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Author Topic: POLL: How far would you go to get a kidney transplant?  (Read 19094 times)
okarol
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« on: May 24, 2011, 04:25:02 PM »

How far would you go to get a kidney transplant?
I think most scenarios are shown, but let me know if you think of any others that should be included.
Remember: Vote for as many actions as you'd feel comfortable with.
« Last Edit: May 24, 2011, 04:26:13 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #1 on: May 26, 2011, 09:09:45 PM »

 :bump;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RightSide
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« Reply #2 on: May 27, 2011, 08:22:19 AM »

How far would you go to get a kidney transplant?
I think most scenarios are shown, but let me know if you think of any others that should be included.
Remember: Vote for as many actions as you'd feel comfortable with.
Another scenario:
Publicize your plight with the mass media (newspapers, TV news shows, etc.) and ask their audiences to consider donating a kidney to you.

This works best if you're a show-biz celebrity like Natalie Cole, who has lots of fans who might donate a kidney to save you.

Also works if you're a young dewy-eyed child (which is why telethons parade kids in front of the TV cameras).
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okarol
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« Reply #3 on: May 27, 2011, 10:48:26 AM »

Yes, thanks RightSide - I will add that.  :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude

« Reply #4 on: May 27, 2011, 08:24:37 PM »

:bump;

19 have voted, but no one posted - there should be a setting that bumps the post automatically when someone answers the poll...
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okarol
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« Reply #5 on: June 01, 2011, 10:41:42 AM »

:bump;

19 have voted, but no one posted - there should be a setting that bumps the post automatically when someone answers the poll...

Yes, there's no setting for bumping. Just me.  :bump;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BillSharp
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« Reply #6 on: June 04, 2011, 11:06:00 AM »

Bump the poll to let more users vote.
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Started passing stones at age 14 (Cystinuria)
Transplant in 1989 at age 50
Transplant failed in 2009 at age 70
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Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
okarol
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« Reply #7 on: June 04, 2011, 11:25:49 PM »

I have sticked the topic, maybe more people will see it.

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: June 21, 2011, 05:52:34 PM »


I find it surprising how few people would reach out to a stranger for a kidney.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: July 05, 2011, 02:05:45 PM »

 :bump;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
CebuShan
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« Reply #10 on: September 15, 2011, 08:18:01 AM »

I voted for things that sounded like something I would do. Not sure I would actually do them!
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HE created marriage and children.
Think about it! LOL!
cassandra
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« Reply #11 on: February 26, 2012, 10:59:12 AM »

Maybe also add if you would kidnap someone who's walking around with 2 identical kidneys, and refused after promising for years, and then withdrew. If that were legal, I think I would.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Dannyboy
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« Reply #12 on: February 27, 2012, 07:02:24 AM »

I voted when I first joined iHD as a Pre-D,  but things have changed for me, as I'm on D these days.
Any chance of "changing my vote" to reflect the reality of today?
---Dan
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ESRD Summer 2011
Started using NxStage September, 2011
"Everything is funny as long as it is happening to Somebody Else"--Will Rogers

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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: March 03, 2012, 11:05:49 AM »

I voted when I first joined iHD as a Pre-D,  but things have changed for me, as I'm on D these days.
Any chance of "changing my vote" to reflect the reality of today?
---Dan

Yes, I have edited the settings and votes can be redone!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MomoMcSleepy
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« Reply #14 on: August 16, 2012, 11:57:59 AM »


I find it surprising how few people would reach out to a stranger for a kidney.

reach out how?  You mean the newspaper/craigslist route?

facebook is a way to reach friends of friends....I sent out emails and facebook blasts, and two of my living donors responded to that and matched (others responded and were ineligible).

I probably would not go on tv unless my husband made me, I don't want tons of people knowing all my business....but if things got dire, I'm not above that,  maybe I should have selected it.
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
DialysisGoneFOREVER
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« Reply #15 on: January 07, 2013, 04:21:24 AM »

Maybe also add if you would kidnap someone who's walking around with 2 identical kidneys, and refused after promising for years, and then withdrew. If that were legal, I think I would.

What?? You have an identical twin who said they would donate then didn't?

As far as how far I'd go to get a kidney I think there's only so much humiliation we can take! I think most people would feel uncomfortable going on TV asking for a kidney unless you were already famous like Natalie Cole!
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cassandra
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When all else fails run in circles, shout loudly

« Reply #16 on: January 07, 2013, 07:06:26 AM »

Quote

What?? You have an identical twin who said they would donate then didn't?


No, not a twin, just a brother who's kidney is a 100% match who did that.   :waiting;    , but I'm over it now. Thanx for asking.

love Cas




Edited: Fixed quote error - okarol/admin
« Last Edit: January 07, 2013, 11:34:38 AM by okarol » Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
cariad
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« Reply #17 on: January 07, 2013, 10:45:47 AM »

(((((Cas)))))

I shake my fist at your brother. That was heartless of him.  >:(  :(

Glad you're over it. It's all you can do really, put it behind you. Extra hugs from the Midlands to you.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
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What's past is prologue

« Reply #18 on: January 07, 2013, 11:05:00 AM »

Ah, and Happy Birthday, Cas!!! I only just noticed!

Another thing we have in common - both Capricorns. Hope it's been a lovely day.  :birthday; :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
CebuShan
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« Reply #19 on: January 07, 2013, 11:12:30 AM »

   :birthday;   :birthday;  Cas!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
DialysisGoneFOREVER
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« Reply #20 on: January 07, 2013, 12:21:48 PM »

Quote

What?? You have an identical twin who said they would donate then didn't?

No, not a twin, just a brother who's kidney is a 100% match who did that.   :waiting;    , but I'm over it now. Thanx for asking.

love Cas

Edited: Fixed quote error - okarol/admin

So did you get a kidney from someone else or are you waiting on the list?
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iKAZ3D
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06/08/2013

« Reply #21 on: October 04, 2013, 11:11:56 PM »

I'm sorry, but either than the two I voted for (wait for deceased or paired exchange) sound weak, pitiful and horrid. Pay to join a site to live? Pay someone to give me their kidney? What are we mobsters? Facebook it up? No, just stop, likes don't translate to money, a like is simply 10101000110101000101010 (etc). Just wait your turn. It's bound to happen. Work towards it, don't just sit and mope like I did.
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August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
okarol
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« Reply #22 on: June 22, 2014, 10:19:49 AM »

Some hospitals are now doing a combination of paired donation and desensitization. This might be the answer for Jenna.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ninanna
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« Reply #23 on: June 22, 2014, 02:45:11 PM »

Some hospitals are now doing a combination of paired donation and desensitization. This might be the answer for Jenna.

That's great!  I know my surgeon was excited for what the bone marrow transplant could mean for sensitized patients in the future.
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
DeadAlive
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« Reply #24 on: June 23, 2014, 09:49:16 AM »

Out of the 13% who voted "I'd rather stay on dialysis" ... i wonder how many of them have previously had a transplant. Im 1 of that 13% who rather stay on dialsysis, im also someone who has had a transplant thats been and gone.

Before i had a transplant i would of done pretty much anything for one .... Now im back on dialysis, been there done that with the transplant and wont be having another.
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If it wasn't for kidney failure i'd be whupping Lewis Hamilton in F1, Be in business with Richard Branson, Be married to Beyonce and have children!
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