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Author Topic: Feeling pleased, hoping life co-operates  (Read 5237 times)
monrein
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Might as well smile

« on: June 09, 2011, 04:27:10 AM »

I'm very excited actually but hardly dare to utter just how much.  I used to spend the month of May in France, well for about 8 years we did, exploring different areas and it was always my husband, me and my mother-in-law.  (I had lived in France on two separate occasions, once as a student, once teaching in Nice.)  But then my blood work and kidney started showing signs of all-not-being-well and that annual trip had to end.  My mother-in-law is also now 92 and she had started to become too fragile. 
Two and a half years ago my sister-in-law (brother's wife) gave me a new kidney, name of KAKE (Kathy's Amazing Kidney Extraordinaire) and my age started going backwards as my life felt like mine again.
 So we are all going to France, starting this Sunday, for three and a half weeks...me, my husband, my brother, my donor, my nephew (17) and my niece (13).  We were thrilled to start planning this trip and then my m-i-l suddenly ended up in hospital where she spent 6 weeks with a bunch of things.  My husband was there every day for at least 4 hours and often longer while I was told to stay away from the hospital.  One of her doctors is also one of mine and she was emphatic.  I'm close to my Mum, as I call her, and my husband is an only child so this was all very difficult.  Lee also felt that he might have to miss out on the France trip which depressed the heck out of our Mum.  She's one of the loveliest people. 
She's now home (retirement home) with services plugged in, my aunt visiting her every day we're away, and we leave on Sunday.  There is still so much to do that I feel a bit overwhelmed but I made our first lunch reservation at an amazing restaurant in one of my favorite little villages and I'm feeling excited.  I most look forward to showing my brother and his family places that are special to us and even though the summer isn't my favorite time to be in France at least it won't be peak season.  I've rented a house in the Dordogne region (southwest) for a week and another in Paris for a week (perfect location, out the door, turn right, walk very short distance, look across the street, across the Seine at Notre Dame de Paris).  We also spend some time in a lovely medieval village called Cordes-sur-Ciel, a walled village built high up on a hill and we visit friends who live near Bordeaux.

I share this with everyone here with two things in mind.  The first is simply to catch up with those of you here who have been with me through the transplant failure, dialysis, new transplant thing.  The second is in the spirit of the wider perspective on life in general and ESRD in particular.  When I was on D, due to feeling awful plus the restrictive nature of the business,  this all seemed totally impossible and I never dared hope I could do it again.  I do live in the moment and I found my joy in little things like orchids, my garden and such...which can and do bring great pleasure actually.   I tried and managed to get through bad moments and to experience better moments.  Now, while away on this trip to France I will savour the fun experiences but always know that all things will disappear, joy will give way to frustration which will pass in it's turn and so it goes up and down and round and round.

Now if only I could get packed in between trips to make sure that all is in order in my mother-in-law's world.

P.S.  She's also decided and we've made arrangements NOT to return if she suddenly were to die while we're away.  As we discussed, our return would not bring her back, a funeral can wait for life and perhaps most importantly we each know where we stand with each other and feel lucky to have shared so much.  As for mother-in-law jokes, I never get the punch lines, mine has been and still is pretty darn wonderful.

P.P.S  I promise to toast IHD and it's members regularly.    :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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« Reply #1 on: June 09, 2011, 05:07:19 AM »

So wonderful, Monrein.  :flower;

And it is so true that we need to be mindfully in the moment, whether good or bad, knowing that now is really all we have.

Enjoy France! Enjoy the beauties that life has to offer, whether large or small. Celebrate!  :waving;

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
billybags
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« Reply #2 on: June 09, 2011, 05:17:54 AM »

Have a lovely time.You deserve it.
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Rerun
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« Reply #3 on: June 09, 2011, 05:19:07 AM »

Oh, this sounds wonderful.  For us who can never make this trip please bring back pictures and tell us about every little adventure.

       :waving;

Have a great time and your MIL will be in my prayers to make it until you get back so you can tell her all about it.

Have a safe trip and drink bottled water.
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rsudock
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« Reply #4 on: June 09, 2011, 06:13:59 AM »

Well I am thinking about your MIL and have a marvelous time on vacay!!!

yeah!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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« Reply #5 on: June 09, 2011, 09:18:49 AM »

 :wine; It sounds wonderful - have a great time - it's fabulous that your transplant gives you this freedom to live your life! I want to see the photos too!!  :yahoo;  :pics;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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This will be me...... Next spring.... I earned it.

« Reply #6 on: June 09, 2011, 10:06:40 AM »

very exciting....   we will be watching for up dates on your trip and   like Okarol said......LOts of pictures..
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IgA Nephropathy   April 2009
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In-Center Dialysis   Sept 2009
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Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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« Reply #7 on: June 09, 2011, 10:14:39 AM »

That sounds like fun!
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
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MooseMom
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« Reply #8 on: June 09, 2011, 11:07:32 AM »

Oooh, La Belle France!!!  I love France; when I lived in the UK, we'd pop over for Sunday lunch.  We had many annual vacations in that beautiful country, and I developed a great love for that wonderful French country cuisine.  I was in Normandy one year on D-Day (just by coincidence), and it was a truly unique experience.  I hope you have a wonderful time and will take many photos to share with us upon your return.  I am sorry to hear about your mother-in-law, but I am glad that she is urging you to go and enjoy this trip.  That is very generous of her; I'm sure she understands that this is why so many of us are longing for a new kidney and a new lease on life.  I am thrilled for you and can't wait to hear the details of every meal (I would always take photos of the fabulous dinners I'd have throughout France).

Have a safe and wonderful trip!!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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us and fam easter 2013

« Reply #9 on: June 09, 2011, 12:36:52 PM »

awwwwww, life at it's best  :clap;   Im so happy your able to make this trip.  What a great feeling to know your accomplishing this once again  :2thumbsup;
Hugs to your MIL, bless her for being so good to you and making it all beautiful..
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im a california wife and cargiver to my hubby
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kristina
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« Reply #10 on: June 09, 2011, 02:08:07 PM »



I wish you a bon voyage and a lovely time,

Kristina.
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« Reply #11 on: June 09, 2011, 02:15:07 PM »

We want pics, too!  Have a fabulous time!!!
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« Reply #12 on: June 09, 2011, 02:15:46 PM »

I studied at the Bordeaux Conservatoire de Musique for short time in the 1980's...  I hope you enjoy your vacation!  Your MIL sounds like a real gem - I wish she were mine :)
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Preemptive transplant recipient, living donor (brother)- March 2011
galvo
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« Reply #13 on: June 09, 2011, 04:47:10 PM »

Envious I am!! Have a great time.
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Galvo
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« Reply #14 on: June 09, 2011, 06:18:24 PM »

Oh, you know how excited I am for you!   That is my goal, to beable to go back again.  Visit favorite spots, wander the streets ----  I am thrilled you are going.   Show us how to live and vacation after a transplant!!    Your mother-in-law is so gracious.  If something does happen, you and the family can stop in any church to light a candle and say a prayer, then have whatever ceremony when you return.   You have shown her so much love and given her a great senior life and she is returning the favor by asking you not to come home.  Makes me tear up. 

We are living through you this next few weeks.  Save travels    :2thumbsup;     :waving;     :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Ang
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« Reply #15 on: June 09, 2011, 06:55:17 PM »

save travels Gail, Lee and family :2thumbsup;
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« Reply #16 on: June 09, 2011, 07:30:48 PM »

have a great trip- enjoy your family!  :bandance;
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monrein
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Might as well smile

« Reply #17 on: June 09, 2011, 07:48:49 PM »

Thanks so much everyone.  I'll seriously be thinking of all of you with great fondness during the trip and wishing good things for you too and since my nephew is Mr. Photograph, especially food, I'll be sure to post some pics.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #18 on: June 09, 2011, 07:57:11 PM »

 :grouphug;
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« Reply #19 on: June 10, 2011, 11:06:10 AM »

Have a wonderful time! I shall just miss you (we're travelling through a bit of northern France to get to Belgium on Saturday to buy my MiL her dastardly cigarettes) but I shall wave to you from across the English Channel! Oh, and I too wish your MiL were mine. She sounds a real gem.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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« Reply #20 on: June 10, 2011, 05:35:05 PM »

Have a great time!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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"There Is No Place Like Home!"

« Reply #21 on: June 10, 2011, 06:27:13 PM »

Iam so excited for you MOON!  I do believe life will cooperate for you. You go and have a "Delicious" time! Our prayers go with you always!

I'm just a weeeeeee jealous, but hey, I do sincerely hope you have a ball!!!


lmunchkin        :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
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monrein
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Might as well smile

« Reply #22 on: July 12, 2011, 01:15:34 PM »

Well we had a truly wonderful time in France and every step I took, as well as every bite of food that is not on a renal diet, made me feel so grateful.  It was nice having my donor sister-in-law along and I was so thrilled to show their family around places that have always meant so much to me.  I promised photos and I apologize if there are too many but I love seeing the ones other members post of trips and themselves so here goes.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
monrein
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Might as well smile

« Reply #23 on: July 12, 2011, 01:17:55 PM »

And more...
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
monrein
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Might as well smile

« Reply #24 on: July 12, 2011, 01:18:18 PM »

And again...
« Last Edit: July 12, 2011, 01:20:11 PM by monrein » Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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