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Author Topic: Approved for transplant  (Read 2612 times)
Deanne
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« on: June 27, 2011, 11:41:23 AM »
I'm approved! I'm not officially listed yet because I have a couple of things they want done, but they said that since my to-do list is very short and not complicated, they're willing to start talking to my potential donors now. I'm CMV- and blood type A+. My PRA is at 0.  :yahoo;

They said that since I'm so healthy, they'll consider a CMV+ donor. I really hope my sister is CMV-. I know already that her blood type is A+. She made a point of bragging about it last week, equating it to her grades in school.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: June 27, 2011, 11:43:05 AM »
Woo hoo!  :bandance; :cheer: :yahoo;

What a lift this info must be!

 :flower;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #2 on: June 27, 2011, 12:25:36 PM »
That's fantastic!  How wonderful that you have some live donors lined up!!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #3 on: June 27, 2011, 01:16:01 PM »
Great News Deanne. I also hope you don't get CMV. I was CMV- and donor was positive which equaled bad experience for me.
« Last Edit: June 27, 2011, 09:30:31 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jie
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« Reply #4 on: June 27, 2011, 09:29:01 PM »
With blood A, even without a living donor, you should not wait for too long to get a kidney at Portland. Good luck. 
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okarol
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« Reply #5 on: June 27, 2011, 11:21:33 PM »
 :2thumbsup; Best of luck!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #6 on: June 27, 2011, 11:51:12 PM »
Good Luck!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #7 on: June 28, 2011, 08:39:03 AM »
Great news... and this didnt take along time...  let us know how your live donors work out...
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Deanne
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« Reply #8 on: June 29, 2011, 07:43:59 AM »
Thanks! I had a nice surprise yesterday. My brother emailed and offered to donate as well (so all three of my siblings have now offered). I know he won't qualify, but the fact that he offered....! He has/had prostate cancer. He's refused to follow up after treatment and no one, including him, knows if he's cancer-free. If he wants to help and can't donate, he might be a good candidate for coming out to babysit me after the transplant. He & his wife are both disabled/unable to work, but still very mobile.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Chris
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« Reply #9 on: June 29, 2011, 04:05:44 PM »
That's a great back up plan Deanne.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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Posts: 3840
« Reply #10 on: June 29, 2011, 04:10:03 PM »
 :bandance; :yahoo; :2thumbsup;   Congratulations!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Rerun
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Going through life tied to a chair!
« Reply #11 on: June 30, 2011, 04:39:07 AM »
Wonderful.  Keep us posted.

               :yahoo;
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #12 on: June 30, 2011, 09:06:42 AM »
D are you on the transplant waiting list as well? That is great your siblings have stepped up to get tested. Again I really hope it works out and someone is a match!! Siblings are the best part of my family!!!

About the CMV thing...my donor was + and I was - but I never had any problems with it. I was on a antiviral medication the entire time to make sure to keep it suspressed. (This was with my first transplant)

Anyway keep us updated on the process!!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Ang
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Posts: 3314
« Reply #13 on: June 30, 2011, 07:53:08 PM »
congrats and good luck
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live  life  to  the  full  and you won't  die  wondering
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