I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 01, 2020, 04:38:03 AM

Login with username, password and session length
Search:     Advanced search
530052 Posts in 33367 Topics by 12373 Members
Latest Member: kbiel
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Home Dialysis (Moderator: Charlie B53)
| | |-+  Alright... I just got my first month of CCPD supplies...
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: 1 2 [3] Go Down Print
Author Topic: Alright... I just got my first month of CCPD supplies...  (Read 12910 times)
HouseOfDialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 348


Search me on Facebook ronaldhouse@gmail.com

WWW
« Reply #50 on: May 23, 2011, 04:22:26 AM »

Well, what are the Top 3 things you would have wanted to know about before starting PD that you found out after the fact?
Logged

Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
Lillupie
Sr. Member
****
Offline Offline

Gender: Female
Posts: 665


wedding 12-10-11

WWW
« Reply #51 on: May 23, 2011, 06:10:30 PM »

I think there are some videos on Youtube if im not mistaking.

HouseofDialysis, good quesiton. I actually asked a similar question in my book.

Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Alisa
Jr. Member
**
Offline Offline

Gender: Female
Posts: 50


« Reply #52 on: May 24, 2011, 08:34:38 AM »

Lillupie,  is your book published yet, if so what is the name, and did you write a how to sort of book or your life kinda book.  Just wondering, 

Also Houseofdialysis I am joting down a little list during my most boring last two hours in the world of dialysis time, (hehe) about things I think others should know.
Logged

PD since 2005
Waiting for transplant
HouseOfDialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 348


Search me on Facebook ronaldhouse@gmail.com

WWW
« Reply #53 on: May 24, 2011, 02:01:12 PM »

I think there are some videos on Youtube if im not mistaking.

HouseofDialysis, good quesiton. I actually asked a similar question in my book.

Lisa

There are quite a few actually. A few I would like to redo, updating them for new equipment and the like. I'm just a student of media.
Logged

Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
HouseOfDialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 348


Search me on Facebook ronaldhouse@gmail.com

WWW
« Reply #54 on: August 29, 2011, 05:06:07 PM »

At least once a week, I get my tubing all twisted in knots and have to unravel it making huge hoops of it and have to step through a few times. I'm a moron, functional, but still a moron. D'oh!
Logged

Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190


« Reply #55 on: August 30, 2011, 10:46:04 AM »

If your a moron so is my husband. he tosses about all  night and I have to unravel him in the morning. it is quit funny.
Logged
Willis
Full Member
***
Offline Offline

Gender: Male
Posts: 445


« Reply #56 on: August 30, 2011, 11:08:10 AM »

Two things you can do (or both):

1 - Get a $15 wrist brace that has velcro fasteners for the hand/side you normally sleep on. (For me it's my right hand.) Run the tubing parallel with the wrist brace and then fasten the velcro over it. In other words, the patient line runs up from your exit site, up to your shoulder, down your arm to the bottom (wrist) part of the brace, through the velcro, and out toward the fingers. Yes, I know, a picture would be better but I hope this description is sufficient. I got this idea because I've worn a wrist brace for years while sleeping due to carpal tunnel problems and thought...aha! It works!

2 - Go to any stationery store and pick up those snap clips used to hold ID badges. (Example: Snap Clip.) Wrap the plastic part around the patient line and snap it. Then clip it to the top of your shirt or PJ top. That makes sure the line comes out the "top" and if combined with the wrist brace idea the line won't get tangled in the sheets or blankets.

Now if you're clumsy and get out of bed and get tangled on the lines on the floor or the machine, that's something I can't help you with!  :P

 
Logged
Marina
Full Member
***
Offline Offline

Gender: Female
Posts: 376


God Bless my donor family!! :)

« Reply #57 on: August 30, 2011, 02:49:59 PM »

This morning's UF -930. YUP. NEGATIVE 930. WTF?
Most  likely   the  position you  were  at  the  time  it  drained.

Kinda  hard  to   keep  track  when you're  sound  asleep.    :stressed;
Logged

"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Lillupie
Sr. Member
****
Offline Offline

Gender: Female
Posts: 665


wedding 12-10-11

WWW
« Reply #58 on: August 30, 2011, 08:18:13 PM »

Lillupie,  is your book published yet, if so what is the name, and did you write a how to sort of book or your life kinda book.  Just wondering, 

Also Houseofdialysis I am joting down a little list during my most boring last two hours in the world of dialysis time, (hehe) about things I think others should know.

Wow thanks for asking me about my book. Someone else asked me about it too. No I have been on break from it. I have 175 pages done and it needs editing and I cant afford to publish it. I def want to get it done soon.

Thanks,
Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Pages: 1 2 [3] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!