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Author Topic: Seattle Meetup  (Read 9371 times)
RichardMEL
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« Reply #25 on: August 06, 2011, 10:16:33 PM »
lol!! probably get confiscated by the TSA!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KarenInWA
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« Reply #26 on: August 07, 2011, 10:20:21 AM »
Just wanted to plant an idea here -  I was at The Garage in Feb of this year.  They have one of those "old fashioned" (I put that in quotes because the thing takes debit/credit cards) photo booths!  It''s near the new bathrooms (I highly recommend them over the old ones).  Takes B&W pics.  Can't pass up one of those!

 :pics;

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Bill Peckham
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« Reply #27 on: August 07, 2011, 12:03:04 PM »
Quote from: KarenInWA on August 07, 2011, 10:20:21 AM
Just wanted to plant an idea here -  I was at The Garage in Feb of this year.  They have one of those "old fashioned" (I put that in quotes because the thing takes debit/credit cards) photo booths!  It''s near the new bathrooms (I highly recommend them over the old ones).  Takes B&W pics.  Can't pass up one of those!

 :pics;

KarenInWA


Thanks for the heads up - otherwise only people with transplants would have found it
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
jazzin11
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Keep on going...It can't get any worse, can it?
« Reply #28 on: August 10, 2011, 04:29:06 AM »
I'll be at the Kelso Highlander Festival on Saturday, barring any problems, I can attend (planning on it) on Sunday!  Looking forward to it!! :thx;
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Lost the left kidney to a large kidney stone 1995
Cardiac Catheterization 12/11/2007 The contrast dye took out the right kidney!
Cardiac Quadruple Bypass 12/14/2007
AV Fistula done 4/2008
Diagnosed ESRD 9/11/2008 Started in center Hemo the same day.
Buttonhole access not without problems!
Living Donor transplant at UWMC Seattle June 29, 2011
Bill Peckham
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« Reply #29 on: August 10, 2011, 08:57:05 PM »
So what time will be this little shindig? Or will it be a soiree?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
KarenInWA
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« Reply #30 on: August 14, 2011, 05:15:53 PM »
Hmmm, good question, Bill.  I know Richard and I are planning on going to brunch at the Space Needle that day.  I wonder what time The Garage opens?

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Bill Peckham
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« Reply #31 on: August 24, 2011, 09:10:24 PM »
3Pm at the Garage on Broadway in Seattle, Sunday September 11.


Who's in?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
jazzin11
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Keep on going...It can't get any worse, can it?
« Reply #32 on: August 25, 2011, 08:00:00 PM »
I'll be there!!   :beer1;
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Lost the left kidney to a large kidney stone 1995
Cardiac Catheterization 12/11/2007 The contrast dye took out the right kidney!
Cardiac Quadruple Bypass 12/14/2007
AV Fistula done 4/2008
Diagnosed ESRD 9/11/2008 Started in center Hemo the same day.
Buttonhole access not without problems!
Living Donor transplant at UWMC Seattle June 29, 2011
RichardMEL
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« Reply #33 on: September 05, 2011, 08:49:46 AM »
Well less than a week now. I intend to be there with my chauffeur KarenInWA, and I know she knows the way :) LOoking forward to meeting everyone and proving I am real and not some kind of computer generated weirdo.

I'll be the one with the fistula.....  :rofl; :rofl; :rofl; :rofl;
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bill Peckham
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« Reply #34 on: September 05, 2011, 10:03:28 AM »
Quote from: RichardMEL on September 05, 2011, 08:49:46 AM
Well less than a week now. I intend to be there with my chauffeur KarenInWA, and I know she knows the way :) LOoking forward to meeting everyone and proving I am real and not some kind of computer generated weirdo.

I'll be the one with the fistula.....  :rofl; :rofl; :rofl; :rofl;


There'll be at least four of us if work doesn't rear up and bite me and suspect there will be attendees who haven't posted to this thread yet (coughcoughwallyzcough).
« Last Edit: September 05, 2011, 10:06:16 AM by Bill Peckham » Logged
http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #35 on: September 05, 2011, 10:05:22 AM »
Oh boy - please post some photos when you can!  :pics;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jazzin11
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Keep on going...It can't get any worse, can it?
« Reply #36 on: September 11, 2011, 01:08:45 AM »
The Garage, 1130 Broadway, Seattle.  I shall be there...3pm!
 :waving;
Logged
Lost the left kidney to a large kidney stone 1995
Cardiac Catheterization 12/11/2007 The contrast dye took out the right kidney!
Cardiac Quadruple Bypass 12/14/2007
AV Fistula done 4/2008
Diagnosed ESRD 9/11/2008 Started in center Hemo the same day.
Buttonhole access not without problems!
Living Donor transplant at UWMC Seattle June 29, 2011
Bill Peckham
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« Reply #37 on: September 11, 2011, 09:57:23 PM »
I made it up to the Garage to have a beer with Richard. I had to take an extra hour and half lunch break from work but it was well worth it although after having a beer I really didn't want to work for another five hours. Even with the beer break I've clocked 19 hours this weekend, but enough complaining. It was great to see IHD's Oz mainstay and now I can put a person with jazzin11 though I didn't stay long enough to talk much. I hope there will be a next time.


Front row Left to Right that's KarenInWA, RichardMEL, Me
Back Row WallyZ and jazzin11


WallyZ's better half is behind the camera.
« Last Edit: September 11, 2011, 10:03:43 PM by Bill Peckham » Logged
http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Wattle
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« Reply #38 on: September 11, 2011, 11:32:44 PM »
 :clap;

Yay I am glad you were able to have a mini beer filled meet! It's wonderful how we have made so many friends on here.  :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #39 on: September 12, 2011, 12:39:36 AM »
 :yahoo; I love the photo - it's so cool that you got together! It makes me so happy!  :waving;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #40 on: September 12, 2011, 01:50:01 AM »
 :clap;  Great that this happened.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
KarenInWA
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« Reply #41 on: September 12, 2011, 04:05:46 PM »
Thank you for posting the picture, Bill!  It was very nice catching up with Wallyz and his better half, you, and meeting jazzin11, who just recently had a transplant at the same place I will be having mine.  Always good to meet those who have "been there, done that" in the same place!  Yes, we do need to do more of these :)

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
paris
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« Reply #42 on: September 12, 2011, 05:05:53 PM »
Wonderful picture!  Epoman would be so proud.  Meeting in person is such a great experience.   But I am jealous --- lunch with Richard AND Bill?   One can always dream.     :rofl; 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
natnnnat
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« Reply #43 on: September 12, 2011, 06:50:13 PM »
great photo which put a smile on my dial.  thanks Bill. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
RichardMEL
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« Reply #44 on: September 21, 2011, 04:47:55 AM »
Hi all :)

just catching up on things finally. It has been crazy at work and stuff since I got back home :)

It was so wonderful to meet everyone in Seattle just over a week ago.

Bill - thank you SO much for *making* the time to come and see us, if even for the length of a beer (and thanks for the Mac & Jac's ale too!!! champion!). Incidently my mate *was* at that conference/show thing you were working so hard on.

It was such a pleasure to meet wallyz & wife, and Jazzin11 who I had the pleasure to talk to for a bit. Everyone's stories and experiences were very interesting and it was just so great to meet some fellow IHDers!!!

And the bonus - everyone seemed to understand my accent!!!!

 :bow; :beer1; :2thumbsup; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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