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Author Topic: Got "The Call" This morning - they might have a kidney for me....  (Read 7392 times)
Steve-0
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« on: June 02, 2011, 03:35:11 PM »
So, I've been on "The List" for four years now.... it's been a long time since I waited by the phone for "that call".  Never thought it would come - but this morning, I stepped out of the shower to hear my phone ring.  It was My Transplant Center - they'd been calling me for a while (I was showering) my name had come up, I was a "backup" for a kidney that had come in, and they needed current blood to cross match. I rushed down to the hospital, they drew blood and I went home..... now I'm waiting to find out if I get the kidney.

It's like waiting on pins and needles.... she said they'd know if I didn't crossmatch in 4-6 hours.  I got tested at 8:30... it's 6:30 now.... so, I'm guessing that I just have to wait and see if I get it.... wow.

It's surreal.

~Steve




Edited: Moved to transplant section - okarol/admin
« Last Edit: July 28, 2011, 07:26:02 PM by okarol » Logged
HouseOfDialysis
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« Reply #1 on: June 02, 2011, 03:39:56 PM »
Good luck!
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
YLGuy
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« Reply #2 on: June 02, 2011, 03:42:39 PM »
 :pray;
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Sluff
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« Reply #3 on: June 02, 2011, 03:46:43 PM »
awesome!
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willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: June 02, 2011, 03:55:02 PM »
That crossmatch wait is the hardest. But Steve, even if this one doesn't go to you, you now know that you are getting close!

 :2thumbsup;

Rooting for you!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #5 on: June 02, 2011, 03:55:37 PM »
 :thumbup; Good luck!
Jenna had two back-up calls when we changed her primary wait time from Los Angeles to San Diego.
Each time the first person got the kidney, but it felt good knowing she was on the radar!
It makes me humble to think of the family who lost a loved one today, I say a prayer for them and the donor.
 :pray;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
CHeatherS
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« Reply #6 on: June 02, 2011, 04:36:02 PM »
Wow, now I am on pins and needles for you!
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boswife
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us and fam easter 2013
« Reply #7 on: June 02, 2011, 05:44:31 PM »
prayers for all......... and  wondering whats up........
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
natnnnat
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« Reply #8 on: June 02, 2011, 05:55:55 PM »
Good luck Steve-O.  If you don't get this one you'll get one soon...
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
jbeany
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Cattitude
« Reply #9 on: June 02, 2011, 06:22:28 PM »
 :2thumbsup;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Ang
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« Reply #10 on: June 02, 2011, 07:24:42 PM »
 :yahoo; :2thumbsup;
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live  life  to  the  full  and you won't  die  wondering
carol1987
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« Reply #11 on: June 02, 2011, 07:56:34 PM »
hope you got good news!!!   :bestwishes;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
galvo
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« Reply #12 on: June 02, 2011, 09:53:49 PM »
Fingers crossed, Steve-O!
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Galvo
okarol
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« Reply #13 on: June 03, 2011, 12:09:05 AM »
Oh man, there's no update on his blog or twitter! Could this really be happening?
I am off to bed - hoping tomorrow brings good news.  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #14 on: June 03, 2011, 12:12:56 AM »
Another example that underlines what they say - it can happen when you least expect it - like when I got my call I was *certain* it would be a mate wanting to talk to me about the cricket but nooo.. it was the registrar with the rather blunt "We've got a kidney for you" :) I hope Steve isn't just a backup and it is the real deal for him. My fingers are crossed!!

 :2thumbsup;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Darthvadar
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« Reply #15 on: June 03, 2011, 01:09:38 AM »
Fingers, toes, eyes and everything else crossed for you, Steve!...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Poppylicious
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« Reply #16 on: June 03, 2011, 03:46:18 AM »
I'm assuming that lack of an update can only be Good News!?

 :yahoo;
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
Woofgang
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« Reply #17 on: June 03, 2011, 04:37:15 AM »
adding to the good wishes and prayers for Steve and the Donor
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Steve-0
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« Reply #18 on: June 03, 2011, 10:38:19 AM »
Hey guys!

Thanks for all the well wishes.... the kidney didn't end up going to me.  I got called this morning - but they said my blood test was non-reactive, which is good... or something.  I should have paid more attention to the details. 

It's nice to know I'm on the radar, though - and I appreciate all the support here.


~Steve
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MooseMom
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« Reply #19 on: June 03, 2011, 10:49:52 AM »
Being "on the radar" is such a positive thing, so that's outstanding!!!  I know you must be very disappointed that you didn't get the kidney; it's like a kick in the stomach.  Nothing about this is easy...

Let us know when the next call comes! :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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God Bless my donor family!! :)
« Reply #20 on: June 03, 2011, 11:05:01 AM »
Steve-o,
So  sorry  this one   didn't  work out  for you.  But  like the  others  said,  when  they start  calling,  you  know   you're  getting  closer.    Hang in  there.        The  RIGHT  one  is  right  around the  corner!!   :thumbup;
 
Sept '09   I  had  a  call , I  was  told it's  a long  shot,  but   you're  back up.   
Jan '10   high  risk  call  came  thru.  I  turned it  down.
Jun '10 another  high  risk  call.   I  turned  it  down.
Nov 2, 2010  another  high  risk  came.     I  turned  it  down  as  well.

The  calls  were  getting  closer  and  closer,  I  had  a  gut feeling that  I  would have  another  call  either  on   Nov  6  or  8. 
THE  CALL  came on  Nov  8, 2010   at  10:30pm
I  was   rolled  to  the  OR  around   10:45  the next  morning.
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

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 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
kellyt
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« Reply #21 on: June 03, 2011, 03:45:45 PM »
Sorry it didn't work out for you this time, but keep your overnight bag packed, Steve-O!!!    :2thumbsup;   Glad you're on the radar!  Let us know.   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Steve-0
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« Reply #22 on: June 03, 2011, 09:10:47 PM »
You know, the morning I was in the Transplant Center waiting to get my blood drawn, there was a little girl in the waiting room, too.  No more than 8 or 9.  Real chubby, blonde little thing - she was laughing and smiling with her mom, and playing with a Curious George doll.  She was waiting on a kidney too.... I think they came in from out of town, too.  I overheard that she's had something like 30 surgeries..... and that she and her mom were hopeful that this kidney was for her.

At that moment, I really wanted the kidney - but my first thought was "I hope she gets it."

I know how much I suffer on dialysis, but I'm older - yet still young, and tough.  I can rough it on for a while.... I at least had a childhood not on dialysis.   This poor girl is on dialysis.... I hope the kidney went to her.  I've got a feeling it did, and I hope it goes well.

Sigh.  I really wish everyone who wanted a kidney could get one.  I make sure to push the "donate life" angle to people I know...


Anyway, my wait continues.  I'll keep y'all posted.

~Steve
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Poppylicious
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« Reply #23 on: June 04, 2011, 01:07:57 AM »
Awww, I'm so sorry that it didn't happen. On the plus side though, wouldn't it be wonderful if the little girl DID get the kidney!  (Ack, it's wonderful whoever gets it, really.)

Your turn will come.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
CHeatherS
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« Reply #24 on: June 04, 2011, 01:46:20 PM »
Awwwww, blessings, you sure do seem to have a good heart..... even if the kidneys are bonkers.  Blessings to you!

Heather
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