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jester
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« on: January 15, 2007, 07:52:40 AM »
Hi names Richard I talk for and with my son Jessie he's 18 just started hemo Dec 2 06 cause Alport's his mom Anne was on dialysis for 3 yrs before having a transplant 12 yrs ago....

 I advocate strongly for Nocturnal Dialysis..... I've yet to make profile but will just as soon as I get a handel on this site .... By the way we are Canadian ... Northern Ontario
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Zach
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« Reply #1 on: January 15, 2007, 09:39:40 AM »
Welcome Richard.  I started in-center hemodialysis when I was 24.  It's now 25 years later and counting.
It's good that you have joined our community!  I look forward to your posts.

BTW, Nocturnal Hemodialysis is far the best renal replacement therapy this side of a transplant.  In fact, some nephrologists believe that 6-nights-a-week nocturnal may be equal to a transplant.

But there are some unanswered questions about how all that dialysis affects the nutritional status of the patient.  A lot of amino acids can be lost during the process, and it may be difficult to replace all that is needed by mouth.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jester
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« Reply #2 on: January 15, 2007, 10:22:41 AM »
Thank you I was not aware of that  and I will really look into that... the more we learn the better... right ... and I'm all into learning  and when I do so does Jess  not only for now but the future

Richard  C/O  Jessie
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Sluff
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« Reply #3 on: January 15, 2007, 10:28:59 AM »
Welcome Jester,

That's the best reason of becoming apart of IHD, the knowledge and honesty here is relentless. There is almost always someone available to answer your questions here. If you try the search feature you will be able to see if there is a thread on whatever subject your looking for too.

I'll be looking forward to your involvement in IHD at what ever level you choose. Remember this site is here for you.

 :welcomesign;
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jester
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« Reply #4 on: January 15, 2007, 10:53:16 AM »
Hi ya Sluff... I've seen your posting elsewhere ... I'm sure

Richard  C/O  Jessie
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Joe Paul
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« Reply #5 on: January 15, 2007, 10:57:31 AM »
Great you reach out and trust us enough, that you would speak for your son, I admire that. Hopefully we here at home can explain the things you don't understand, just ask anything. Welcome Richard, great to have you aboard. Good luck to you Jessie, don't be shy
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
goofynina
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« Reply #6 on: January 15, 2007, 11:11:50 AM »
Hello Jester and Jessie,  Welcome to ihatedialysis.com,  where you will find answers to questions you havent even asked, lol,  (does that make any sense) i think it does, anyways,  just want to welcome you and your son and please do not hesitate to ask questions, we are here to help  :grouphug;

Goofynina/Admin.
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....and i think to myself, what a wonderful world....

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Razman
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« Reply #7 on: January 15, 2007, 02:05:03 PM »
Welcome to the site.  I live in Toronto & it's great to hear from another Canadian.  Stay in touch and keep up to date on how things are going. :2thumbsup;
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jester
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« Reply #8 on: January 15, 2007, 02:31:09 PM »
Your from TO on dialysis ?
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jester
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« Reply #9 on: January 15, 2007, 02:38:05 PM »
Quote from: Razman on January 15, 2007, 02:05:03 PM
Welcome to the site.  I live in Toronto & it's great to hear from another Canadian.  Stay in touch and keep up to date on how things are going. :2thumbsup;
T O right on we are in Sudbury ya it is nice to hear from another Canuck  .. you on dialysis ?
I'm Jester's (Jessie) dad ... Richard ... sometimes he replies sometimes I do.... we are parteners..... You a Leafs fan..... if so   sorry    Richard C/O  Jessie
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shay_pcb
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« Reply #10 on: January 15, 2007, 03:06:38 PM »
 :welcomesign; I too am a young'un on dialysis!! Let me know if I can help at all!!  ;D
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anja
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« Reply #11 on: January 15, 2007, 09:39:49 PM »
 :welcomesign;  Richard and Jessie.   Sorry you have to be on dialysis at such a younr age.  I am on PD (19 months) and my dad has been on HD for 6 years.  Hang in there, you have lots of living ahead of you!   :2thumbsup;   From another Alport's patient :cuddle; ,   Anja





[double post deleted.     Bajanne/moderator]
« Last Edit: January 15, 2007, 11:09:45 PM by bajanne2000 » Logged
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #12 on: January 15, 2007, 11:13:01 PM »
Welcome to our community, Richard and Jessie!  I am glad you found us and I know that you will find lots on this site.  There are loads of tremendously helpful posts to read.  And I also looking forward to your sharing with us and letting us know what you are going through.  We are here for you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
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« Reply #13 on: January 16, 2007, 02:55:26 AM »
Hi Jester and welcome to our site.  I'm sorry your son has to deal with this at such a young age.  Bless your heart for being there for him.

I hope to move soon to a city that has Nocturnal In Center.  You go there and sleep.  I don't know how many nights a week.  Even 3 would be better dialysis then I get now at 9 hours. 

Best of luck to you.
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nextnoel
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« Reply #14 on: January 16, 2007, 09:41:24 AM »
Welcom to IHD, Jester!  :welcomesign;  It's good to hear from you - keep posting! :grouphug;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
mallory
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« Reply #15 on: January 16, 2007, 11:09:57 AM »
Welcome Richard and Jessie!  Looking forward to hearing more form you!  :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
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