I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 01, 2020, 03:29:21 AM

Login with username, password and session length
Search:     Advanced search
530052 Posts in 33367 Topics by 12373 Members
Latest Member: kbiel
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Home Dialysis (Moderator: Charlie B53)
| | |-+  A step by step PD experience!!!
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] 2 3 ... 6 Go Down Print
Author Topic: A step by step PD experience!!!  (Read 22947 times)
tbarrett2533
Full Member
***
Offline Offline

Gender: Female
Posts: 371


Me licking my kidneys from my birthday kidney cake

« on: June 30, 2011, 11:50:49 AM »

HI ALL  :flower;

I have my PD cath placement surgery tomo at 7:45am!!!!!  :yahoo; :2thumbsup;

after a few infections, trips to a few doctors, scheduling and rescheduling (original surgery date was June 8, 2011) the official day is tomo!!!

I will use this thread to post my experience with hopes that it will help anyone who was like me and "on the fence" with doing PD or not.... so stayed tuned to this thread.. :)

wish me luck!!! 


Day 5

OK yesterday I spotted some drainage and got freaked out (b/c that stupid instruction sheet that if you have any drainage call!!)

so that is what i did and I went right in to the surgeons office and well come to find it, its OK and "normal" so she showed me how to tape it off (which BTW i really hate) so if there is any suggestions on how to tape it off and not have it so balky (sp) that would be great.  She also removed all the stitches  :bandance;  she told me that she would like to see me wait a few weeks before I use it (which I knew) she informed me (which I already knew  ;D) that the PD nurse will be the one to tell me when I can use it  :laugh:


I also decided that yesterday was enough of "in the bed" and I pushed myself, I ran errands, and did my all time fave thing .... clean my house (no joke it really is my fave thing to do  :P)  shoot I even made a cake  :cheer:  and last night well me and my man, well you know  :o ;) which I should have waited to do that b/c it literally felt like my stomach was falling off!!! (but it was sooooo worth it  >:D)

today I went to the park and walked around.... just a little pain, but nothing that i can not manage :)

till tomorrow  :waving;


Day 6 (and I am going to copy and paste at the top of each of my posts)

PD training starts Monday July 18, 2011!!!!!!!!!!!! 

pain is very minimal and I am getting super excited to finally be done with in-center Hemo!!!!

until tomorrow!!!!!!!!  :waving


7-12-11
Hi all!!! (just checking in)

its been over a week since I had my placement surgery......  things are going good & i am getting so excited to be one day closer to starting PD!!!.....


There is no pain at all now  :yahoo;
I am showering daily and simply cleaning the exit site daily

Until next time

 :waving;


7-14-11

while at the D today the nurse changing my bandage informed me that it appears that I have puss coming from my exit site and that its really red.  She stated that it "appears" that I have the start of an infection........... Made an appt. with the surgeon for tomo at 1pm...... uggghhh I really hope that this is no idication of problems to come   :bow; :stressed;

until next time

 :waving;


7-19-11

so I had my first day of training yesterday (Baxter) and we made it to chapter 4.... so dry & boring but it has to be done  :puke;
I drained and filled the dummy 2 times with step by step instruction from Mandy (PD Nurse) learned and have already memorized "SEAL."   :clap;  got some quik tips on cutting open the drain bags (to get rid of the fluid faster) after an exchange is complete  :cheer: 
we talked about my solution strenth, & amount until my first PET test in two months, and we even discussed the cycler (which I might even consider)  :yahoo;

I have day two of training tomo from 7am-9am and will post how it goes......

It's getting closer and seems to be more of a reality now  :bandance;
We anticipate August 1, 2011 :bow;

until next time  :waving;

Oh yea I almost forgot.... no infection.......  :yahoo;

7-20-11

So Much happened today lets see where do I start...........
1.  Transfer set is hooked up
2.  did my Baxter tests for Chapter's 1-4 and aced them all.... super easy tests though  :clap; :2thumbsup;
3.  Drained and filled the Dummy four times and the last 2 times I did not have to have Mandy tell me what to do  :bandance;
4.  my first FLUSH!!! was today as well....... We did yellow solution (1.5) 500 in, then drained 500 out, filled again with 500 then drained and we did it a total of 4 times for a total of 2000 in and back out! the problem that I felt was pain in my upper left hand shoulder kind of a dull pain that was present with every fill and drain, Mandy says that it is "normal" as it is your bodies way of saying, "what the heck is going on here." HAHA  :rofl; :rofl;  There was A LOT of Fibrin along with some blood and Mandy also said that was "normal" b/c I just had my Cath put in and this was the first drain and fill.  As we got to the fourth drain the solution had no blood in it and no fibrin either.  The solution was clear as well  :bow;  All in all I think my Flush went very well and my drains and fills went super fast which according to Mandy means that I have a good cath so that is a super plus!! :bandance; :yahoo; :thumbup;  We talked about the purple (long dwell solution only) and the dreaded red!! we did Chapters 5 and 6 along with the tests which of course I got all right  ;D

I go back Friday from 7-9am for more flush's and Monday I will have my first flush with me doing the whole thing.... I am nervous and hoping and praying that everthing goes PERFECT  :pray;

Until then,
 :waving;
 
7-25-11

 :bandance; HELLO

 Alot is going on over here with my little PD adventure!!!

Friday's training session went a little like this.
1.  I peed on myself b/c I forgot to close my transfer set before trying to unhook... Mandy said she let me do it on pourpose and that it was a rookie mistake and now I won't do it again (she was right  ;D)
2.  Dwelled for about 1 hour with 1500ml in, drained with NO PAIN!!  :bow;
3.  Discussed and practiced on the dummy how to inject medications into the bags of solution (too easy)
4.  went over the flowsheets (how to fill them out)
and drained and filled the dummy at least 6 times (if not more) with NO prompting from Mandy  :bandance; :2thumbsup; :yahoo;

my weekend was amazing, went to the casino and won $140  :clap; had NO problems with anything!!

Monday's (today) session went something like this....
1.  Dropped the friggin cap (of the dummy) and freaked out
2. Filled myself with 2000ml yellow (1.5) solution.... wicked pain the whole way in  :'( (in the shoulder L hand side)
The PLUS the entire fill took 6 minutes and that was with me slowing it down by Turning my transfer set off a little
the second all the solution was in I felt super full and began to cramp (like menstrual cramps) and my tunnel and exit site were so sore that I thought I was going to pass out so I look down and what do I see....... blood coming out of my exit site.......  :thumbdown; :stressed; I freak and Mandy suggests that we drain it out right away..... the PLUS, my entire drain was 8 minutes from start to finish but the pain was out of this world it felt like menstrual cramping times 10!!! as a direct result of this blood Mandy says that we "may" have to push my start date out  :'( >:(  I really hope not  :pray; but totally understand if we do I want to be safe not sorry!

we went over how to place my order, I took my pole, thermometer, scale, BP kit, & blank flow sheets home and set it all up in my corner where my treatments are going to be.... I think I have the best set up and I wish I knew how to upload pics on here so I could show it off to people!!!  ;D

the rest of the day I have been in terrible stomach pain....... I feel super crampy, and it literally feels like someone is throwing knives at my back  :stressed;  :puke;   I don't know what the heck is going on here, but I am scarred and unsure and super worried so if I do not feel any better by treatment time tomo (12:30pm) then I will let Mandy know and we will take it from there I guess!  :'(

I think that about covers it, next training session is Wednesday and will post my next journey!! 

here's a short little rant:  :rant;  I hate what Kidney failure has done to my life and I hate how I never ever get a break from it.... I am already sick of it and can not even imagine having to spend the rest of my life living like this..... the thought of if just makes me wanna scream, cry, yell, punch things, & give up  :stressed; end rant stayed tuned to my next rant  ;)

until next time

 :waving; 
7-28-11

Yesterday at my training session, I filled myself with 2000ml yellow (1.5), dwelled for 1.5 hours, drained and my fill was 7 minutes long & my drain was 6 minutes  :clap; :clap; Oh yea the only pain I had was right at the very end of my drain & I just clamped off super quick & it went away  :bow; 

I practiced on the dummy like 16 times  ;D and I feel like i can do an exchange in my sleep now  :o

Mandy is "letting" me go the entire weekend on my own as a practice run  :clap; :yahoo;

soooo what that means is today SHOULD (if everything goes perfect, which it will) be my last day at in-center Hemo  :bandance; :yahoo; :2thumbsup;

I have to come to the center Friday at 9am then when I leave, I am leaving full  :yahoo; and I am on my way to my trial!!!  wish me luck

until next time
 :waving;



Friday 7-29-11

so as we speak right this very second I am at home full with 2000ml yellow (1.5)  :yahoo; :clap; :flower; :cheer:

I went to my training session at the center from 9-11am and she sent me on my "trial" run home I have the rest of today, Saturday, Sunday, Monday and I got to go back in Tuesday at 9am to report back how I did.

I am so excited and scared at the same time!!!!!

Tune in to Read about my progress :) 

until then7-30-11

My first night all by myself with PD........  :yahoo;

I have TERRIBLE I MEAN FRIGGIN TERRIBLE drain pain... however I am lucky to only have it right at the very last drip, so I just clamp off really really fast!!
I also noticed that when I am filling I had terrible pain in my stomach (felt like menstrual cramps) in 2 out of the 4 exchanges that I did yesterday, so what I did to try to help the pain was 1.  stood up, then I closed off my transfer set just a little and that seemed to ease the pain......... I did all yellows (1.5) 2000ml for each exchange which went like this:

11am- 2000ml out
3pm-2100ml out
6:30pm-2300ml out
10:30pm- 2400 out

total UF 800ml  (which I think is about "normal") I hope anyway???   ??? ??? :waiting;


Now last night we went to the Casino (lost $150  :thumbdown; booo :() so when we got home at 3am I did my first exchange of the day at 4am which I drained out of 2300ml.... woke up and did my second exchange of the day at 10am, drained out 2300 and filled with Green (2.5) 2000ml... I filled with Green b/c my face was just a little bit puffy and my BP was running just a little bit higher than "normal" for me... I am contributing that to the 5 cups of coffee that I had while at the casino, but no one really knows   :rofl;

today I am headed out and will not be home till about 5pm soooo here's to hoping that I do not die with that long friggin dwell   ;D

All in all..... i have had NO MAJOR problems (knock on wood)  :2thumbsup;   :cheer:

solution is so clear that it is scary  :o

Oh yea one thing that I am noticing is that I have no appetite at all..... I am so "puffed" up with Solution that not only do I look pregnant, I feel like it..........I have the worst full feeling in the world which I am hoping goes away with time b/c I can't wait to eat me some potatoes, tomatoes, & banana's!!!  :2thumbsup; 

And I have never been more excited to scream that today is the first Saturday that I have off in 10 months........ see ya later in-center Hemo!! I sure will not friggin miss you and your stupid needles!!!!!  :flower; :cheer: :clap; :2thumbsup; :yahoo;

Dialysis has controlled my entire life for the last 10 months & now I am taking my life back!! so screw you Kidney Failure!!!!!!!!!!    :Kit n Stik;

until next time

 :waving;







8-3-11

Well I am fast approaching my first whole week on PD  :bandance;

I had my meeting with Mandy to see if my trial period was "OK" and I got my lovely 24 hour urine catch bottle (boy I sure do not miss doing them  :'( ) (and I should be grateful that I still make urine)
and she said my numbers were great and did not absorb at all!!  :2thumbsup;
my weight however is up by 2.1kl since Friday, now I am not sure if its fluid or all the potatoes, tomates, bananas I have been eating  :waiting; so I have been doing greens (2.5) like crazy to see if I can get it off!! I gotta do something.... maybe lay off some of those foods that I just love and have not had since starting dialysis

My total UF went like this:

Friday: 800ml
Saturday: 1400ml
Sunday: 1200ml
Monday: 900ml
Tuesday: 1300ml (and I absorbed for the first time 100ml in the first exchange of the day)

The drain pain is TERRIBLE!! I hate it!! :boxing;
the fill pain is CRAPPY!! I hate that too!!  :boxing;
my BP is PERFECT, not puffiness in my legs/feet
no temp
Exit site is looking great  ;D
I even had sex while full!! and well it was like nothing has changed (thank god for that) the one thing that I enjoy that I can still do!! YAY!! :cheer: (I do not like the big ol' belly... yuck!! I am thin so it is really noticeable on me and I have yet to "allow" my boyfriend to touch me below the boobs or above my belly button, or take my shirt off....... (I think its gross and wonder how he would ever still find me attractive  :'( ) I have that 12 inch transfer set hangin off of me and then I have the stupid panty hose cut off top on (b/c I hate the tape) eww its so gross!!! (god I hate this sh*t  :'( :'( )

 

I am not going to sugar coat it, it does really suck having to do exchanges every 4-5 hours I feel like my life is on a time clock!! however I really hated doing in-center hemo so I just think about that when I start to think PD sucks!!

I feel really great and I sure do not miss the 9 hour recovery times at all that I had with Hemo!!!

OH I almost forgot... I got my first order, holy cow.... I have 47 boxes of medical supplies (Jesus I hate kidney failure  :'( ) in my perfectly organized, clean house!!

 
Welcome wbdoug aka: Bill to the lovely world of PD as he had his Cath placement surgery today!!  :welcomesign;

Houseofdialysis: I would really love to hear your thoughts on switching from manuals to the cycler??? how is the drain pain? fill pain? and anything else you can offer would be great, b/c I am really hearing some horrible things about the cycler with the pain....... YIKES!!!

until next time
 :waving;


8-8-11

Had me a little scare with my Friday night exchange...... blood in the drain bag....and I mean ALOT!! so being the PD newbie that I am what do I do?? that's right I freak right out and start thinking of the absolute worst.... :( :'(

slept like crap then wake up to do my first exchange and even more blood.... YIKES so while I am draining I am dialing my unit and spoke to Mandy she told me to come over and get some heparin, do some rapid exchanges with room temperature solution (which I did not do the latter b/c I knew that if I did, I would have shoulder cramps like crazy   :urcrazy;

went and got the heparin, did 2 rapid exchanges (with the heparin) and by the 2nd one it was Rosy.... that really made me smile  :cheer:

So after speaking to MAndy I was unsure why this happend to me..... 1.  No period, and 2.  I did not lift anything heavy so what the heck... so what do I do...that's right I rely on my fellow IHDers   :bandance;

Turns out it appears that i was prolly ovulating (I counted back from my last period and it was 17 days from it) so we shall see if I get my period within the next two weeks.....

so everything appears to be going very well...... I love PD!! I really do....... I feel so much better however since I noticed this blood I have had terrible pain in my entire right side from the shoulder down and its worst when I laugh, or cough and its not all the time...... very random and  I don't like it  :thumbup; so I decided that if its not gone with in a few more days that I will call my PCP and schedule an appointment. 

OK so here is  the problem that I seem to be having... SEX... I know I know we need to keep it PG however its not so much about Sex, its about approaching my BF with my concerns regarding sex with this dumb cath....... What I mean is he wants my shirt/PJ's off during, I keep refusing.... I mean do I need to yell it at him so he gets it..... I can tell you that I would not be turned on by seeing something like that so if anyone has any suggestions on how I can approach him with this that would be EXTREMELY helpful

Until Next time
I think I am going to change my name to PD lover HAHAHAHAHAHAHAHAHAHAHAHA  :rofl; :rofl; :rofl; :rofl; :clap; :bandance; ;D

 :waving;



8-14-11

Ran into a little set back/Problem...... see other thread :(

In short (B/C I really want to have everything in one thread) I will do a quick summary of what happend

1.  Had pain and shortness of breath for about one week
2.  called the center finally Thursday eve and my Dr. & Mandy were on vaca until Monday
3.  Center staff called on-call Neph and I was told to drain and come in for a Hemo treatment the next  :puke;  >:( :'(  The nurse told me that there were no chairs open for me and that she would have someone call me in the AM to let me know what they were going to do with me
4.  I cried... I mean cried  :( :'( b/c they told me that PD solution could be leaking into my lungs  :'(
5.  Friday 9am the Center's director Joanne called me and told me that she called my Dr.  on vaca and that I could wait for a Hemo Treatment until Saturday
6.  I cried and cried and cried and cried somemore.... got super sad and depressed b/c I really really like PD and was enjoying my freedom and just the thought of having that ripped from me.... was breaking my heart!!!!!!!  :(
7.  Went in for my Hemo treatment..... cried when I got up at 4am.... cried when I got there, cried when they hooked me up, cried during....... then was sick and in bed for the remainder of the day (Just like any other time that I did Hemo)
8.  NO treatments at all today for me.... I sit here dry aka empty
9.  waiting to hear on Monday morning what they are doing with me
10.  Hoping and praying that I can go back to PD tomo!!   :pray;

 :'(




8-15-11

 :bandance; :bandance;  ;D

Joanne called me at 9:35am and told me that she spoke to Dr. Sadovnic and that I am to fill with 1500ml instead of the 2000ml and see if I feel a difference. I asked about Hemo and she said NO more for now!! so hopefully I will be saying see ya later you nasty Hemo  :boxing;

Dr. S  said that he thinks (b/c the pain and shortness of breath went away about 2 hours after I drained out) that my diaphragm was getting pushed on by the PD fluid and that is why he wants me to only fill with 1500ml, so I am to do my 24 hour urine catch (which will be the first one) and go in for some lab work on Thursday.

I was told to call if there is any problems with the 1500ml fills.... I am praying  :pray; that I do not have any problems!!!
8-25-11

Just a quick little update:

I have been filling with the 1500ML and no pain, shortness of breathe  :clap;

Recently though (since yesterday) I am absorbing like crazy!!!

Today went like this
1.  1200Ml
2. 1400ML
3.  1500ML
4.  1400ml
5. will be done at 11pm. 

Now, I do 4 exchanges a day however, I decided to do 5 today with all Greens to see if this helps  :waiting;


What I do not understand is why I am absorbing all of a sudden??

Answers anyone??
tips??

prior to yesterday my total UF's were 1500ml-2500ml then this crap I don't get it, any advice on this would be great!!

I have my first clinic visit tomo at 1pm  and you can bet that I will be talking about this

I just hope that I can continue to do PD as long as possible... I gotta say at first I thought that this was a HUGE burden in my life, but now it has just become a part of my life and I do not stress over it anymore!!!

until next time
 :waving;
Oh PD how I have missed you  :lol; ;)

Until next time

 :waving;

9-8-11

I went to my first clinic visit and had my first months labs on PD which were PERFECT!!!  :cheer:

Neph told me that I am not getting enough dialysis, but that he is not that worried about it b/c of my residual kidney function is carrying me!

I am absorbing like a crazy person and I just don't get it, my weight is up, fluid in my legs-feet (but not too bad) my BP is perfect
I spoke to Mandy and she just keeps telling me not to worry about it b/c I have my first PET test this month & after that we will have a better idea of what my prescription will be!

Oh yea I am back to 2000ml fills and so far no pain!!!
Neph says that he wants me even higher than that........ :puke;
Oh yea, Baxter is RETARDED!! .... they send me 20 boxes of green for the cycler (I do manuals) I call them, then they send  me 20 boxes of yellows when I already have 15 yellows and needed only green this month!! I call them, and they finally got it right, however I now have 40 boxes of crap that I do not need and I have to store it until next month when a Baxter driver delivers my shipment!! UGGHHHHH!!!

All in all, I feel pretty good and I really do love PD!!!!!!!!! thank god for it!! :bow;
Until next time
 :waving;



9-19-11.... Update

I am just about ready to throw in the towel with PD  >:( :(

Last week I started to have the absolute worst pain when I filled and drained it literally felt as if my insides were being riped out of me  :'(

I called the center and was told to get on all fours and rock back and forth a few times to see if that would help..... I did this twice and then I was right back on track.... no pain, no problems  :2thumbsup;

then yesterday arrived and the pain is back, yet much worst and when I went to drain, nothing came out....... I kept trying to get solution out for almost an hour then finally I went to the ER which they did not even know what PD was so they had to call Mandy in on her day off and once she got there and hooked me up she was able to get 700 ml (of 2000ml) out in 65 minutes b/c it was a slow drip that she literrally had to milk to get that out........ for everyones information my drains have been running on average 10-15 minutes, and my typical fills last the same so to have a 65 minutes drain is not "normal" for me

Mandy filled me which the pain was out of this friggin world and lasted another half hour......... I got home and go to bed wake up this AM, managed to get 1700ml (of 2000ml) out in a half hour, I fill in about 15 minutes with 2000ml  (with pain that you can not even imagine) go about my dwell......
then at my next exchange........ I go to drain and NOTHING comes out..... i stay hooked up and keep trying for the next hour and NOTHING so I call Mandy and she has me come in, she manages to get 2100 ML out in 2 hours!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

WE fill the pain in out of this world (as if my insides are being pulled from my body)
my Neph comes, I tell him all about my problem the first thing he says is "back to Hemo"    :puke; I freak out and tell him that I don't want to go back to Hemo and that I hate it, he then says, "Well I am not going to let you go weeks on end without a dialysis treatment."
Then he gives me a slip for radiology which I will go in the AM.
and if nothing can be done to fix this pain/no/slow drains in a fast amount of time then I will not have a choice in the matter, I will have to go back to Hemo or die...... I guess it's my choice  :'( :(

I do not know what to do, I am scared, worried, stressed and making myself even more sick about this....
for the record I am not constipated, tried every postion you can think of to try to get these drains to work......
I just feel like giving up with the whole thing, maybe some people can do PD and maybe some can't.........
I am praying something good comes my way   :pray;

until next time

9-26-11 Update:

OK I am hoping that I am not jumping the gun here, but things APPEAR to be back to "normal" whatever the hell normal is  ;D

The pain that I was feeling in both my drains and fills slowly went away over a 3 day period so that was good  :cheer:
After reading on here I decided to do a fill with some heparin (1ML) and instead of doing all greens I mixed it up with some Yellows and what would you know, I started (slowly) to get fluid off and in record time (yesterday I did an entire exchange start to finish in 21 minutes and drained a total of 2700ml)  :bandance; :cheer: :clap; :yahoo; :thumbup;

so the past 3 days went a little like this:

UF total's

2000ML
1900ML
1800ML

and the most random thing of all my overnight dwells that I always absorbed like crazy....well i am pulling off an additional 400-600 ML!!! Its so crazy  :P but I am loving it!!

I am praying and hoping things still keep going like this!!!   :pray;

Today we were in a Antique bottle show and sale about 2 hours away from our house and for the first time I did two exchanges in my car......now this was very hard (I have a very small compact car)  but very doable.  I made sure that I sanitized everything down, closed up the windows and made my BF mask up.........   

I began to complain while doing one and my BF speaks up and says, "Would you rather that we not be in this show and I can take you back to the center and you can get poked with the needles and sit there for 4 hours?" 
ummm hell no!!!!!!!!!!!!

so far I have took my PD to my moms, my boyfriends mom's and this show and so far so good...... I am just really really really careful and I make sure everything is as clean as it can be!!!!
this is the freedom that I was talking about right here!!! I love knowing (especially now that I actually went far away from home and did exchanges) that I can go anywhere and do anything that I want and still "do dialysis"
PD almost makes me feel normal again minus my 12 inch power cord (that's what my BF calls it  :rofl;)  and the 50 boxes of medical supplies and the careful math calculations to ensure that I have enough of everything that I need
In all seriousness, PD is not that bad and I really like it compared to the dreaded awful in-center Hemo  :puke;

my labs were alll perfect!!! Phos 4.2 potassium 4, calcium (lil high) 9.5, albumin 4.4, BUN 31, PTH, 225
To be honest, I was just a little bit worried about my labs going from Hemo to PD, b/c while I was on Hemo my labs were PERFECT!!! but the last 2 months PERFECT PD labs so that makes me happy!!!  :2thumbsup;

I feel as if I am missing something here  :waiting; rest assured that if I think of it, I will be back  ;D

until next time

 :waving;



10-16-11 UPDATE!!

Well let me see here.... I do think it has been some time since I posted my update... pardon if I leave anything out  ;D

I turned 32  :( on October 11, 2011!!!!  booo  :(
on a super positive note..... today marks one full year with not even a single puff of a cigarette!! (that is the one thing positive that came from have kidney failure... I had to quit smoking in order to get "on the list")

my BF took me to casino Niagara and to Niagara Falls for 2 days and yep you guessed it I had the trunk of the car packed full of all my PD supplies..... shoot I did exchanges in the car, in the hotel and we even stopped at his Grandma's house in Buffalo and I did an exchange there..... I love the flexibility PD offers me.... my BF and I were just talking about how if I was on Hemo I would have never been able to even go on that trip at all!!! soooo life is good!!  :flower;
Oh one small problem while I was so worried that I was going to forget something that I need to do my PD I ended up forgetting my entire bag that was full of my hair products and makeup  >:( so my poor BF had to go buy me EVERYTHING new or I was not leaving the hotel room  :angel;
I had to go to the center and do my annual care plan that is always a good time  ;D
I had the very last step in the transplant evaluation just last week (image of my kidneys)
so guess what ladies and gents?? I am FIANLLY on the list!!!!!!!!!!!!!!!!!!
here is to life on the list..... just like I do with PD..... I am not going to watch the clock I am going to continue to live my life without wonder and worry!!!! (well worry that is not possible  :urcrazy;)

things appear to be going very well and I am LOVING PD!!!
Now when I go to that stinky center I preach not only about diet..... I preach that everyone who can, should be on PD!!! :cheer:

until next time
The PD princess   :clap;


this update was from 10-5-11 so its just a little backwords  :(

I had my first PET test Thursday and today I met with my Neph to go over the results and this is what he said:

1.  Creatinine and Urea are being removed!!!!   
2.  I do not absorb
3.  I can continue to fill with 2000ml, 4 exchanges (CAPD) with the last exchange of the day being green, but I can choose whatever I want(yellow's Green's) for the remainder of the day just to keep my weight & BP in check.

He then looks over my labs which are PREFECT   has Mandy check my BP, Pulse, Weight, listens to my lungs, checks my ankles then says, "Well I can't seem to find anything wrong with you."       

Next clinic visit is 10-19-11!!!!!!!!!!!

They (the D staff and Techs) when I was doing in-center hemo used to call me the "dialysis princess"  I think I will rename myself the Peritoneal Dialysis princess 
     
11-20-11
Update:

OK I am going to try to remember to get everything in here b/c it’s been awhile since my last update…….
I had my clinic visit yesterday and my BP has been super super super low for ME (105/75) I was C/O dizzy spells so the Neph said that I need to eat more salt!!!  (First “they” don’t want you eating salt, now they do) go figure!
I don’t know if I had mentioned this or not, but I THOUGHT that I had found a correlation between low vit D level and high calcium levels, but anyway I was running at the higher end of normal for my calcium and I did not like that so to make a long story short I found that vit D if it is lower (in my case anyway) and you take a supplement your calcium will go down.  Which mine went from 9.3 to 8.7 and I have only been taking the vit D for 2 weeks, I can’t wait to see what my labs will be next month when I will have taken it for over a month.
The potassium was 3.3  and the first thing the neph said was “do you want a pill?” and my response was, “I am not a walking medi-set, I think this was just a fluke.”  Which I really think it was  b/c lord knows I eat enough bananas, tomatoes, & potatoes to actually kill 2 Hemo patients. All my other labs were SPOT on and I got 2 stars like I ALWAYS DO!!!
Now, onto the more important aspect of CAPD….. The freedom!!
I do EVERYTHING!! I go anywhere I want, I eat what I want…….. I am in complete CONTROL of how I feel!!! Dialysis does not control me any longer and this disease does not consume me half as much as I felt it did while I was on hemo.  The worries I had pre-PD were of body image and were of my Boyfriend not being accepting of my cath….. Well he does not even care about it……. I think the reason I was it took me so long to decide to do PD was b/c of the whole body image aspect and how I THOUGHT Joel (my BF) was going to react (I thought he was going to take one look at me, see my transfer set and 18 inch cord hanging off of my body and not find me attractive anymore then he was going to look around at all these boxes and say get the hell outta my life…… well that was my worst fear and that did not happen…… nothing has changed!!!     
It takes on average 17 minutes from start to finish for me to do an exchange and this includes gathering my supplies so that is less than 2 hours a day I spend doing treatments so while I am hooked up I pole and I do the following: cook, clean, text, get on the computer, make lists, do the dishes, do my hair, put my make-up on, get dressed, get un-dressed, do the laundry, fold the laundry, visit with Joel <3, or sometimes I just sit and sip on my coffee (this is usually in the morning when I am half asleep  )
I have no desire to do the cycler and actually take offense to others trying to push their view of it onto me, I have considered on my options and for starters I don’t sleep at night….. on a good night I will be lucky if I get 4 hours in and that’s on a good night, not to mention Joel and I like to go out to the casino late at night, & we like to go out to bars, we would not be able to do that b/c I would be on a schedule to get home to “hook up” Also, Joel is the sole provider for me and he works and he works very hard and he needs his sleep, he can’t be woke up by alarms in the night and he can’t be worrying if I am alright all night long…… I do not want any drain pain either!!! I do not want the machine (something else that I have to worry about)
I like how portable CAPD is, I like the flexibility that comes with it and since I don’t absorb (unless I use a yellow and have a dwell with a yellow over 4 hours) I don’t watch the clock!!! So I do what I want, pretty much when I want!!!!
I did find that if about once a week I give my membrane about a 4-6 hour break with no solution in at all that I have less cramps, bloated feeling, slow drains, pains and better overall UF’s.  now to achieve this I simply just make sure that I get up extra early that day do all my exchanges and then well lastly do not fill and give my membrane a break…… and Hey it really seems to work!!!
I officially am on the transplant list
No I have no family members or friends willing to be tested

Next month: new transfer set, & 24 urine again

Until next time


 :waving;



 





 









« Last Edit: November 18, 2011, 09:01:12 PM by tbarrett2533 » Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #1 on: June 30, 2011, 11:52:28 AM »

I hope it goes well. You'll like PD.
Logged
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190


« Reply #2 on: June 30, 2011, 11:57:42 AM »

First of all  :welcomesign; tbarrett2533, do not be afraid of doing PD and yes it is scary to start with but you will soon get use to it. Please post and ask as many questions as you like. You will be fine.
Logged
Willis
Full Member
***
Offline Offline

Gender: Male
Posts: 445


« Reply #3 on: June 30, 2011, 02:34:23 PM »

Best of luck! You'll make it, just don't watch any funny movies for the next few days! It's really true that it only hurts when you laugh.  :cuddle;

 
Logged
rsudock
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1351


will of the healthy makes up the fate of the sick.

« Reply #4 on: June 30, 2011, 09:15:39 PM »

good luck!!! Look forward to your posts!!!


xo,
R
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Jie
Sr. Member
****
Offline Offline

Gender: Male
Posts: 521


« Reply #5 on: June 30, 2011, 11:05:43 PM »

Oh, PD is a piece of cake, and you can take it easily.
Logged
Atooraya
Full Member
***
Offline Offline

Gender: Male
Posts: 125


« Reply #6 on: July 02, 2011, 05:21:54 PM »

Pd is easy. Best of luck to you.
Logged
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #7 on: July 02, 2011, 06:51:24 PM »

You will find PD a very good modality!  Will you be using the cycler (CCPD) or manual exchanges (CAPD)?
You will do very well with this!  Like previous post said, you may be nervous at first, but once you get it down and perfect it, it will be so routine!

Good Luck and keep us informed,
lmunchkin      :flower;

p.s. Just being home is a BIG plus for alot of us. But Home D. is not for everyone!
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Ken Shelmerdine
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1646


Life's a bitch and then you go on dialysis!

« Reply #8 on: July 02, 2011, 07:00:53 PM »

Best of luck for tomorrow and keepus posted
Logged

Ken
tbarrett2533
Full Member
***
Offline Offline

Gender: Female
Posts: 371


Me licking my kidneys from my birthday kidney cake

« Reply #9 on: July 03, 2011, 09:20:11 AM »

SO today is the first day that I have been feeling up to posting...


I arrived at the hospital at 7:45am Friday, got my IV (which they had to try on three different spots b/c I was so dehydrated.... which is good  :clap;)

they pumped me full of saline and I just about had a stroke and freaked on them considering all that fluid (which I put on 3 kilos when on a "typical" treatment day I only put on 1.5 kilos)

So I digress, I don't remember anything else until I woke up at 11am..... feeling all doped up and in a lot of pain the nurse gave me some crackers and a drink and by 11:30am I was on my way home where I slept the remainder of the day (except getting up to go to the bathroom and taking my pain pills)

Saturday I was in the most pain that I have ever been in and as a matter of fact when I went in for my treatment the nurse suggested that I "sign" off and leave early which I did (one hour) b/c I was in so much pain and so uncomfortable and its not like I make it a habit to shorten my treatment time.....that was the first time I have ever done that and I have been doing in-center Hemo since September 2010. 

after treatment I was back home to sleep then I decided that I would take a shower and remove the bandages (that I was suppose to remove) I found my 2 tiny little incisions b/c my surgery was performed laparoscopically and then where the actual tube comes out which is about 5 inches and my transfer set is 7 so I will have a 12 inch tube hanging off of me... uggghhhhh  :stressed;

then it was back to sleep..... btw I have been wearing PJ's just cause I want to be comfortable and I tried taping the tube up, but its still to new and hurt when I bent it up so I am just letting it hang there for now......

I will see my PD nurse to schedule our home visit (they come to your house to make sure that you have enough room to store all of your supplies) on Tuesday and I think after that (about a week from now) I will start my "paper" training!!   :bandance;

I will be doing CAPD because its an ongoing joke that there are plenty of "other" things that I like to do at night and dialysis sure is not one of them  :kiss; :kiss; :angel; ;)


I think that is about it for now.... today I am feeling the best and am actually starting to look forward to the freedom that PD is going to give me.......... pretty soon I will be posting about suggestions on how to do exchanges in my car on the go :)

I will continue to post (hopefully daily) here so everyone knows how I am doing.... I think I stated it earlier that I want to post a step by step process with hopes that my posts will at the very least help just one person make the decision to do PD :)
 
Oh yea I should add.... Thursday night while at treatment my fav tech was taking me off my machine and I was nervous and worried about this procedure so what do I do (which I had no control over) I start crying like a little baby :( and I begin to tell him how worried I am about my body image (and to be honest that is really the only thing that has made this entire decision to do PD or not a tough decision to make) so he says to me.... "As soon as you realize that the tube hanging off of you is what is going to keep you alive there should be no body image issue." He's right, but I have not come to terms with that yet..... hopefully I get there and I fall in love with PD and it becomes a way of life for me or its back to the dreaded HD  :'(

I will post soon.... its off to watch my Lifetime Sunday movies :)



Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #10 on: July 03, 2011, 01:04:35 PM »

The body image wasn't a big deal for me. I had always had a bigger belly after my first transplant so PD belly doesn't bother me. I wear a lot of elastic waist stuff and leave my shirt out. I have a belt to tuck the catheter into because I don't like it hanging.

I found with the catheter surgery that the laporoscopy hole hurt worse than where the catheter was. But that will feel better soon. Hang in there.
Logged
Willis
Full Member
***
Offline Offline

Gender: Male
Posts: 445


« Reply #11 on: July 03, 2011, 01:07:50 PM »

Sounds like things went well for you. I too was surprised at how painful the incisions were--the incision below my belly button more than the cath itself. But for me that incision healed up pretty quickly and now the cath area is just about closed up finally after almost 2 months. I had one minor infection at the cath site (very minor and cleared up after 2 days with antibiotics). So attend to that properly as instructed.

Just keep telling yourself that things are only going to get better!  :yahoo;

 
Logged
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #12 on: July 03, 2011, 02:28:45 PM »

Good for you TB.  Hubby really liked CAPD!  All he had to do was go to a sanitary place in his big office and do them.  They only took, if I recall correctly, 30 to 45 minutes.  Back then he wanted to do them himself!  He didnt have to rely on me for much!

Yea, he really liked the freedom it afforded him!

lmunchkin      :flower;     :cheer:
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Des
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2318


« Reply #13 on: July 04, 2011, 02:05:51 AM »

 :thumbup;
Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
tbarrett2533
Full Member
***
Offline Offline

Gender: Female
Posts: 371


Me licking my kidneys from my birthday kidney cake

« Reply #14 on: July 04, 2011, 11:02:42 AM »

Today marks 3 days after my placement!!

I have decided that I am not going to take any pain pills today (and boy am I feeling it)

I took a shower today and took the bandage off and let the water just run down my stomach (the instruction sheet stated that I should have done that as soon as 24 hours after my surgery, but the Dialysis nurse told me to wait until I spoke to the PD nurse (Mandy) on Tuesday) but I did it anyway.... the instruction sheet also states that I am too leave it uncovered but I am not doing that b/c then my shirt rubs on the incision site and I am worried that would cause some redness and pain so I have it taped off with a gauze (pointing down)  To be comfortable I am wearing my boyfriends work shirts which are very large shirts and I have a few pairs of  stretch shorts.... from the head up I look AMAZING... I got my makeup on, earrings etc  :bandance;  but below the neck..... UGGHHH its not pretty  :'(

Today I attempted to go sit in the sun outside, but got chased away by all the bees and well I cant move very fast and it really only does hurt when you laugh or when you have to "jar" around so its back to the bed which BTW I get the most comfort by laying half up and half down with my feet up, but my goodness I have been in this bed since Friday!!

I am sore, and super bored and I just cant wait until I feel good enough to get up and outta this bed  :bow; !!!


Happy 4th of July everyone!! I sure wish I was up having fun like the rest of you all are....... so have fun for me please!!  :cheer: :rofl; :clap;

Until next time............  :waving;

Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
wbdoug
Jr. Member
**
Offline Offline

Gender: Male
Posts: 96


« Reply #15 on: July 04, 2011, 03:19:07 PM »

I am looking forward to more of your posts. I will be getting my cath on aug 3 and you are giving me some great insight on what to expect. I am currently on my last long bike trip before I start pd as it will not be possible to take extended bike trips with all the supplies I will need in the near future.
Thanks
Bill
Logged

8/3/2011 PD Cath installed
Life keeps interfering with my plans
tbarrett2533
Full Member
***
Offline Offline

Gender: Female
Posts: 371


Me licking my kidneys from my birthday kidney cake

« Reply #16 on: July 04, 2011, 04:40:50 PM »

I am looking forward to more of your posts. I will be getting my cath on aug 3 and you are giving me some great insight on what to expect. I am currently on my last long bike trip before I start pd as it will not be possible to take extended bike trips with all the supplies I will need in the near future.
Thanks
Bill

anytime!! this was my goal....I just wanted to help one person (if only one) to decide to do PD or not!! so far I must say the pain is not that bad b/c I got my eye on the prize..... no more in-center Hemo and freedom to be in charge of my treatment!!

as far as your long bike rides..... dont discount them yet....... the people on here more than likely have suggestions on what to do so that you can continue to do them!! it never hurts to ask....... maybe Nocternal PD would be a better option for you... (just a thought)

and I say you post (just like I am) your PD experience as well!! every person is different and your circumstance could be much more unique than mine and you could help someone else! 

Best of luck to you!!  :flower;

 ;D
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #17 on: July 04, 2011, 05:28:12 PM »

Bill, will you do PD at night or exchanges through out the day; or both? Before husband was diagnosed with ESRD with Diabetic Retinopahy and neuropathy of the feet, we had bikes!  We rode everywhere together, but sadly he had to give it all up cause of his sight.  Trust me, before all this happened to him, his driving was a frightening thing to watch! I mean that literally!

Nobody wanted to ride in a car, much less a motorcyle with him.  The thing was he had no idea!  He felt great and looked good,could carry on a normal conversation, but something was happening to his sight and his equalibrium was wacky!  In 2004, he was sick and thus was diagnosed ESRD, D. Mellitus, PAD and CVD, with Retinopathy (Diabeties) and D. neuropathy.

I guess after all that, he probably could have tried to do PD at night, then rode bike all day! But he gave it all up due to medical conditions, and trust me, it was very hard on him!

So no, you may not have to give up bike riding, but you may not be able to ride a long distance ride either!  Bikes are very addictive!  I still have mine and occaionally go riding when opportunity arises!  Even though husband says he don't mind me riding, I still feel bad doing it, cause I know it has to "sting". So I ride just enough to keep battery charged and then back home!

But his condition warranted it, your's may not!  So glad to hear you are going to do D. at home! So many people can't for what ever reason!

Let us know if we can help answer anything you need to know!  This is an excellent site for you!

lmunchkin     :flower;

p.s. What kind a bike you have?
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
wbdoug
Jr. Member
**
Offline Offline

Gender: Male
Posts: 96


« Reply #18 on: July 05, 2011, 07:28:57 AM »

Tbarrett,   
I am not a prolific poster but I will try to change my evil ways and post more often after I get my cath. Unlike you though this will be the beginning of my journey on dialysis so what you and others have written has given me a lot of information and relieved some of my fears (and raised a few others!).
I am not giving up on my bike trips altogether but when I talk about the long trips I am talking about traveling for 1 to 2 weeks straight on my bike camping along the way. Right  now I am on my 7th day out on a 13 day ride. A bike just will not allow me to carry what I am going to need in the future for this type of riding.

Imunchkin
Fortunately I do not have any other medical conditions so just being on D will not stop me from riding. As far as what type of pd I am not sure yet. I still need a much more education.
I am riding a 2002 Honda Goldwing pulling a small tent trailer. I have 141k on this bike (my 4th goldwing) and counting. Right now I am in Oregon. Next stop is Idaho.

Bill

Logged

8/3/2011 PD Cath installed
Life keeps interfering with my plans
Meinuk
Sr. Member
****
Offline Offline

Gender: Female
Posts: 891


« Reply #19 on: July 05, 2011, 08:41:01 AM »

Tbarret,


THANK YOU,  this is GREAT!!!  You are folowing in EPOMAN's tradition, and anything that you write will help others.

One suggestion though, could you copy your updates into the first post that you started?  That way they will all be together in a diary" form and easier to read.  (Still do the update postes as new posts, so we know that you've been active, but then, if you could, could you simply cut and paste into the first post?

I am very excited to read your updates.  We need all the info that we can get with regard to PD.  THANK YOU for sharing!

 :thx;

Anna
Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Willis
Full Member
***
Offline Offline

Gender: Male
Posts: 445


« Reply #20 on: July 05, 2011, 12:47:41 PM »

I took a shower today and took the bandage off and let the water just run down my stomach (the instruction sheet stated that I should have done that as soon as 24 hours after my surgery, but the Dialysis nurse told me to wait until I spoke to the PD nurse (Mandy) on Tuesday) but I did it anyway.... the instruction sheet also states that I am too leave it uncovered...
Wow, I was given STRICT instructions: DO NOT SHOWER UNTIL I TELL YOU IT'S OK!!! Well after 2 weeks of sponge baths I couldn't stand it anymore and started showering. The PD nurse never did tell me I could take a shower... :o

And I was told by both surgeon, neph, and PD nurse to not remove any bandages for 5 days at least and then to leave the first removal to the nurse. When the transfer set was connected to the cath about 10 days after surgery, she finally removed the original bandages applied during surgery. Then I had to sanitize the exit site every night and apply a fresh covering. I'm still applying a full covering after 3 months (it's pretty close to fully healed now with just a red ring around the cath).

 
Logged
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #21 on: July 05, 2011, 03:15:11 PM »

Well Bill, PD is an excellent modality for you, but I must be frank, any modality you choose is not going to allow long bike rides like you are doing now! That is ashame but it is reality!  Unless you trailer your bike with supplies  needed in your vehicle to last that many days! After awhile, it may ware you down and you will stop the D. or stop the long trips! 

This will make a huge difference in your lifestyle, but even though its no picnic, you will do what you need to do in order to live.  Are you on a Transplant list?  What has caused your kidneys to shut down?

I hate that you are facing all this, but others on this site will be very beneficial and full of information!  I hope you have a safe and wonderful ride, it is so freeing isnt it?

Good luck, Bill!  Looking forward to your posts!

lmunchkin       :flower;
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
tbarrett2533
Full Member
***
Offline Offline

Gender: Female
Posts: 371


Me licking my kidneys from my birthday kidney cake

« Reply #22 on: July 06, 2011, 01:51:57 PM »

Day 5

OK yesterday I spotted some drainage and got freaked out (b/c that stupid instruction sheet that if you have any drainage call!!)

so that is what i did and I went right in to the surgeons office and well come to find it, its OK and "normal" so she showed me how to tape it off (which BTW i really hate) so if there is any suggestions on how to tape it off and not have it so balky (sp) that would be great.  She also removed all the stitches  :bandance;  she told me that she would like to see me wait a few weeks before I use it (which I knew) she informed me (which I already knew  ;D) that the PD nurse will be the one to tell me when I can use it  :laugh:


I also decided that yesterday was enough of "in the bed" and I pushed myself, I ran errands, and did my all time fave thing .... clean my house (no joke it really is my fave thing to do  :P)  shoot I even made a cake  :cheer:  and last night well me and my man, well you know  :o ;) which I should have waited to do that b/c it literally felt like my stomach was falling off!!! (but it was sooooo worth it  >:D)

today I went to the park and walked around.... just a little pain, but nothing that i can not manage :)

till tomorrow  :waving;

Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
tbarrett2533
Full Member
***
Offline Offline

Gender: Female
Posts: 371


Me licking my kidneys from my birthday kidney cake

« Reply #23 on: July 06, 2011, 01:55:06 PM »

Tbarret,


THANK YOU,  this is GREAT!!!  You are folowing in EPOMAN's tradition, and anything that you write will help others.

One suggestion though, could you copy your updates into the first post that you started?  That way they will all be together in a diary" form and easier to read.  (Still do the update postes as new posts, so we know that you've been active, but then, if you could, could you simply cut and paste into the first post?

I am very excited to read your updates.  We need all the info that we can get with regard to PD.  THANK YOU for sharing!

 :thx;

Anna

Hi Anna  :)

I think I did that (copy and past today) and thank you for that a great idea  :2thumbsup;  I will also post what day I am on so when people read it they have an idea!! thanks for the great suggestion!!!!  :flower;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
tbarrett2533
Full Member
***
Offline Offline

Gender: Female
Posts: 371


Me licking my kidneys from my birthday kidney cake

« Reply #24 on: July 07, 2011, 11:15:37 AM »

Day 6 (and I am going to copy and paste at the top of each of my posts)

PD training starts Monday July 18, 2011!!!!!!!!!!!! 

pain is very minimal and I am getting super excited to finally be done with in-center Hemo!!!!

until tomorrow!!!!!!!!  :waving;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Pages: [1] 2 3 ... 6 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!