways, when we got back to seattle, i called my pd unit, and they told me to up my stool softener and senkot dosage.  They highly suspected that I became highly irregular causing the pd fluid drain to slow/stop.  They were right.