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Author Topic: Incenter Nocturnal Dialysis  (Read 22969 times)
monrein
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Might as well smile

« Reply #50 on: April 29, 2008, 04:50:15 PM »

Glad that things are working out with the nocturnal Rerun and I bet the other 4 nights in your own bed are heavenly.  I went to boarding school and even as a kid I wasn't crazy about other people's body noises.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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« Reply #51 on: April 29, 2008, 05:15:24 PM »

glad you are settling in so well and that you are feeling better. looking forward to hearing more about how it goes.
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kevno
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« Reply #52 on: April 30, 2008, 09:04:22 PM »

8 hours over night? No Thanks not for me. Never sleep on dialysis a couple of accidents happened :thumbdown; They have just put me on the machine for 5 hours 3x a week. That is I don't clear off and get a coffee from the cafe. Then I get back to late ;D and only do Four Hours ::) Get moaned at a bit, they say I need the extra hour pump speed now only 180 - 220. But I feel OK. Plus it is up to me what  I do :rant; That gas sniffing thing you used to do might help you sleep Rerun :yahoo;
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
Rerun
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Going through life tied to a chair!

« Reply #53 on: May 02, 2008, 05:12:56 PM »

I had to put one of my Furbabies down.  Adrianne was such a good, loyal, loving dog.  I'm so sad.  Then the next morning I felt really bad and thought it was still the grief of putting Adrianne down, but then I started throwing up and realized it was the flu.  I went to dialysis anyway and FROZE all night.   It was either that or make arrangements to go on Saturday.  I didn't want to do that.  I'm feeling better.  I still have Pebbles and she has never been alone as Adrianne was her Momma.  Life is a bitch.
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willieandwinnie
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« Reply #54 on: May 02, 2008, 05:17:03 PM »

:grouphug; Rerun, I'm so sorry. I just wanted you to know that I'm thinking about you. I know how sad you must be and your poor Pebbles>  :(
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"I know there's nothing to it, but I want to know what it is there's nothing to"
thegrammalady
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« Reply #55 on: May 02, 2008, 05:35:56 PM »

:'( i'm so sorry, it's hard to loose such a precious family member. glad that you're feeling better, having the flu on top of everything else just sucks.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
paris
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« Reply #56 on: May 02, 2008, 05:47:13 PM »

I am glad you hate it less.  That is a very good way to explain it.  You must really stretch out and enjoy your bed the other nights. :thumbup;   And  I am so sorry about your dog.  I am struggling with our dog and know I have to make a decision.  Wish someone would just tell me now is the time.  Sending you love :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #57 on: May 02, 2008, 05:55:34 PM »

 :cuddle; Awww Rerun.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #58 on: May 02, 2008, 06:09:13 PM »

sorry :'(
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #59 on: May 02, 2008, 06:27:16 PM »

I'm so sorry about your furbaby rerun.  :cuddle; :cuddle; :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
MIbarra
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Stopping to smell the bluebonnets

« Reply #60 on: May 02, 2008, 06:35:45 PM »

I'm so sorry about the furbaby you lost! I had to put my cat of almost 14 years down right before Christmas so I understand. You are right. It absolutely sucks.
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Cadaver transplant April 29, 2007
monrein
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Might as well smile

« Reply #61 on: May 02, 2008, 07:32:02 PM »

I'm so sorry Rerun.  I was just looking at the pictures of your babies yesterday (in the blue chair).  Beautiful Adrianne was and sad she's gone.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #62 on: May 02, 2008, 09:28:34 PM »

I know you will miss her lots.  Love to you and the other furbaby.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kevno
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« Reply #63 on: May 03, 2008, 06:34:19 AM »

So sorry to here about you little friend, they become a big part of the family.  :cuddle;
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
Gramapat
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« Reply #64 on: May 03, 2008, 11:52:11 PM »

Rerun,
I am so sorry to hear about Adrianne.   :'(
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Rerun
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Going through life tied to a chair!

« Reply #65 on: May 05, 2008, 02:02:27 PM »

I still feel like crap with or from the flu.  Going on 5 days.  Then (DAH) I remembered that I'm supposed to be stress dosed with steroids (Prednisone) when I'm sick.  Remember my bout with illness and I finally figured out they took me off Prednisone too fast after being on 10mg for over 17 years?  Well that led to tests on my adrenal gland and they found that it is fine under normal circumstances, but if I'm sick or have surgery I need extra steroids.  My adrenal gland can't handle it on its own.

I tired to call a doctor to help me with this but they are all "out" and the one that is in I don't like.  So, I'm self medicating.  I started with 20mg and will see if anyone has "time" for me tomorrow.  I think I'm feeling better already. 

I just pisses me off that the doctors act like they are always available but NEVER when I need them.  I hate the office girls.  Where do they get these women who just say "I'm sorry no one is in the office today"  Well, then what are YOU doing?  "If you have had the flu for 5 days you should go to ER".  Why the hell would I go to ER to see a doctor who is a student only to get charged $5,000 for him to tell me to go home and take a Tylenol!                                           

                                                                                                          :banghead;
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willieandwinnie
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« Reply #66 on: May 05, 2008, 02:13:06 PM »

Oh Rerun, try to hang in there. I know what you mean about office girls. I won't even go there because my blood pressure will go through the roof. Hope you feel better soon. How are the dialysis sessions going? I'll be thinking about you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile

« Reply #67 on: May 05, 2008, 02:20:43 PM »

My most frustrating experiences are ER related.  Feel like crap, risk picking up bugs you don't even want to think about, as you say see some student type without a clue, argue because their plan for you is idiotic and misses the mark and up here at my hospital which is super busy the wait can be 6 hours or more.  One out of every two times I feel the need to send a complaint letter and even with the transplant/renal management people working on my behalf nothing changes.  The only bonus is that there is no payment.

Hope you feel better soon Rerun.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!

« Reply #68 on: June 04, 2008, 01:42:41 PM »

Just wanted to report that I'm off all blood pressure meds.  My usual blood pressure of 190/100 all of a sudden dropped to 120/70.  They said this would happen with Nocturnal dialysis.  You just get a better clense and your blood purssure straightens out.  I'm a little light headed sometimes because I'm not use to this. 

                       :stauffenberg;
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twirl
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« Reply #69 on: June 04, 2008, 02:47:12 PM »

Rerun, glad about your BP
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Zach
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"Still crazy after all these years."

« Reply #70 on: June 04, 2008, 04:01:55 PM »


Just wanted to report that I'm off all blood pressure meds.


Wonderful news, just wonderful!
 :-*

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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Might as well smile

« Reply #71 on: June 04, 2008, 04:31:25 PM »

I want that too.  That's wonderful. 
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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